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Need Help-daughter's Results In

WRowland

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WRowland Newbie
WRowland
Posted

Got my daughter's results in-she didn't get my DQ8(201) or my husbands DQ2(302)....

She's double DQ7(302). I was well prepared for explaining DQ2/DQ8 but not this.

What I can find about it, beyond "gluten sensitive" is that it's dark grey in a medium grey area. Some are saying that it may be a third celiac gene.

So, I'm looking for anyone with this genotype to chime in, especially symptoms they experienced, especially pain and neurological. This is a big life style change for her and she needs to recognize herself. This is a mother begging. Please help me help her.

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WRowland Newbie
WRowland
Posted
  • Author

Sorry, that's DQ2(201) and DQ8(302).

WRowland Newbie
WRowland
Posted
  • Author

And DQ7(301). Can you tell I'm really upset?

alisonsf Newbie
alisonsf
Posted

I'm sorry to say it really is a grey zone and there are at this point no definite answers. I am DQ6 and DQ7, negative tTG with high positives on my antigliadin tests. I've been told that I probably shouldn't eat gluten if I feel better when I don't, but that eating gluten won't kill me. Without the genetic markers for celiac disease I do not need to worry about things like lymphoma.

What I think is going on is an antigliadin response but not an autoimmune response and that is an important distinction.

This should be considered good news, though I can understand your dismay over a vague diagnosis.

Matilda Enthusiast
Matilda
Posted

I've got 1 of those 0301's. I read somewhere that it's very similar to DQ8. I think I would probably email Dr Fine and ask what he think the significance of a double 0301 is.

Best wishes,

Matilda

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