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Dd And Self Going Gf Tomorrow

Eeyorific

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Eeyorific Rookie
Eeyorific
Posted

I want to apologize in advance for this post isn't only about my children, but myself as well, so it may be a bit OT. :unsure:

Just a brief repost.. ds (3yrs) has been gluten-free for past year, and is doing wonderfully!! (he is also CF and corn free)

My daughter and I have very different symptoms, however both have had these symptoms life long, and most all of them can be linked to celiac disease.

After a pos HLA DQ2 gene result (like brother). She may also have the DQ1 gene like him as well, but I'm having a hard time reading the result of that, and the ped doc hasn't a clue. The GI doc wouldn't even touch it. :rolleyes:

Speaking of the GI.. I took her (for the 1st time since age 5, btw.. she'll be 10 next month) For the 1st 5 yrs, she was on stool softeners, for the past nearly 5 yrs, I have just given her a very healthy (well, as healthy as you can with gluten) diet with HIGH fiber, apple juice every day, plenty of exercise (she's been in Karate for 5 years and is an Asst. Instructor, plus on a demo team) Over the years, her symptoms have increased, and with all of the research and experience I have gained in the past year... My MOMMY GUT KNOWS THAT SHE IS SENSITIVE TO GLUTEN!!!!!

I said as much to the GI.. but instead of working with me and following my lead, he wants to rule out everything else under the sun. Inluding many things that have already been ruled out, and are not necessary.

We went ahead and agreed to give him time to catch up, and do what he asked in the mean time. Oh.. he wanted to put her back on Miralax, which I wouldn't agree to.. also he said, she needed 15 grams of fiber.. So the next day, I counted her fiber intake... it was 22 grams. The next night, she had a stool so hard and large, she cried, and it flooded the toliet. The next morning, after nearly 10 hours of sleep, when I woke her for school.. she was balling because she was still so very sleepy... This is when I said Enough is enough!!!!! I talked to the school, daughter and pediatrician to prepare them all.. for starting Monday (tomorrow) she is going gluten-free. I also contacted the GI to let him know, and give him one more chance to do the two things I have requested.. A Biopsy (what we were not able to get in time with our son) also I requested that he ran the IgA and IgG antigliadian antibodies on her... (my son was positive for these at 30) He refused both.

So, once again, I'm on my own... Kinda... I do have the ped's support, however, she can't dx either of my kids.. but she did agree to run the IgA and IgG's.. they were drawn yesterday.

So now, here we are.. all ready to go gluten-free... she's enjoyed her favorite gluten foods one last time.. But I find myself in a bit of denial. I have put so much of my energy and concentration into her.. I almost forgot that I too am going gluten-free. I know this is needed for the both of us.. I know we will both see great improvement, but I realized yesterday, I am having a hard time digesting this, and wondering if I'm really strong enough to see her and I both through this.

Another thing that has me concerned.. is I don't know if I will be able to afford this. We're talking about 3 different meal preparations for each meal. My son who is Gluten-free Casein-free and corn free, my daugther and myself who are gluten-free and my husband who will NOT in any form completely give up his gluten!!!! And I can't really ask him to do so, because as it is, he works 6 to 7 days a week to provide for us... we're barely making ends meet. I won't tell this to my family, but I feel safe saying it here, I can see myself simply not eating several meals at a time to make sure everyone else can. With all that said, I am a person of faith, and I know God will not let my family starve. I also know that he will give us the strength to get through all of this. It's just I'm still in the process of handing it all over and the emotions of it all are still very high.

I hope you all don't mind my venting, I have a feeling the next few weeks, months will be a bit hard.

Thanks for listening & God Bless,

Kristie

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Guest nini
Guest nini
Posted

Get creative. There are a lot of "normal" meals that you can make that are not only gluten free, but casein and corn free as well... you could make these kinds of meals for the entire family and not even tell your hubby that it's NATURALLY gluten free.

I'm talking Roasted Chicken with any combination of steamed or roasted veggies and rice or potatoes, A Beef or Pork Pot roast done in the crockpot with whatever you like in your pot roast, I personally like potatoes, musrooms and carrots in my pot roast, stick with plain Mc Cormick seasonings and salt and pepper and you can have a variety of flavors

You can make mexican food meals and just put the corn chips on the side for those that can have corn, like Spanish Rice, Refried Beans, Fajita grilled chicken or beef, or ground beef on platters of lettuce and have your cheese also on the side for those who can eat cheese.

You do not have to spend a lot on specialty foods. You may want to invest in ONE kind of gluten-free bread that your family likes, it may take a few trials and errors before finding one, but it will be worth it.

If you go to your regular grocery store and STICK TO THE OUTER PERIMETER, you can find very healthy meal options for your family in the produce section, meat, fish and poultry section, dairy section, etc... only venturing into the main aisles for your basics like Rice, Instant Potatoes, Coffee and Juice, and household items.

Its really not that difficult

Guest nini
Guest nini
Posted

Once you get the hang of that, you can start adding in one or two gluten free specialty items like Pasta or Biscuit mix... don't go out and buy a lot of specialty gluten-free foods most of them are terrible! Some are good

I personally like Tinkyada Pasta

taweavmo3 Enthusiast
taweavmo3
Posted

You can do it, I promise. We are on a very tight budget, and we are all gluten free at home. My husband can eat all the gluten he wants while away, and my 6 year old has gluten at school. Our dinners are very simple, usually a meat, veggie and rice, potatoes or beans. We also make taco salad quite a bit, for variety. Like Nini said....we do pot roast, roasted chicken, pork chops, meatloaf, or just plain hamburger patties. I also boil a large chicken, and use that meat for a quick dinner with rice and peas, then save a little for some chicken salad the next day. You can save the broth, and cook your rice in it for more flavor.

Stir fries are great too. I bought a cheap rice cooker at Walmart ($15). The leftover rice tends to dry out....but it's perfect for a stir fry. I put a little bit of chicken, peas, carrots, scrambled eggs, and soy sauce. Really easy, and even my very picky 6 year old eats it.

I didn't cook really elaborate meals prior to the diet, so this hasn't been a huge change for us. I just stick to the basics, and my grocery bill stays about the same. You will get the hang of it, and everyone will adjust. I definately wouldn't cook three different meals...that's too much work! Take the time to organize and research meal ides, and I'm sure you will come up with plenty of meals that will suit everyone's needs. Good luck, and I hope your daughter is feeling better soon.

Eeyorific Rookie
Eeyorific
Posted
  • Author

Well, we're on day 4 of our gluten-free diet.. It's going great!! In fact, it's going so good, that I have to keep double and tripple checking everything to ensure that we are in fact eating gluten-free.

I'm already seeing improvement in Emelia with stools. I knew this diet would help her!

She's still feeling pretty good about things. Tuesday, she had lunch with her teacher. I made a gluten-free pizza and blueberry/banana muffins. The teacher who is not gluten-free sent home a card saying that if I hadn't told her, she wouldn't have ever known it was any different. Both her and daugther said it was "excellent"! :D

God Bless,

Kristie

Smunkeemom Enthusiast
Smunkeemom
Posted
Well, we're on day 4 of our gluten-free diet.. It's going great!! In fact, it's going so good, that I have to keep double and tripple checking everything to ensure that we are in fact eating gluten-free.

I'm already seeing improvement in Emelia with stools. I knew this diet would help her!

She's still feeling pretty good about things. Tuesday, she had lunch with her teacher. I made a gluten-free pizza and blueberry/banana muffins. The teacher who is not gluten-free sent home a card saying that if I hadn't told her, she wouldn't have ever known it was any different. Both her and daugther said it was "excellent"! :D

God Bless,

Kristie

<{POST_SNAPBACK}>

I am so glad that things are going well :D My youngest has been gluten-free for about 18 months and my oldest has been gluten-free for about 3 weeks now, so even though I was used to the diet it was still a big change. If we can help with questions let us know. ;)

Eeyorific Rookie
Eeyorific
Posted
  • Author
I am so glad that things are going well :D My youngest has been gluten-free for about 18 months and my oldest has been gluten-free for about 3 weeks now, so even though I was used to the diet it was still a big change. If we can help with questions let us know. ;)

<{POST_SNAPBACK}>

I know what you mean... My son has been on the diet for just over a year. However, he's also CF and Corn Free. So when my daughter and I went on it. It was still a bit of an adjustment.

It's still going really well, we're seeing big improvement! I'm a bit concerned however, because we are going out of town for the weekend. I'm bringing most of the food. However, we'll need to find a place to go for supper for both nights. Next time, I'm getting a room with a kitchen. Has anyone here had any luck with eating at Denny's? They have sent me a list with gluten-free items, but I've not been there yet since going gluten-free. I have no idea what I'm going to do for my son. *sigh*

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Smunkeemom Enthusiast
Smunkeemom
Posted
I know what you mean... My son has been on the diet for just over a year. However, he's also CF and Corn Free. So when my daughter and I went on it. It was still a bit of an adjustment.

It's still going really well, we're seeing big improvement! I'm a bit concerned however, because we are going out of town for the weekend. I'm bringing most of the food. However, we'll need to find a place to go for supper for both nights. Next time, I'm getting a room with a kitchen.  Has anyone here had any luck with eating at Denny's? They have sent me a list with gluten-free items, but I've not been there yet since going gluten-free. I have no idea what I'm going to do for my son. *sigh*

<{POST_SNAPBACK}>

I have been to Denny's and have found it much easier to call ahead and talk to the manager something like 'we are planning on eating there tonight, we will be in about 7 and need a gluten free meal prepared'

When you get there ask for the manager that you spoke with and ask him to oversee your visit, things seem to go a lot smoother that way. ;)

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