Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unfamiliar Test- Help Interpreting Them


Brit1612

Recommended Posts

Brit1612 Apprentice

I just called to ask about my son's bloodwork from last Monday.  I was so anxious to see if any of his celiac levels would come back abnormal this time.....they did not.  They were negative (even the ttg igg that was once positive).  

 

The nurse basically said that the Dr would go over everything when I came in for our 3 month check up and that everything was "normal, or she would have called".  I had to bug her a little just to get her to share some of the results with me.  Once I got off the phone I realized that there were a couple I forgot to ask about!

 

But there were two test that I am really not familiar with, and I don't know the reference ranges....

 

prealbumin - 12.6 (I know this has to do with malnourishment, but I don't know what "normal" should be for a 2 year old.  The data that I have found shows different ranges, some of which put him "low")

 

Diphtheria/Tetanus Ab - .09 (I believe this test shows if his vaccines have worked properly?  The nurse didn't tell me the range for this, but said it was fine.  Of course, I googled it and everything I can find shows normal being >.15.  Which would make him low on this as well......)

 

total IGE - 29.2 (anyone know what normal should be?)

 

The immunologist ordered these test to "get a better picture of how his immune system was working and just how well he was doing in general".  Anyone have any insight on these test, or how they may or may not be related to celiac disease???  His IGA was also low again, but slightly higher than last check.

 

Thanks again!  Sorry for the many questions!  I hate that they expect you to wait 3 months before getting the results or having a chance to ask questions!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Brit1612 Apprentice

Nobody has any insight?  I still can't get the dr office to call me back....

RMJ Mentor

IgE is related to allergies, not celiac. Here is a page with reference ranges. Be sure to read the part on how to interpret them.

Open Original Shared Link

nvsmom Community Regular

I don't know much about those tests, besides what RMJ said and what I could google.

Brit1612 Apprentice

Thanks y'all.  Sorry for so many questions, I just worry that we are somehow missing something.  They finally did get back to me about the results, but the nurse really didn't know anything either.  His tetanus result was in range according to their standards.  But his prealbumin was low (12.8 with a range of 18-45), not sure how significant that is.  

 

They also told me that his BUN level on his metabolic panel was high 47 (range 6- 25).  She only said, "if he was sick, it could have affected the results or he could have been dehydrated", and really seemed to not know anything else about what it meant.  I don't see why he would be dehydrated and he had a bit of a cough, but I'm not sure if you would count that as being sick.....

 

We go for a sweat test tomorrow.  Although it is really just a formality, I am nervous about it because of the serious nature of CF.  The immunologist was surprised that no one had made him have one before, but does not believe that is the problem.  Wouldn't he be sick often if he had cystic fibrosis???

nvsmom Community Regular

HUGS

Good luck with that test.  It's nerve wracking to check for things like that even when you are pretty sure it won't be positive... Hang in there.

Brit1612 Apprentice

Ya, I agree, it is.  Today I was reading something about celiac can cause a false positive....."Oh great!!!"  Thanks for your support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.