Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I still have celiac disease of the biopsies came back normal?

Lilbarista

Recommended Posts

Lilbarista Newbie
Lilbarista
Posted

A couple weeks ago I had the upper and lower scopes done. My gastroenterologist called me this morning telling me that everything looked fine. She told me that my blood work wasn't great because I have low ferritin and high b12. Is it possible to have celiacs even if the biopsies  came back normal?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

Did they run ay Celiac disease serology on you?  That would have been the typical first place to start.


As for the biopsy- Celiac isn't something that attacks the entire lining of the intestines, it's patchy at best so it is possible to miss it esp. if the Dr. didn't take enough biopsies to begin with. I would start with asking for a copy of the patho report and seeing how many samples were taken. 

Lilbarista Newbie
Lilbarista
Posted
  • Author
28 minutes ago, StephanieL said:

Did they run ay Celiac disease serology on you?  That would have been the typical first place to start.


As for the biopsy- Celiac isn't something that attacks the entire lining of the intestines, it's patchy at best so it is possible to miss it esp. if the Dr. didn't take enough biopsies to begin with. I would start with asking for a copy of the patho report and seeing how many samples were taken. 

I'm sure she did that first. I go in on the 7th to talk to her about my pain and what can be done. I'll ask for a copy of everything. 

Celiac Nutritionist Newbie
Celiac Nutritionist
Posted

They need to have taken at least 4-6 samples for accuracy.    Many GI don't know this yet and only take one or two.

Question both your Gastroenterologist and the pathologist to ensure that they are both familiar with Celiac disease.

 

To respond to your question about if its still possible... maybe yes.   If enough samples were not taken, it will not give you accurate results.

Also, they may not have shown "enough" damage yet to be "classified" as Celiac.

-When you get your reports back (always always take a copy home for your own file!)  check to see if they say anything like "mild Villus atrophy" or "non specific duodenities"

Hope that helps!

Kendra

 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,197
    • Most Online (within 30 mins)
      7,748
    Joanne01
    Newest Member
    Joanne01
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      Chances of being coeliac

      By trents · Posted

      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      Chances of being coeliac

      By JettaGirl · Posted

      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.