Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Watching Diet And Still Getting Sick


Aightball

Recommended Posts

Aightball Apprentice

Okay...I'm still having problems of late.

For example. I have had Corn Pops (old recipe) for breakfast the last couple of mornings (not this morning), and then I get a belly ache and the resulting diherra. Yesterday, I skipped breakfast and then had them for dinner and same thing.

Today (Saturday) for dinner, I had a hommade hamburger pattie (no crackers no nothing in it), and some Ruffles (also safe) and a glass of water. For desert, I had some gluten, wheat, and dairy free cookies. I *still* got sick. Tummy was a little naseous, plenty of diahreea to go around, ect.

I've still got a low energy level, and often feel the need to have naps during the day, no matter what time I get up. I'm losing weight, but only because I'm workingout and watching what I eat like a freaking hawk.

I've been getting over a cold, complete with sinus drainage, but what is wrong with me? Would it hurt to go back to the doc? I'm starting to think this gluten free thing is for the dogs :(.

-Kel

sick and tired of being sick and tired!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gillian502

Hi Kel,

Corn Pops are not gluten-free, so that's what probably caused your reaction which may take a few days to recover from. Alot of people on this site have mentioned eating them, and I've tried to warn people: I called the company, and at least in the U.S., they are not safe for us to eat. They are run on the same lines as all the other wheat and gluten filled cereals, and are cross-contaminated.

I also have diarrhea despite being gluten-free for 7 months, and my antibodies are still present in my blood work. So I'm not close to being 100% better yet, either. For some of us who have suffered alot of intestinal damage it does take time. If you're really concerned, go back to the dr. In the meantime, keep learning everything you can about the diet, watch for cross-contamination, and call all the manufactuers you can.

Lily Rookie

Kel,

I was still having the same problems as you going gluten free. I started noticing relief when I cut out processed foods as well. Chips, cookies,, ANYTHING processed seems to upset my system. It's hard having to make everything from scratch to put in your mouth when you don't have the energy to do it, but it's getting better.

Hang in there. Don't give up. It took me several weeks of eating this way to feel an improvement.

Blessings

Lily

zippyten Newbie

Kel,

I know you're not feeling well anyway, but it's not a good idea to skip breakfast and just eat Corn Pops for dinner, or eat a hamburger and Ruffles potato chips, and nothing else...small wonder you're not improving! If you are still having diarrhea problems, you should be eating plain foods like rice and bananas, maybe some gluten-free chicken broth (many organic brands like Imagine and Health Valley are gluten-free. or make your own chicken soup) -- never potato chips while you're still not feeling well or new to the diet! Greasy foods (especially foods high in preservatives, additives like MSG, or trans-fatty acids) will always aggravate the stomach and intestine, especially if there's trouble there to begin with. (Imagine you had a stomach bug instead -- would you feed yourself potato chips?) I have only been doing this about 6 weeks but I find I have to be extremely careful about what I eat, because my body is still very sensitive and seems to react immediately -- and I'm not just talking about gluten, either. From what I'm hearing, and experiencing, recovering and getting adjusted to this diet is a long process.

Try eating just whole foods for a few days and see what happens. Avoid fatty meats like ground meat and go for plain grilled or broiled chicken instead. Try corn grits for breakfast (sweetened with a little pure maple syrup, and it's good with soy milk) -- you can make it in a microwave in about 3 minutes & it's filling and good. When you start feeling better, add some fresh fruits and vegetables. Stay away from soda (if you drink it) and lactose for a while. I agree also about avoiding processed foods -- they really do make most people with celiac feel worse. If you need help figuring out things to eat, get one of Bette Hagman's Gluten-Free Gourmet Cookbooks for ideas. They've been a huge help to me & others. Hope you feel better soon.

Ellen

tarnalberry Community Regular

Kel, I know it can be work, but your best bet is to stop with the packaged foods. No boxed cereals, no cookies, and no premade patties (if they were, you didn't say). Fresh produce and meats, and spices. There are still plenty of things that don't take too much cooking (depending on your tastes), but it's the easiest way to eliminate the variables you can't control in packaged foods.

VAGuy Apprentice

Cheap to try - really helped me.

Have been gluten-free 4 months and still trouble. Began "graphing" how I did each day, Bad, Fair, OK, Good. Graph going up and down, up and down, etc. Began drinking spring water or reverse osmosis purified water on Mar 23. Every day since then with exception of today (Fair) has been (Good).

Skin problems clued me in. Chlorinated water/soap/alkalinity causes me problems. Why it took me 5 mo. from dermatologist telling me I was "alkaline sensitive" to figure it out I'll never know. I used to work (9) years on hot tubs and spas, think of the exposure. With them, acidity was reason for alkaline chemicals to be introduced to the water.

Different brands of bottled water have different alkalinity/acidity (ph) levels, if you call you can find out the ph level, and pick the one you want or even mix to get the desired ph level.

Chloramine (used here) causes my skin oils to greatly thicken, they can't flow, they back up, subsurface bleeding begins, and then it gets worse. What does it do to my internal tissues? Scary stuff.

Lily Rookie

Kel,

I see lots of people recommending chicken, but if you look closely at most grocery store chicken, it is injected with a chicken broth solution (to make it juicy when it cooks) and I won't touch it with a 10 foot pole. I don't trust anyone coating or braising, injecting anything into my food.

Are you feeling any better?

Lily


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zippyten Newbie

I see this come up time and again, about chicken (and other meat) being injected with gluten to make it juicier, or whatever, and it really isn't true. I spoke to someone at Perdue, who verified that any plain raw chicken that they package (whole or parts) has absolutely nothing added to it. They also have a gluten-free product list which they will send you (check their website). Of course, you can't use any of those breaded or prepared chicken products, obviously. The only other poultry I've ever heard of which has gluten injected is self-basting turkeys and yes, that mixture contains gluten.

Fresh chicken, meat, and fish should never pose a problem for anyone with celiac disease, and I have confirmed this through various sources, including the Univ. of Maryland Celiac Research Center. If you are having reactions to chicken or meat, I would consider it coming from another source besides the chicken or meat itself.

Ellen

lovegrov Collaborator

Corn Pops and Ruffles are two bad things to be eating when you're trying to heal. Lays has a notorious problem with cross contamination and the old Corn Pops is the same. Go back to plain, good, unprocessed food for a while. And eat a more balanced diet.

As for chicken, I can understand if people don't want some of the added sodium, but the flavor enhancers, broth or whatever else that's added to some poultry simply does not have gluten. If those solutions contained wheat, rye or barley they would, by law, have to be clearly listed. See this web site: Open Original Shared Link I called the 800 number at the bottom to confirm this myself.

Aightball Apprentice

Hi all,

First, thanks for the suggestions. I have stopped with the chips and corn pops for now. It's been enough days that my body is usually over things and it's still not.

I found out that my mom has colitis, and am going to check with the doc about that. I can have some gluten things and not have a problem, but can also have a so called "safe meal" and still get sick. I know it's not just my body being mad about somethig I had earlier in the week, just knowing how fast my body gets over things like that.

I am going to remain gluten free for a while and see if it helps though. I can give up certain things to feel bette :).

I've got permission to try to add some gluten back in, since I was never diagonised celiac, this was just to see if my tummy would settle down. For the most part it has, but I am currently back to my old tummy and first big meal of the day going right through. Yesterday, I had a fresh pork loin (small), straight from the grocers meat case, and still had issues. I know that our local grocery store is serious about food allergies and will do anything to prevent cross-contam, so that's not an issuse at all.

-Kel

zippyten Newbie

Kel:

I don't know your history or how many tests or doctors' visits you've been put through so far. But it does sound like something's going on, maybe even instead of, or addition to, the celiac. I'm sorry that you're still having trouble eating. I hope that you have a good doctor, and that you can get to the bottom of what ails you soon. I know how discouraging it can be to feel sick all the time. Not that I am a big advocate of being tested up the wazoo, but maybe you do need to have your digestive system looked at more closely to finally determine what's going on. I wish you a quick recovery.

More on the chicken: Bell & Evans confirmed (as did Perdue) that as I thought there are no added ingredients to their raw poultry. Here's their email response to my query:

Thank you for contacting Bell & Evans. Our fresh, raw chicken products contain no ingredients but chicken. There are no flavorings or preservatives added. I hope this information will allow you to continue to enjoy our chicken.

If I can be of other assistance, please do not hesitate to contact me.

Susan Ranck

Quality Assurance Manager

Bell & Evans Poultry

717-865-6626

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.