Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Gluten Reaction And Weird Vision Issues?


miles wales

Recommended Posts

miles wales Newbie

     So about 2 years ago my twin daughters (non genetic) were diagnosed with Celiac disease. I thought that it would be a lot easier if I went gluten free along with them to avoid cross contamination and just because it made me feel like I had a more active roll in the whole thing. A lot of stuff has changed for me over time that I think might indicate that I have some sort of gluten sensitivity so I thought I would run it by you guys to see what you thought.

 

     First off the changes have not been huge. Some of it is hard to quantify and might be related to other stuff. For example I seem to get colds a lot less and for a shorter duration. Also my depression seems to have decreased and I have less stomach issues and less joint pain. One clear change is my eyes have changed color. It's as if the brown part you saw before turned transparent to reveal a grey/hazel color.
 
     ....and then this happened....Yesterday I ate some potatoes that were cooked in the same dish as a (gluten containing) tofurky. Later that night I went out in the dark and there was a big white spot in the vision of my right eye. It was like I had been looking at a bright light but it didn't really go away. I also felt a little sick. this morning I woke up and felt very sick and my vision has been cloudy all day. this afternoon I was feeling much better and when I went out in the sun I saw quite a few "floaters" in my eyes. 
 
     So I guess what I would like to know is if any of this means anything. (I haven't heard a lot about gluten's effects on the eyes) or if it is more likely psychosomatic or related to just not eating gluten for so long. 
thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

That sounds a bit like a migraine which can be related to Celiac disease. So, your Celiac tests were negative when the kids were diagnosed? Its possible you have developed Celiac since then, however, the only way to know would be to eat gluten for an extended time and get tested.

miles wales Newbie

That sounds a bit like a migraine which can be related to Celiac disease. So, your Celiac tests were negative when the kids were diagnosed? Its possible you have developed Celiac since then, however, the only way to know would be to eat gluten for an extended time and get tested.

Thanks for the response! The migraine thing never crossed my mind. Also I was I never was tested for Celiac. 

kareng Grand Master

Thanks for the response! The migraine thing never crossed my mind. Also I was I never was tested for Celiac.

That's too bad. They are supposed to test all first degree relatives.

miles wales Newbie

That's too bad. They are supposed to test all first degree relatives.

Sorry if i was not clear. We are not genetically related. 

kareng Grand Master

Sorry if i was not clear. We are not genetically related.

Didn't notice that! Lol

It's still possible you have Celiac disease, too

miles wales Newbie

Didn't notice that! Lol

It's still possible you have Celiac disease, too

Thanks. You may be right. My main reason for posting is just because I am curious if there is a link between celiac and vision issues. Also the eye color thing is weird.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



miles wales Newbie

oops. I should also mention I have Been working outside in hot weather so that could be the cause.

RMJ Mentor

A sudden increase in floaters can indicate an eye problem, I would see an eye doctor.

ravenwoodglass Mentor

My eyes also changed color. They went from a dark brown, to a startling light brown and then very soon after that to a green hazel. I have no idea if that is related at all to celiac although I was a young celiac at the time. However you should see an eye doctor to be on the safe side. There are times when changes in eye colour can be significant and an indication of a serious issue. Excess copper in somweones system is one example that comes to mind.

As far as the floaters go I used to get them constantly before diagnosis and haven't even had one now in years. I also get blurred vision when glutened.

mgrant7209 Newbie

OMG! I didn't know anyone else had eye issues with celiac. My vision becomes really weird. The images become like a kalidescope - the colors stay what they really are, but the images break up into angular pieces that move around exactly like a kalidescope. Or, any lines actually in the image change direction: horizontal lines become vertical, and vertical lines become horizontal. My doctor suggested migraines, but I just don't think they are. I don't really even have pain with them. These events last anywhere from 1 minute to hours.

Akealey Newbie

You need to see an eye Dr. to rule out anything serious! This could be anything from an ocular migraine to retinal detachment. I don't wish to alarm you but just to urge you to check this out. You want to keep those peepers healthy and strong!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.