Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blew It On Thanksgiving

StClair

By StClair
in Coping with Celiac Disease

Recommended Posts

StClair Apprentice
StClair
Posted

I was wondering how long it takes others to recover after being hit by gluten.  I have been gluten free, to my knowledge, since I was diagnosed last April, but on Thanksgiving, for some inexplicable reason, I spaced out and had gravy on my turkey and mashed potatoes.  The flour kind of gravy.  About 30 min after ingesting it I felt a band of pain across my lower abdomen that lasted a few hours before subsiding.  The next day I had the kind of lower digestive tract problems you might expect (d), and ever since I have had the same crushing fatigue that I remember from when I was first diagnosed.  Once again the the sick aching in my arms and legs.  Sorry for the whine!  I know that others do have far worse symptoms.  Any advice or encouragement about how long this will continue much appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bread or alive Newbie
bread or alive
Posted

Hi St. Clair,

I am only recently diagnosed (approx 5 weeks ago) and was very careful over Thanksgiving.  I made several dishes for Thanksgiving with my friends (and they were the first things to be eaten! - that's not intended to be boastful but meant to be encouraging for all the newly diagnosed people who feel they are missing out, especially during the holidays).  The next day was Thanksgiving at my relatives' home.  I was burned-out from cooking the day before (and I honestly thought I'd be bringing back pans of gluten-free leftovers that I could take with me to the relatives' dinner) so I just took wine and gluten-free rolls.  My cousin heated the rolls with the gluten rolls and dumped them all in one bread basket.  I didn't say anything because it was too late and I already wasn't going to be eating anything except roast turkey and mashed potatoes.  So, I dusted off a roll (I really thought that would do the trick) and ate.  About five hours later, I reacted.  My first symptom is intense itching (feels like it's coming from the bone) and abdominal pain. And it wasn't until Monday, two days ago, that I felt my system normalize.  My joints feel crippled, my skin hurts, the bones in my right leg constantly ache, I get migraines that don't respond to migraine medication and fatigue.  Lots of fatigue.  I empathize with you but the only advice I know of is to drink lots of water to try to help your system flush out the gluten and that may not even be accurate...maybe someone who has had more experience can help advise us!

icelandgirl Proficient
icelandgirl
Posted

The last time I was glutened  it took 3 weeks to feel back to normal with the 1st week being the worst...like having the worst flu ever and constant bathroom trips, etc.  That was about 6 months ago.  

I just got hit again...this time I've no idea how or why?  The only thing I can think of is my 4 year old and preschool.  They do play doh and eat gluten...maybe I forgot to wash her hands right after class?  I don't know.  But I feel awful.  The D is back, the horrendous fatigue,  the headache, the full autoimmune nastiness...all are there.

I hope you feel better soon and hope I do too.

lmj623 Apprentice
lmj623
Posted

I got hit on thanksgiving too and it has been a little over a year since my last glutening. I think mostly I made it this long because I was less sensitive while pregnant, I had no stomach issues the whole time- it was amazing. 

I think what got me was some French onion dip oddly enough, I didn't confirm how it was made and assuming a packet with barley or something stupid in it, but damn it was good. 

Reading your post was comforting, glad I'm not the only one. I puked that night had the shakes and chills and felt hungover for 2 days. What's annoying is that I am still crazy bloated after about 10 am onward(feel like I am struggling to digest everything) and my muscle issues. All the awful knots I had a year ago are back in my neck and shoulders. I'm talking rock hard huge knots that even an intense deep tissue massage hasn't phased. Does anyone else have that???? I'm afraid I'm back into the vicious inflammation cycle. 

StClair Apprentice
StClair
Posted
  • Author

Thanks for the comraderie.  I still can't believe I made such an obvious mistake, but at least now I know what happens when I eat significant gluten.  I was curious.  By this time I'm still having the digestive issues, and I took a hit on the throat and stomach pain progress, but other symptoms are improving.  Next Thanksgiving, live and learn, no gluten for me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    5. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748
    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.