Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Getting Worse. Ideas?

Jonesy3449

Recommended Posts

Jonesy3449 Newbie
Jonesy3449
Posted

I was diagnosed with celiac around 9 months ago with a blood test and endoscopy. I have been eating gluten free since then and had a few months of feeling a little better but over the last couple months my gut issues have returned and gotten worse. I eliminated all dairy products and I'm out of ideas. Anybody else in the same boat?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mynxr Rookie
mynxr
Posted

I was diagnosed with celiac around 9 months ago with a blood test and endoscopy. I have been eating gluten free since then and had a few months of feeling a little better but over the last couple months my gut issues have returned and gotten worse. I eliminated all dairy products and I'm out of ideas. Anybody else in the same boat?

 

Are you taking any medications?  Doing any cooking with natural flavors ie vanilla, eating pickles on a regular basis, etc.?  I can only speak from my experience but I discovered that my meds contained gluten, natural flavors can contain gluten.  If natural vanilla flavoring is made from vodka distilled from wheat, it will make me react.  Dextrin makes me react.  You may want to look a little closer at the ingredients and check www.glutenfreemeds.com to make sure that your medications, Rx or OTC are gluten free as well.  It was a real eye opener to me.

sunny2012 Rookie
sunny2012
Posted

Is your house gluten free? My family had to stop having any gluten in the house while I healed. As we start getting less gluten, it can actually make us much sicker than when we were being constantly bombarded with it.

 

 

Other than that - we can still have all the other normal issues. My gallbladder was necrotic - actually put me in hospital several times with "food poisoning". Had the social workers come in and "explain" how to keep my food "safe". I finally had to meet with a surgeon and demand that he look at me and TALK to me not the tests results. They could not believe that I had survived with a dead organ or that the tests showed it working "within normal limits" (I just love that phrase - like I am a Star Trek machine instead of a living breathing human being.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I get the shakes...
    2. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY
    3. RMJ
      - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.
    4. FannyRD
      - FannyRD replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

      Thanks for the resource! I will check it out!
    5. Scott Adams
      - Scott Adams replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,181
    • Most Online (within 30 mins)
      7,748
    Eldret419
    Newest Member
    Eldret419
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      New issue

      By Jmartes71 · Posted

      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      Do Gluten Enzymes actually work?

      By RMJ · Posted

      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
    • FannyRD
      Gluten free phosphate binders for dialysis patients

      By FannyRD · Posted

      Thanks for the resource! I will check it out!
    • Scott Adams
      Gluten free phosphate binders for dialysis patients

      By Scott Adams · Posted

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.