Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questioning My Daughter.


janpell

Recommended Posts

janpell Apprentice

I have gluten intolerance as do my two boys. I didn't think my daughter was affected by it so I let her consume it when she goes out places, which is often enough. I notice lately she is getting weird behaviour afterwards, some sores on face and arms, rash around her mouth (almost like a beard), has many stomach aches. I brought her to the doctor for the stomach pains and he assured me it was constipation even though she has 1 or 2 BM a day and it is usually typical in texture and not hard. At times I notice there is even some blood stains on her underwear (at the back end). She is 7 years old. She has been to a party or sleepover almost every weekend, so consuming hot dogs, pizza, cake, pancakes, toast, etc. and I notice that she is getting, not quite pimples, but more open sore like markings on her face and arms (DH, I'm thinking). Plus she has been getting an eczema like rash around her mouth here and there - not necessarily if she had gluten but with foods that she normally is okay with.  I rarely have to bring my kids to the dr. I'm thinking of insisting on some bloodwork just to see if there is something I have look into. We are gluten free at home so she isn't getting constant exposure and I wonder if this is a sign that gluten is a problem for her?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

As a mother I would say you better have it checked!  If you test for celiac it might be better to have a few gluten items at the house for her to snack on to prepare for testing.  I would do both blood tests and have a dermatologist check the rash.

 

Dee

janpell Apprentice

I guess so. I will bring her in to address the sores on her arms along with prolonged stomach aches and I will up the gluten for the next couple of weeks.

Cara in Boston Enthusiast

She has symptoms, so she should be checked.

 

First degree relatives of people diagnosed with Celiac Disease should be tested every three years - regardless of symptoms - and sooner if symptoms present.  

 

My "regular" kid gets tested every couple of years, but every I admit, I tend to think "CELIAC!" every time he has a bad day . . . he is getting tired of it.

janpell Apprentice

I have never been tested for Celiac because I didn't present classicly. I went gluten free years ago because my other autoimmune conditions weren't being helped with medication so I tried alternative therapy and wow, the diet change changed my life and I will never go back to eating to the traditional low fat, high grain diet again and we ate healthy then.

My problem is the doctor doesn't want to test her for Celiac. He says the stomach aches are from constipation and we got a prescription to address that. We eat properly - plenty of veg, only 1.5 fruit per day but definitely 4-5 servings of veg a day which is pretty high. She drinks water regularly. He hasn't seen the sores on her yet so I should get her in before they heal. Not sure exactly how DH presents itself because hers are individual dots which never appeared as pimples or anything but just like open sores. Part of me thinks bug bites but it's winter and no one else in the family has them. She has 7 on her forehead (between her eyes and just above) and 10 on her right arm. They are all concentrated in the same area. DH looks more like a rash to me but she gets that occasionally encircling her mouth which disappears the next day if we put zinc cream on it the night before.

A couple of other things I have noticed are her paper thin finger nails. I trimmed them yesterday and they seem to be peeling off in layers at the top. She has very fine, thin,dry hair almost like she is malnourished I find. It comes out quite easily too (for a 7 yr old, anyways). No one else in the family presents like this and we all eat the same diet except she gets gluten still but not at home but weekends at friends homes. I guess I just buy some gluten products and get her started for a challenge.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,331
    • Most Online (within 30 mins)
      7,748

    TamSta214
    Newest Member
    TamSta214
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • somethinglikeolivia
      Responding to both of your replies: thank you so much!! That makes a lot of sense and helps me feel better about it - I really appreciate the clarification and recommendations. You guys have been very helpful and this site is a gift. Thanks again! 
    • trents
      I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over it and don't make trouble where there is none. As far a what you communicate with your physicians, just tell them what you know. Strongly positive antibody tests, negative biopsy, positive symptoms when consuming gluten with clearing of symptoms when gluten free.  
    • trents
      Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference in symptoms between when you were off gluten and when you were consuming it.   
    • somethinglikeolivia
      Okay, that makes sense - so based off of the 90% odds that it is positive, it’s worth switching to fully gluten-free? How strict do I need to be with cross-contamination, handling, etc. Is it something that can go by feel, for instance if I feel okay making my family sandwiches and handling the bread as opposed to eating it, or is it something that is causing silent damage even if I feel fine? Also, do I make it clear to my rheumatologist and other medical providers that I am celiac? Or will they veto that due to negative endoscopy? Thanks again for the help!
    • Scott Adams
      If you look at the article that I shared you will notice that "The test is estimated to have a sensitivity of approximately 90%, which means that it correctly identifies 90% of people with celiac disease. It also has a high specificity of around 95%, which means that it correctly identifies 95% of people who do not have celiac disease," so your results indicate that you very likely have celiac disease, especially if you also have symptoms while eating gluten that go away when you stop eating it (although many celiacs don't have obvious symptoms).
×
×
  • Create New...