Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questioning My Daughter.


janpell

Recommended Posts

janpell Apprentice

I have gluten intolerance as do my two boys. I didn't think my daughter was affected by it so I let her consume it when she goes out places, which is often enough. I notice lately she is getting weird behaviour afterwards, some sores on face and arms, rash around her mouth (almost like a beard), has many stomach aches. I brought her to the doctor for the stomach pains and he assured me it was constipation even though she has 1 or 2 BM a day and it is usually typical in texture and not hard. At times I notice there is even some blood stains on her underwear (at the back end). She is 7 years old. She has been to a party or sleepover almost every weekend, so consuming hot dogs, pizza, cake, pancakes, toast, etc. and I notice that she is getting, not quite pimples, but more open sore like markings on her face and arms (DH, I'm thinking). Plus she has been getting an eczema like rash around her mouth here and there - not necessarily if she had gluten but with foods that she normally is okay with.  I rarely have to bring my kids to the dr. I'm thinking of insisting on some bloodwork just to see if there is something I have look into. We are gluten free at home so she isn't getting constant exposure and I wonder if this is a sign that gluten is a problem for her?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

As a mother I would say you better have it checked!  If you test for celiac it might be better to have a few gluten items at the house for her to snack on to prepare for testing.  I would do both blood tests and have a dermatologist check the rash.

 

Dee

janpell Apprentice

I guess so. I will bring her in to address the sores on her arms along with prolonged stomach aches and I will up the gluten for the next couple of weeks.

Cara in Boston Enthusiast

She has symptoms, so she should be checked.

 

First degree relatives of people diagnosed with Celiac Disease should be tested every three years - regardless of symptoms - and sooner if symptoms present.  

 

My "regular" kid gets tested every couple of years, but every I admit, I tend to think "CELIAC!" every time he has a bad day . . . he is getting tired of it.

janpell Apprentice

I have never been tested for Celiac because I didn't present classicly. I went gluten free years ago because my other autoimmune conditions weren't being helped with medication so I tried alternative therapy and wow, the diet change changed my life and I will never go back to eating to the traditional low fat, high grain diet again and we ate healthy then.

My problem is the doctor doesn't want to test her for Celiac. He says the stomach aches are from constipation and we got a prescription to address that. We eat properly - plenty of veg, only 1.5 fruit per day but definitely 4-5 servings of veg a day which is pretty high. She drinks water regularly. He hasn't seen the sores on her yet so I should get her in before they heal. Not sure exactly how DH presents itself because hers are individual dots which never appeared as pimples or anything but just like open sores. Part of me thinks bug bites but it's winter and no one else in the family has them. She has 7 on her forehead (between her eyes and just above) and 10 on her right arm. They are all concentrated in the same area. DH looks more like a rash to me but she gets that occasionally encircling her mouth which disappears the next day if we put zinc cream on it the night before.

A couple of other things I have noticed are her paper thin finger nails. I trimmed them yesterday and they seem to be peeling off in layers at the top. She has very fine, thin,dry hair almost like she is malnourished I find. It comes out quite easily too (for a 7 yr old, anyways). No one else in the family presents like this and we all eat the same diet except she gets gluten still but not at home but weekends at friends homes. I guess I just buy some gluten products and get her started for a challenge.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,345
    • Most Online (within 30 mins)
      7,748

    Louise Sullivan
    Newest Member
    Louise Sullivan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...