Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"Allergen free" not including gluten?!


MollyMG

Recommended Posts

MollyMG Newbie

I wrote to Allegro to ask which of their teas were gluten free and they wrote back to me that they were an entirely allergen free company. I wrote again to say I had seen oat straw in one of their teas which is not gluten free so she looked into it and then replied that their official statement is that they are allergen free but that that does not necessarily include gluten, she apologized for the previous mis-information. I urged them to change their "allergen free" stance but my bigger concern- is this common place? When we ask a company if they are gluten free how far do we have to go to make sure their response is accurate? Has anyone else heard of gluten not being included as an allergen? This company is also a subsidiary of Whole Foods I'm super shocked they would be so careless. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

The term " allergen free" doesn't mean much.  There is always someone allerigic to  an ingredient.  they may have meant the allergens that the US requires they list .  If that is the case, gluten isn't one.  They have to list " wheat".  Oat straw might technically be considered " wheat free".  

StephanieL Enthusiast

1) Oat's are not a gluten containing grain but often comes in cross contact with gluten.  They may use gluten free oat grass. I don't know.

2) Gluten is NOT considered one of the Top 8 allergens in the US.  Wheat would been to be listed, rye and barley (and oats that come into cross contact with gluten grains) do not need to be listed.

 

Gluten free is wheat free. Wheat free/allergy free/friendly is not necessarily gluten free. 

MollyMG Newbie

Thank you both, I knew that oats were not always gluten containing but I'm shocked that a company can make a blanket statement of "allergen free" and leave out such a big one. I am glad to learn this now I will know to go one step further when questioning a company as to what their specific allergens are.  

Celiac Nutritionist Newbie

Hey, Molly 

 

My recommendation is to always contact companies - so that is awesome that you have done so! Unfortunately it is pretty common for someone in the positions of replying back to customers to not know the answers correctly the first time and there for we need to push a little harder.    

If you can, try and choose products that have a certified gluten free label - it is usually a safer bet  (especially regarding teas - I have found all sorts of narly ingredients in teas you would never expect to be glutened on).

 

Celiac Nutritionist Newbie
39 minutes ago, StephanieL said:

1) Oat's are not a gluten containing grain but often comes in cross contact with gluten.  They may use gluten free oat grass. I don't know.

2) Gluten is NOT considered one of the Top 8 allergens in the US.  Wheat would been to be listed, rye and barley (and oats that come into cross contact with gluten grains) do not need to be listed.

 

Gluten free is wheat free. Wheat free/allergy free/friendly is not necessarily gluten free. 

A lot of people with Celiac still react and have symptoms after consuming even certified gluten free oats  (they still usually contain up to 20ppm of gluten - which is enough to trigger issues in some of us - myself including).     

 

StephanieL Enthusiast
10 minutes ago, Celiac Nutritionist said:

A lot of people with Celiac still react and have symptoms after consuming even certified gluten free oats  (they still usually contain up to 20ppm of gluten - which is enough to trigger issues in some of us - myself including).     

 

Yes. I am aware of that.  From a labeling perspective oats are not under the gluten umbrella.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
8 hours ago, Celiac Nutritionist said:

Oats grown anA lot of people with Celiac still react and have symptoms after consuming even certified gluten free oats  (they still usually contain up to 20ppm of gluten - which is enough to trigger issues in some of us - myself including).     

 

There have been studies that indicate that a few Celiacs may react to pure oats.  We have posted several on this site.   

and your warning that they contain " up to 20 ppm ", less than 20 ppm is considered gluten-free and safe for a Celiac.  Also, pure oats, grown and processed to be gluten-free , should have no more gluten than any other plant grown and processed to be gluten-free.  Now the mechanically sorted oats, like Cheerios and Quaker  gluten-free products, not  grown or harvested to be gluten-free - those have been showing some issues with gluten contamination. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748

    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.