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Some times worse than others. No rhyme or reason. Sigh.

DandelionH

By DandelionH
in Coping with Celiac Disease

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DandelionH Apprentice
DandelionH
Posted

Nothin' to do at 3am but sit on the internet or curl on the bathroom floor, really. So here I am. Taking a break from crying and sweating after glutened by, I suspect, what got me last week too. Threw it all out etc. but am confused as to why I ate it for 3 days last week and felt like I was hit by a train, slept all day and had mild bloating and constipation but was ok. Then didn't for a few days just in case and had about half the quantity this week and am in AGONY.

It's happened before, too. One bit of the wrong thing- agony. Whole pieces of something else given to me before I was in the habit of asking what was in it rather than is it gluten-free (no, guys. Rye is not...) and barely a reaction at all...?

How long will this last? Should I abstain from things I was intolerant to after diagnosis for a while like dairy or would it take longer to redo that damage? I'm back to terrified now. Ow ow ow...

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bartfull Rising Star
bartfull
Posted

When I have been glutened I lost all the things I had gotten back. The first time I waited a few months before trying them (one at a time of course), and I was OK. The second time was recently and SO MUCH worse! I've lost everything and am still not better. So...it looks like I not only lost the corn and soy that I lost when I first went gluten-free, but now I think I've lost dairy too. (And who knows what else??!!) So I'm back to square one. The oh so boring and restricted (and seemingly everlasting) elimination diet. :angry:

DandelionH Apprentice
DandelionH
Posted
  • Author

When I have been glutened I lost all the things I had gotten back. The first time I waited a few months before trying them (one at a time of course), and I was OK. The second time was recently and SO MUCH worse! I've lost everything and am still not better. So...it looks like I not only lost the corn and soy that I lost when I first went gluten-free, but now I think I've lost dairy too. (And who knows what else??!!) So I'm back to square one. The oh so boring and restricted (and seemingly everlasting) elimination diet. :angry:

Ugh! Woah! Sorry to hear this. So glad this thread is here to make things far less confusing because I would never have realised this could happen and it definitely does. Bother.
Square one. But square 2 eventually comes and there is hope yet :) .

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