Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused With Results


kpg2471

Recommended Posts

kpg2471 Newbie

Hello I'm knew here and a very confused mother of a 6 yr old boy who recently was being followed by a Pediatric Rheumatologist due to joint pain and inflammation. He was tested for juvenile Arthritis which all came back negative but during those tests they ran a IgA blood test in his and it came back at 49.5. He was then referred on to a GI doctor at sicks kids hospital  were a biopsy was booked and done. The doctor treating him was on vacation and so another doctor on his team did the procedure and only took 3 samples all which came back negative. Our doctor would of preferred a min of 6 he stated. Our GI specialist was ready to confirm a diagnosis of celiac disease just on the IgA level alone but gave us the option to repeat the blood work, We choose to do that due to us having a very difficult time expecting the diagnosis. We just got the results today of the repeated blood work, this was given to us over the phone by the receptionist in his office. She called to tell us the doctor said my sons levels were with in normal range. But she didn't mention IgA she mentioned that it was a TTG test which was at 2.0 I believe she said. is the same thing as the IgA test? and what would of made the initial IgA test so high at 45.9 which  we were told was much higher then normal and that if it was lab error or a false positive it would of only been by a few points, not as high as my sons was. He stated false positives are not values that are double normal values. The receptionist said we are good and there is no indications of Celiac disease so continue on regular diet. I was so happy at that moment but as the day as went on I now have all these questions. We do go back to see the doctor in 8 mths but not sure I can wait that long to have my questions answered. I would love for all this to be true that he does not have celiac disease but at the same time I keep wondering if not Celiac then why else would the IgA level be so high and why didn't that get retested this time around and only the TTG when we requested the IgA do be re done so we could see if it was a false positive for our own sake as parents before we subjected our son to such a difficult lifestyle change. Any advice would help me please. He has always been on a full regular diet during all the testing and never started a gluten-free diet. His issues are mild which includes occasional constipation and diarrhea, irritability and joint pain and inflammations. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SMRI Collaborator

The TT IgA is the test for Celiac disease.  If the IgA they ran at first was just a total IgA, that is a test for immune issues and the 49.5 would depend on the range but it could be low or the low side of normal  The TT IgA is the test they should have done to start with.  I would call the dr's back and get copies of the actual lab reports so you can see them and what they actually tested, along with the lab range.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,641
    • Most Online (within 30 mins)
      7,748

    SamSH6788
    Newest Member
    SamSH6788
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some celiacs seem to not do well with any cereal grains.
    • yellowstone
      What foods can trigger a response in people with gluten sensitivity? I've read that there are foods that, although they don't contain gluten, can cause problems for people with gluten sensitivity because they contain proteins similar to gluten that trigger a response in the body. I've seen that other cereals are included: corn, rice... also chicken, casein. I would like to know what other foods can cause this reaction, and if you have more information on the subject, I would like to know about it. Right now, I react very badly to rice and corn. Thank you.
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.