Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible candidate? Symptoms/test results inside.


mcG900

Recommended Posts

mcG900 Newbie

Hello all,

Started seeing a GI and he has me scheduled for an upper endoscopy test in a few weeks.  I started seeing the GI because I started to get really bad gas and bloating after I ate certain foods, which sometimes would last all day and through the night until the next morning.  Never had any issues like this until the last year or two (I am 33).  I usually don't have any other symptoms like diarrhea or constipation, just really bad gas.  No one in my family has celiac disease.

I am trying to track which foods give me issues but it's not as easy as I thought.  For instance, beer doesn't give me an issue but if I have one Yuengling I will be in bad shape for 24 hours.  I had some pasta last night and was passing gas all through the night.

Probiotics, charcoal, and gas X were all tried but to no avail.  I did go for some initial blood work (complete metabolic panel), and there were a few results out of normal range:

  • glucose: 101 mg/dL (high)
  • total bilirubin: 1.4 mg/dL (high)
  • immuglobulin A (igA): 43 mg/dL (low) - since i am igA deficient, he sent me for a different blood test:
  • HLA DQ2: positive
  • HLA DQ8: negative

I haven't been back to discuss the HLA DQ2 or HLA DQ8 results yet, but just wanted to see if anyone on here has any insight.  I can share other test results, but I just listed those that were out of range.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CherylS Apprentice

Hi,

I'm no expert, but I do know about the HLA DQ2 and HLA DQ8 because I just got my results for those and have been trying to look for answers.  These tests are genetic markers for celiac disease.  If both were negative, your GI doc would have eliminated celiac disease as a potential cause of your problem.  Mine are opposite results, my HLA DQ8 is positive and the other negative.

Good luck with everything!

Avp Newbie
ALLELES DETECTED   DQ2.5 (HLA DQA1*05:DQB1*0201) and other non risk 
alleles.
CATEGORY NUMBER   4
DQ GENOTYPE   DQ2 heterozygous
INC RISK OVER GEN POP   10X
RELATIVE RISK   HIGH

 


Can either of you put any of this in layman's terms for me?

mommida Enthusiast

Layman's terms...  You have tested positive for the DQ2.  You have a gene commonly associated with Celiac.  You have not tested positive for Celiac, you just have the prewired body system to develop Celiac or DH.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

    2. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748

    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.