Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

5Yr Old And Vision Problems


bridee

Recommended Posts

bridee Rookie

For the past year my 5yr old has had periods of blurred vision. She will go months with no problems then for a few days says her eyes are blurry. She says it goes blurry and then not blurry. She has passed the numerous eye tests we have put her through. She's had a brain ct scan and that was clear. A blood test showed she was iron deficient. celiac disease blood test was clear. My dad and brother both have celiac disease. Dr is saying iron def is diet related which I don't believe coz she eats really well. She is due to have blood test redone in 1.5mths to check if iron supplement is working.

After all of that my question is has anyone experienced similar vision problems? Daughter has had blurred vision for past 2 days. Haven't seen our GP yet for this episode but in the past he has said he believes it is caused by migraines but just without the painful headache.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Hi Bridee and Welcome to the Forum.

 

Since all her testing is clear, The migraine cause is very plausible.  Did she have an EGD?  Iron Deficiency usually has a cause.  Even if she eats a wonderful diet, it doesn't matter if she isn't absorbing the Iron.  Some are diagnosed by Endocscope and tested - on blood tests.

 

Welcome Again.

 

Colleen

appletree729 Apprentice

My son also has migraines that only affect his vision.  His experience is a little different (its called "Alice in Wonderland Syndrome", where there are perceptual changes, like things look really far away, or like he is huge and all his surroundings are small/far away).  He will also "see colors", dots, etc, which I think is the more typical visual disturbance seen with ocular migraines.

 

If migraines are suspected, I would make sure to have her seen by a pediatric neurologist if she hasn't been already.

 

My son is not diagnosed celiac, but pretty much our whole family has some sort of GI thing going on, and we have the DQ2 gene, and a family history of celiac, so we are trying to be as thorough as possible with testing.

VeggieGal Contributor

Hi Bridee, I still suffer with blurry vision after being gluten-free for nearly 2 yrs which maybe because I'm still not absorbing iron (it should take a child hopefully less time to heal). I have to take iron supplements.

I also wonder sometimes if im not healing quicker as I think the only gluten which maybe creeping into my diet is barley from cereals which are on the "allowed gluten-free list" in the UK due to having tiny amounts. I'm not convinced they should be allowed!

Good luck

post-53762-0-03338000-1410191823_thumb.p

Tomislav Newbie

Hello Bridee, I am also a celiac and through my entire life I have read lots of Celiac cases ,but still haven't found a case where a person that has Celiac (whether diagnosed or not ) has vision problems. Vision problems might be caused by many other things and it's necessary to explain every single thing... I should advice you to do the endoscope and blood test, even though she doesn't have any celiac disease symptoms and is eating quite well.. Sometimes people can express symptoms earlier, but sometimes later, and different people have different manifest of the symptoms.. just do those test and go to sleep with a clearer mind, although i also suggest that u should have a talk with a neurologist.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,705
    • Most Online (within 30 mins)
      7,748

    Lyana Chahine
    Newest Member
    Lyana Chahine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.