Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results "normal"

darkangel

Recommended Posts

darkangel Rookie
darkangel
Posted

My doctor just called. No sign of celiac disease or even any gluten sensitivity on my blood tests. B12 levels good, magnesium levels good. Red blood cell count a little low, but not anemic. So, I still have no answers.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


danikali Enthusiast
danikali
Posted
My doctor just called. No sign of celiac disease or even any gluten sensitivity on my blood tests. B12 levels good, magnesium levels good. Red blood cell count a little low, but not anemic. So, I still have no answers.

<{POST_SNAPBACK}>

may i ask what your symptoms are?

Jnkmnky Collaborator
Jnkmnky
Posted

I came up normal with no sensitivities as well. However, being gluten free means I DO NOT have the endometriosis pain I experienced for a year+. Have you read the book Dangerous Grains? It's helpful in explaining why our bodies do not do well ingesting gluten. It was all the proof I need to believe my body does NOT like gluten....no matter what the current tests say about my reaction to gluten. Let's also not forget that testing for Celiac *while improved* is not as good as it will one day be.

darkangel Rookie
darkangel
Posted
  • Author
may i ask what your symptoms are?

<{POST_SNAPBACK}>

I have a long history of gut trouble: tummy aches and constipation as a child, dxed with IBS in college, upgraded to ulcerative colitis in my 20s. I've been in "remission" for a couple of blissful years, but here lately the old symptoms have cropped up again and have gotten worse and worse... diarrhea, gas, cramping, bloating, allergic reactions, rash, joints aching, fatigue, sleepiness... you name it.

A couple of weeks ago, I woke up and eliminated all gluten and casein and am feeling better, but still not 100%. I had been taking a whey protein isolate supplement because I weight train. When I started losing weight, I upped my intake and it finally dawned on me, if I had a casein sensitivity, this could explain my sudden turn for the worse. So, I stopped it completely and it helped alot.

I just don't understand why all these things can bother me so much, but nothing shows up on the tests. However, I will listen to my body... not the blood test results.

My brother said I should be happy I wasn't dxed celiac disease or gluten intolerant, but it would be nice to have some answers and to KNOW what I need to do to get well.

danikali Enthusiast
danikali
Posted

I know what you are saying about having answers. You feel like you're are going nuts sometimes when they can't find anything, but SOMETHING is OBVIOUSLY going on!

My question is, what kind of tests did you just take? Blood tests? Were you off the gluten when you took the tests?

And also, have you tried going through enterolab and giving them a stool sample instead of a blood test?

But it's also true, no matter what, we know our bodies best, and if you are feeling better, than you should just keep it up. I'm actually back on the gluten for testing, and I can't believe how crappy I feel every single day again. I'm so jealous of people who can actually concentrate on life instead of their health every day!

Jnkmnky Collaborator
Jnkmnky
Posted
I have a long history of gut trouble: tummy aches and constipation as a child, dxed with IBS in college, upgraded to ulcerative colitis in my 20s. I've been in "remission" for a couple of blissful years, but here lately the old symptoms have cropped up again and have gotten worse and worse... diarrhea, gas, cramping, bloating, allergic reactions, rash, joints aching, fatigue, sleepiness... you name it.

A couple of weeks ago, I woke up and eliminated all gluten and casein and am feeling better, but still not 100%. I had been taking a whey protein isolate supplement because I weight train. When I started losing weight, I upped my intake and it finally dawned on me, if I had a casein sensitivity, this could explain my sudden turn for the worse. So, I stopped it completely and it helped alot.

I just don't understand why all these things can bother me so much, but nothing shows up on the tests. However, I will listen to my body... not the blood test results.

My brother said I should be happy I wasn't dxed celiac disease or gluten intolerant, but it would be nice to have some answers and to KNOW what I need to do to get well.

<{POST_SNAPBACK}>

There's an awful lot of healing you'll have to do. A few weeks is not enough time. Give it 6 months....at least. Just be 100% gluten-free or your efforts are wasted.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748
    maltawildcat
    Newest Member
    maltawildcat
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NanCel
      Celiac getting dentures

      By NanCel · Posted

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.