Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Gluten Reaction And Weird Vision Issues?

miles wales

Recommended Posts

miles wales Newbie
miles wales
Posted

     So about 2 years ago my twin daughters (non genetic) were diagnosed with Celiac disease. I thought that it would be a lot easier if I went gluten free along with them to avoid cross contamination and just because it made me feel like I had a more active roll in the whole thing. A lot of stuff has changed for me over time that I think might indicate that I have some sort of gluten sensitivity so I thought I would run it by you guys to see what you thought.

 

     First off the changes have not been huge. Some of it is hard to quantify and might be related to other stuff. For example I seem to get colds a lot less and for a shorter duration. Also my depression seems to have decreased and I have less stomach issues and less joint pain. One clear change is my eyes have changed color. It's as if the brown part you saw before turned transparent to reveal a grey/hazel color.
 
     ....and then this happened....Yesterday I ate some potatoes that were cooked in the same dish as a (gluten containing) tofurky. Later that night I went out in the dark and there was a big white spot in the vision of my right eye. It was like I had been looking at a bright light but it didn't really go away. I also felt a little sick. this morning I woke up and felt very sick and my vision has been cloudy all day. this afternoon I was feeling much better and when I went out in the sun I saw quite a few "floaters" in my eyes. 
 
     So I guess what I would like to know is if any of this means anything. (I haven't heard a lot about gluten's effects on the eyes) or if it is more likely psychosomatic or related to just not eating gluten for so long. 
thanks.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

That sounds a bit like a migraine which can be related to Celiac disease. So, your Celiac tests were negative when the kids were diagnosed? Its possible you have developed Celiac since then, however, the only way to know would be to eat gluten for an extended time and get tested.

miles wales Newbie
miles wales
Posted
  • Author

That sounds a bit like a migraine which can be related to Celiac disease. So, your Celiac tests were negative when the kids were diagnosed? Its possible you have developed Celiac since then, however, the only way to know would be to eat gluten for an extended time and get tested.

Thanks for the response! The migraine thing never crossed my mind. Also I was I never was tested for Celiac. 

kareng Grand Master
kareng
Posted

Thanks for the response! The migraine thing never crossed my mind. Also I was I never was tested for Celiac.

That's too bad. They are supposed to test all first degree relatives.

miles wales Newbie
miles wales
Posted
  • Author

That's too bad. They are supposed to test all first degree relatives.

Sorry if i was not clear. We are not genetically related. 

kareng Grand Master
kareng
Posted

Sorry if i was not clear. We are not genetically related.

Didn't notice that! Lol

It's still possible you have Celiac disease, too

miles wales Newbie
miles wales
Posted
  • Author

Didn't notice that! Lol

It's still possible you have Celiac disease, too

Thanks. You may be right. My main reason for posting is just because I am curious if there is a link between celiac and vision issues. Also the eye color thing is weird.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miles wales Newbie
miles wales
Posted
  • Author

oops. I should also mention I have Been working outside in hot weather so that could be the cause.

RMJ Mentor
RMJ
Posted

A sudden increase in floaters can indicate an eye problem, I would see an eye doctor.

ravenwoodglass Mentor
ravenwoodglass
Posted

My eyes also changed color. They went from a dark brown, to a startling light brown and then very soon after that to a green hazel. I have no idea if that is related at all to celiac although I was a young celiac at the time. However you should see an eye doctor to be on the safe side. There are times when changes in eye colour can be significant and an indication of a serious issue. Excess copper in somweones system is one example that comes to mind.

As far as the floaters go I used to get them constantly before diagnosis and haven't even had one now in years. I also get blurred vision when glutened.

mgrant7209 Newbie
mgrant7209
Posted

OMG! I didn't know anyone else had eye issues with celiac. My vision becomes really weird. The images become like a kalidescope - the colors stay what they really are, but the images break up into angular pieces that move around exactly like a kalidescope. Or, any lines actually in the image change direction: horizontal lines become vertical, and vertical lines become horizontal. My doctor suggested migraines, but I just don't think they are. I don't really even have pain with them. These events last anywhere from 1 minute to hours.

Akealey Newbie
Akealey
Posted

You need to see an eye Dr. to rule out anything serious! This could be anything from an ocular migraine to retinal detachment. I don't wish to alarm you but just to urge you to check this out. You want to keep those peepers healthy and strong!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,768
    • Most Online (within 30 mins)
      7,748
    deniserdh
    Newest Member
    deniserdh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Refractory or super sensitive?

      By knitty kitty · Posted

      @Levi, How are you doing?  Sorry I missed your posts.   How's your thyroid?  Did your Vitamin D stabilize?  Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D.  Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form.  Also, Thiamine is needed to active Vitamin D.   Hypothyroidism can be caused by Thiamine deficiency.  The thyroid is an organ that uses lots of thiamine.  sometimes thyroid deficiency can also cause hyperthyroidism, or swings between both hyper- and hypo-thyroidism. We need more Thiamine when we're sick with an infection (like Covid) or injured.  We need more Thiamine when we're physically active.  We need more Thiamine when we're emotionally stressed or worried.  Our brain uses the more Thiamine just thinking than our muscles do while running a marathon.  Thiamine is extremely important in fighting infections.  Covid patients and long haulers have found taking Thiamine has improved their survival rate and long term symptoms.   Consider taking a Thiamine supplement like Benfotiamine which has been scientifically shown to promote intestinal healing.  Damaged villi need thiamine to grow back.   Be sure to take a magnesium supplement, too.  Thiamine and magnesium make life sustaining enzymes together.  You also need magnesium to keep calcium in the bones.  The thyroid regulates calcium.  A wonky thyroid can lead to reduced bone density.   Remember the B vitamins all work together in concert so adding a B Complex to Benfotiamine and magnesium supplements and Vitamin C would be great in improving absorption of nutrients while we're dealing with celiac disease. Namaste
    • lizzie42
      Gluten free and oat free bars not sugary?

      By lizzie42 · Posted

      I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any ideas? 
    • knitty kitty
      Inflammation and Menier’s disease link?

      By knitty kitty · Posted

      Oh, @MagsM, Sorry you had that happen with Niacin.  500mg is the maximum amount of Niacin one should take.  Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time.  All the B vitamins work together in concert.  Niacin in doses at 500 mg or above have been used by doctors to lower triglycerides levels and raise HDL, the good cholesterol.  Pharmaceuticals to do the same thing are more expensive and thus more profitable for physicians. Has your doctor tested you for H. Pylori?  An infection by H. Pylori can be tested for by your doctor.  H. Pylori can cause low tTg IgA results, too.   I would hold off on the microbiome test for now.  Your microbiome is going to change when you go gluten free.  Your microbiome will change when you start taking Thiamine.  Thiamine supplementation influences which microbes grow in the intestines, encouraging beneficial bacteria and getting rid of the bad ones.  Thiamine in the form Benfothiamine promotes intestinal healing, too.  Adopting the Autoimmune Protocol Diet (by Dr. Sarah Ballantyne, a Celiac herself) after diagnosis will also change your microbiome.  This is the best diet to heal and recover, IMO.   If you're going to have more testing done for vitamin deficiencies, don't take vitamin supplements beforehand, otherwise the tests will measure the vitamin supplements in your bloodstream and give false results.  Same thing will happen if you take B vitamin shots.  The supplements you mentioned (Arterosil HP and Vascanox HP) are herbal support and do not contain all eight B vitamins.  There's no harm in taking them, but I prefer a B Complex that contains all the B vitamins in activated forms like Life Extension's Bioactive Complete B Complex.  All the B vitamins work together in concert.  Magnesium is important to supplement as thiamine and magnesium make life sustaining enzymes together.  Do not buy supplements containing Thiamine Mononitrate because it is not biologically active.  It is very hard for the body to utilize.  Most of it (70%) passes out unused.    Yes, my Meniere's disease has not returned.  I was deficient in Vitamin D.  I took high doses of Vitamin D 3 to correct the deficiency quickly.  I also took TTFD (tetrahydrofurfuryl disulfide) which is a form of thiamine different from Benfotiamine.  TTFD can cross the blood brain barrier without a carrier, so it can get into the brain very easily.  TTFD helps the Vagus nerve function.  The Vagus nerve regulates the ears and balance, and also the digestive system.  I like Allithiamine by Ecological Formulas.  I also like Thiamax by Objective Nutrients.  You should have improvements within a hour with TTFD.  TTFD is much stronger, so lower doses will give amazing benefits (50-200 mg).   I hope this helps give you some direction to take on your journey!
    • MagsM
      Inflammation and Menier’s disease link?

      By MagsM · Posted

      Thank you so much for this in depth analysis. I am currently taking Vit D3/K2 5000IU daily.i started taking a flushing Niacin but foolishly took a 500mg tab and nearly passed out! I have just ordered a gut microbiome genome test and it will be interesting to see what my current balance of microbes are. After I finish diagnosis I will definitely go gluten free. Diagnosis will inform exactly how strict I’ll need to be regarding cross contamination etc. my focus will be on healing the gut. I have also been focusing on the oral microbiome - cutting out FL and using more natural products as well as daily oil pulling. I read from some of your other forum entries about Benfothiamine and I’ll definitely order that. I’ll make sure my doc orders more detailed vitamin and mineral panel plus total IGA as well as the DGP-IGA and DGP-IGG tests. We will see if I can get the endoscopic biopsy done. Do you think I should request Vitamin B shots to get me started?  My daily vitamin protocol will likely be VitD/K2 5000IU, Benfothiamin 300x2, Niacin (flushing) 50mg working up to 300mg. I also take a EPA/DHA as well as some vascular support (Arterosil HP and Vascanox HP) as well as Magnesium at night. Which B complex brand do you like? I will see what the gut microbiome test comes back with. I’m sure they will try to sell me pre/probiotics and maybe some digestive enzymes. What are you thought on those? I’m curious if you managed to go into full remission from your Ménière’s disease? Thank you so much for your thoughtful insight. I know that building back up my gut health and immune health will help in so many ways as well as protecting me from many other major diseases as I go into my 60s and beyond. 
    • Scott Adams
      Any bad experience with King Arthur Gluten-free bread flour

      By Scott Adams · Posted

      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
×
×
  • Create New...