Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Food Intolerances Returning With Gluten Challenge?


dopaminegirl

Recommended Posts

dopaminegirl Apprentice

One of the problems that first sent me in search of a diagnosis was some pretty severe stomach cramping that I finally identified as an intolerance to the allium family (onions, garlic, etc.).

It was hard cutting them out, but we did and some (but not all) of my pain went away. 

 

after about 10 months gluten free (because it made me feel better, not because of any diagnosis) I was feeling pretty amazing, so I decided to test onions again. Ate something with onions in it and then spent the next three hours waiting for the pain to hit, but nothing happened. Huzzah! I could eat onions again.

 

Most of my symptoms that originally sent me to the doctor are gone, but not all of them, so I decided to go back to the doctor. A few back and forths and we decided that I should do a gluten challenge so that I could get tested for celiac disease. I've hypothesized that the reason for my low level of continued symptoms could be due to incomplete adherence to the gluten free diet, and I wanted to know if there was a clinical reason for me to start being more stringent about cross contamination. 

 

I started a 6 week gluten challenge. I had some immediate symptoms that calmed down a bit and then after about 4 weeks, the stomach issues came back with a vengeance. Five weeks in, my onion intolerance came back! Does this sound familiar to anyone? Does gluten exposure trigger other intolerances in you that are otherwise dormant? 

 

I hope it doesn't take another 10 months for the onion issue to resolve, but I fear for the worst. 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

Damage to the villi can absolutely cause a domino effect.  The most notable and prevalent is lactose intolerance, because you need healthy villi to properly digest lactose.  Other things can fall into that category too, especially if you were already prone to issues with certain foods in your previous state.  Even more reason to be 100% strictly gluten-free to heal up once you are done with the gluten challenge.  Hopefully the damage won't be as bad this time and it won't take as long for the onion issue to go away, but you just won't know until it happens.

dopaminegirl Apprentice

Thanks Laura

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748

    Chels22
    Newest Member
    Chels22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...