Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"Allergen free" not including gluten?!


MollyMG

Recommended Posts

MollyMG Newbie

I wrote to Allegro to ask which of their teas were gluten free and they wrote back to me that they were an entirely allergen free company. I wrote again to say I had seen oat straw in one of their teas which is not gluten free so she looked into it and then replied that their official statement is that they are allergen free but that that does not necessarily include gluten, she apologized for the previous mis-information. I urged them to change their "allergen free" stance but my bigger concern- is this common place? When we ask a company if they are gluten free how far do we have to go to make sure their response is accurate? Has anyone else heard of gluten not being included as an allergen? This company is also a subsidiary of Whole Foods I'm super shocked they would be so careless. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

The term " allergen free" doesn't mean much.  There is always someone allerigic to  an ingredient.  they may have meant the allergens that the US requires they list .  If that is the case, gluten isn't one.  They have to list " wheat".  Oat straw might technically be considered " wheat free".  

StephanieL Enthusiast

1) Oat's are not a gluten containing grain but often comes in cross contact with gluten.  They may use gluten free oat grass. I don't know.

2) Gluten is NOT considered one of the Top 8 allergens in the US.  Wheat would been to be listed, rye and barley (and oats that come into cross contact with gluten grains) do not need to be listed.

 

Gluten free is wheat free. Wheat free/allergy free/friendly is not necessarily gluten free. 

MollyMG Newbie

Thank you both, I knew that oats were not always gluten containing but I'm shocked that a company can make a blanket statement of "allergen free" and leave out such a big one. I am glad to learn this now I will know to go one step further when questioning a company as to what their specific allergens are.  

Celiac Nutritionist Newbie

Hey, Molly 

 

My recommendation is to always contact companies - so that is awesome that you have done so! Unfortunately it is pretty common for someone in the positions of replying back to customers to not know the answers correctly the first time and there for we need to push a little harder.    

If you can, try and choose products that have a certified gluten free label - it is usually a safer bet  (especially regarding teas - I have found all sorts of narly ingredients in teas you would never expect to be glutened on).

 

Celiac Nutritionist Newbie
39 minutes ago, StephanieL said:

1) Oat's are not a gluten containing grain but often comes in cross contact with gluten.  They may use gluten free oat grass. I don't know.

2) Gluten is NOT considered one of the Top 8 allergens in the US.  Wheat would been to be listed, rye and barley (and oats that come into cross contact with gluten grains) do not need to be listed.

 

Gluten free is wheat free. Wheat free/allergy free/friendly is not necessarily gluten free. 

A lot of people with Celiac still react and have symptoms after consuming even certified gluten free oats  (they still usually contain up to 20ppm of gluten - which is enough to trigger issues in some of us - myself including).     

 

StephanieL Enthusiast
10 minutes ago, Celiac Nutritionist said:

A lot of people with Celiac still react and have symptoms after consuming even certified gluten free oats  (they still usually contain up to 20ppm of gluten - which is enough to trigger issues in some of us - myself including).     

 

Yes. I am aware of that.  From a labeling perspective oats are not under the gluten umbrella.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
8 hours ago, Celiac Nutritionist said:

Oats grown anA lot of people with Celiac still react and have symptoms after consuming even certified gluten free oats  (they still usually contain up to 20ppm of gluten - which is enough to trigger issues in some of us - myself including).     

 

There have been studies that indicate that a few Celiacs may react to pure oats.  We have posted several on this site.   

and your warning that they contain " up to 20 ppm ", less than 20 ppm is considered gluten-free and safe for a Celiac.  Also, pure oats, grown and processed to be gluten-free , should have no more gluten than any other plant grown and processed to be gluten-free.  Now the mechanically sorted oats, like Cheerios and Quaker  gluten-free products, not  grown or harvested to be gluten-free - those have been showing some issues with gluten contamination. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,220
    • Most Online (within 30 mins)
      7,748

    Dye42
    Newest Member
    Dye42
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.