Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test -- Dr Didn't Specify The Celiac Panel :(

CanadianK

Recommended Posts

CanadianK Apprentice
CanadianK
Posted

Hi all

 

I was here awhile ago asking about blood tests and my daughters anxiety, etc. Anyways, I finally got her blood test done and the Dr called with the results but then said, there are no celiac results, but her IGA is fine. What?!? Turns out my dr. didn't specify on the form that she wanted the celiac panel, instead she just wrote IgA. I'm annoyed and feeling so stupid with myself. I just went through this with myself and requested all the tests, but it felt like I had to work to convince my dr. to request the test for my daughter, that when she wrote out the requisition I didn't go over it and I didn't request all the tests I had asked for myself. 

 

I'm so disheartened. 

 

It took all my daughter's courage to get it done and in my haste I dropped the ball…

 

Of the tests she did get done:

 

Ferritin 26.8 (range 30.7-177)

Hemoglobin 129 (range 120-160)

White Blood Cell Count 3.7 (range 4-10) 

 

Her B12, sugar, kidney, thyroid and all of that is fine and normal. 

 

She's exhausted all the time and pale with dark circles under her eyes when she eats gluten (as well as the tummy aches, headaches, etc) She's continuing to eat gluten and we've been referred to a Peds GI.

 

Anyone have input about what the appt at the GI will be like? How to they usually handle things with children? 

 

Thanks for listening. I'm beating myself up over here…

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JodyM75 Apprentice
JodyM75
Posted

If you hurry and follow up fast, the lab may still have the vials of blood and they can do the correct test.  I was told my lab keeps the vials for at least 3 days. 

CanadianK Apprentice
CanadianK
Posted
  • Author

THANK YOU!! I called the lab and they keep kids blood for a month! I'm in the process of calling my Dr. to get her to add it in. I can't thank you enough!!

 

 

If you hurry and follow up fast, the lab may still have the vials of blood and they can do the correct test.  I was told my lab keeps the vials for at least 3 days. 

africanqueen99 Contributor
africanqueen99
Posted

Wow, this is just mind blowing that they keep the blood.  What awesome information to keep on hand!

beth01 Enthusiast
beth01
Posted

Most labs keep blood that they have run testing on for at least a few days. Some tests like complete blood counts, the vial of blood is only good for 24 hours, but tests that use serum or plasma, it can be good for up to 7 days to still have testing done on it if it is refrigerated or up to a month if frozen. It's all in how the lab processes the original sample though. This might not be the case for all labs. Some tests they automatically freeze the sample in case further testing is needed.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748
    TDeb
    Newest Member
    TDeb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.