Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reoccurring Symptoms?

Nicki Raeleen

Recommended Posts

Nicki Raeleen Rookie
Nicki Raeleen
Posted

I'm 19 years old and I have been diagnosed for about 4 years now. Everything had been wonderful following the gluten free diet until 8 months ago. I began to get all of my GI symptoms back and new ones. My skin broke out in rashes, my skin around my lips are so chapped they bleed and my scalp is peeling. Nothing is my life style has changed. After numerous doctors, one came up with the idea that my body never stopped producing antibodies, therefore giving me these symptoms. I am now being put on immunosuppressants. This has really hurt me emotionally with how I look and physically.

does anyone have this? Or even ever heard of it? If so, is there advice you would give me. I'm a bit frighten for my health. ??

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Did the doctor run another celiac panel to see if you have elevated antibodies? If not, ask him to do so before you even consider immune suppressant drugs. They can have really nasty side effects and should only be considered as a last resort. (I know this after talking to my doctor about them. I have lupus and he would only consider prescribing them if my liver, kidneys or lungs were under attack and steroids didn't work to stop it.) Google the side effects and you'll see what I mean.

It is also possible that you've developed an intolerance to something else. Corn, soy, dairy, and nightshades are common culprits. An elimination diet, although restrictive and seemingly endless, is your friend. I'd much rather spend six months eating plain, bland foods than take dangerous drugs.

Nicki Raeleen Rookie
Nicki Raeleen
Posted
  • Author

This a new this doctor (my old one sucked) did a new full panel b4 and after my food log and my number are still really high.... My sister has chrons so I no how nasty these drugs can be. 

Unfortuanlly having an intolerance to something dose not really make your antibodie level rise. They will make others like neutrophil (witch are a type of white blood cell) but not tTg and IgG. 

bartfull Rising Star
bartfull
Posted

OK, so it's time to rethink what you've been eating. Maybe something you've been safely eating all along has now changed ingredients. It happens all the time. They may now include either a gluten grain or something that is cross-contaminated. I constantly preach that we must read every single label, every single time we buy something. I have bought two of the same item at once and the ingredients are different on one of them because they came from a different batch. (I know that's rare, but it did happen to me once with ice cream. The older container had no guar gum but the newer one did.Not that guar gum has gluten, but you see what I mean.)

Anyway, as I said, I often preach about label reading and yet even I have bought an old standby without reading the label when I was in a hurry. Shame on me.

And rethink your habits. Is there someone new in your life that may be unwittingly contaminating your food? Or a new love in your life whom you kiss before this person thoroughly brushes their teeth? Go to the newbie 101 thread in the coping section to see some of the other surprising ways one can get glutened.

It may sound like I'm grasping at straws here but I seriously doubt it would take three plus years for symptoms to crop up if your antibodies had never gone down.

Nicki Raeleen Rookie
Nicki Raeleen
Posted
  • Author

 I understand that, and I am doing a food log. But even my doctor agrees something out of the ordinary is going on. 

My doctor is prescribing them to me, my question was wither or not someone else was having this done. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,110
    • Most Online (within 30 mins)
      7,748
    JD Payton
    Newest Member
    JD Payton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • jenniber
      Celiac support is hard to find

      By jenniber · Posted

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      need help understanding testing result for Naked Nutrition Creatine please

      By RMJ · Posted

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.