Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Low Back Pain Normal When Having An Attack?

Sbwife14

Recommended Posts

Sbwife14 Rookie
Sbwife14
Posted

Idk what I've come in contact with but I'm having the excess, bloating and gas but my low back is very sore. I can't get comfortable with stomach or back. Advice?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Make sure you are completely gluten free (cross contamination) including all medications, lipstick etc. Patience is the next step. Think about removing all dairy from your diet cause damage villi often can not release the enzymes need to digest lactose (milk sugar).

Short term fix? Heating pad for your back?

Keep a food journal to help determine other possible food intolerances (besides milk).

Oh, have you had a bone scan? I am 52 and had two vertebrae fractures just after my diagnosis. The pain was awful and I did NOTHING to cause the fractures! Osteopenia in hips and lower spine (one point from osteoporosis) and doc think I have osteoporosis in my upper back. A year later and I am feeling great. My hips and ribs are also no longer hurting which I attributed to old age!

cap6 Enthusiast
cap6
Posted

I had extreme lower back pain before being diagnosed, when I was at my sickest.  Every time I ate gluten (altho didn't know it was the prob at the time) I had back pain so bad I wanted to cry.  It could very well be a symptom of glutening.

Sbwife14 Rookie
Sbwife14
Posted
  • Author

Thank y'all so much! I had a bad attack over the weekend and carried over to today. Saw my PCP this evening. She is scheduling CT abdomen with contrast, repeat EGD, colonoscopy with biopsy. The only thing I've ever had done was labs and EGD. Every time I have an attack bad low back pain accompanies. The seat Warner's in my car are awesome! Otherwise I just deal with it. I'm concerned about cross contaminating...I am new and this is a hard adjustment for me...still learning.

golfman Newbie
golfman
Posted

I have had low back pain and stomach pain for over a month now. Also no appetite. I have been gluten free for almost 2 weeks. Shouldn't I be feeling much better by now?

cyclinglady Grand Master
cyclinglady
Posted

I have had low back pain and stomach pain for over a month now. Also no appetite. I have been gluten free for almost 2 weeks. Shouldn't I be feeling much better by now?

Patience! It takes time to heal!

I know you feel bad. I felt a bit better by six weeks to notice a difference. It has been a year and a half and I finally starting to feel really good.

Hang in there!

Sbwife14 Rookie
Sbwife14
Posted
  • Author

I definitely felt a difference in the first week begin gluten free.....it's hard to not cross contaminate.....hoping it'll all get better with time

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


golfman Newbie
golfman
Posted

Thanks! I'm trying to be patient! It's just so hard when you have no appetite and don't sleep good because the pain keeps waking you up. :(

Sbwife14 Rookie
Sbwife14
Posted
  • Author

I understand! Hang in there!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    2. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    3. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
    4. trents
      - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Contact them.
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten? I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      Many thanks!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.