Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cushing Syndrome

twe0708

By twe0708
in Related Issues & Disorders

Recommended Posts

twe0708 Community Regular
twe0708
Posted

Does anyone have this and can this be treated?  I noticed a small hump below the back of my neck which I know is a symptom of Cushing Syndrome but was wondering if I go to the doctor, is there something they can do to keep me from getting worse?  I have also started putting on more weight on the upper body.  :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

See a doctor?  Not sure how you can diagnose this yourself.

 

 

Open Original Shared Link

twe0708 Community Regular
twe0708
Posted
  • Author

Thanks. I've already researched the information online. I came up with Cushings bc I haven't found any other illness out there that produces a hump on your back. I'm just curious what others who have this have experienced.

kareng Grand Master
kareng
Posted

Thanks. I've already researched the information online. I came up with Cushings bc I haven't found any other illness out there that produces a hump on your back. I'm just curious what others who have this have experienced.

 

 

I see you posted about this 2 years ago.  What did the doctor say at that time?  What treatment were you put on?  It looks like a doctor can help you.  It must have gotten worse in 2 years?

twe0708 Community Regular
twe0708
Posted
  • Author

No Karen it hasn't gotten worse.  I did go to the doctor 2 years ago and they ran some tests that came back fine.  I'm just trying to figure out what others have experienced.  Is this ok with you?   

 

I'm just trying to figure out if I need to return to the doctor to see if other problems are starting due to Cushings.

kareng Grand Master
kareng
Posted

No Karen it hasn't gotten worse.  I did go to the doctor 2 years ago and they ran some tests that came back fine.  I'm just trying to figure out what others have experienced.  Is this ok with you?   

 

 

Sure.  Sorry.  I thought you might have a serious problem but it sounds like  you are fine.  Great!   :)

HavaneseMom Explorer
HavaneseMom
Posted

Does it look like the hump in the picture in this link?

Open Original Shared Link

If so, it can be caused by poor posture, weak muscles or scoliosis, all of which can be worsened with the upper body weight gain you mentioned.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LauraTX Rising Star
LauraTX
Posted

Are you on long term oral corticosteroids, such as prednisone?

twe0708 Community Regular
twe0708
Posted
  • Author

No corticosteroids now or in the past.  Attached is a link with someone else and their neck.  My is not as bad as this but if you google more images you will see how bad it could get.

 

Open Original Shared Link

 

Scroll down to bottom of page where they show the lady before and after.  Mine isn't as bad but there is something there.  I can't believe how bad some of the pictures I have seen.  Very scary!

kareng Grand Master
kareng
Posted

Here is the link to your same topic from 2 years ago. Maybe there is some info there for people reading along....

https://www.celiac.com/forums/topic/96635-cushings-disease-or-buffalo-hump/#entry823920

LauraTX Rising Star
LauraTX
Posted

Then you just really need to see a doctor.  You cannot safely diagnose yourself with Cushings syndrome, and because it can be caused by serious illness, you need to get the root cause checked out.  As always, if you are not happy with what a doctor does, you can always change doctors.  The blog you linked to, while it could be helpful to patients properly diagnosed with Cushings, is very biased and written by a non-expert.  I would look elsewhere for reputable information.

 

If yours isn't as bad as the last pictures on that blog post, I highly suspect it could just be aging and body changes.  I, myself, have always had what I call the "Old white lady" shaped body, basically since maturity.  My waist size and my leg size do not match up -my waist is a size 16 and my legs are a size 12.  Now that I have been on prednisone for over a year for my lupus (finally now tapering doses down to go off), those disproportions have magnified.  But overall, I accept that I am just not going to look like the thin necked models out there in magazines.

 

If it would make you feel better to get thoroughly checked out, you can ask for specific tests to be run, and if your doctor won't do them, find someone who will.  However, whatever the outcome, you need to learn to accept yourself as-is or you are going to drive yourself crazy with worry.  Don't compare yourself to others in the looks department, that is not where you will find true happiness.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748
    Cwbtex
    Newest Member
    Cwbtex
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • captaincrab55
      Heat intolerant... Yikes

      By captaincrab55 · Posted

      Hi Colleen H,   I suffered with the pins and needles/burning feeling in my legs and feet for at least  6 years until my Nephrologist figured out that I had to go on a low salt diet.  He said my kidneys weren't strong enough to remove the salt.  The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option.  On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away.  Good Luck and hope this helps.  
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Yes this is very frustrating for me ... not sure what to think.  Feels like I'm having reactions to a lot of things  Now applesauce?? I don't understand 😞 
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Heat intolerant... Yikes

      By Colleen H · Posted

      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.