Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

HELP! Potenal gluten sensitivities or intolerance


Blueyedblond88

Recommended Posts

Blueyedblond88 Newbie

I'm a woman in Saskatoon Saskatchewan Canada. I suspect I have gluten sensitivities and/or intolerance but my general doctor won't believe me so before I go bring the issue up with my doctor yet again I am hoping to gather a food diary and track symptoms that I can show to my doctor so he will hopefully believe me. Any help and/or support is more then welcome and greatly appreciated. Also if anyone knows of any FREE android apps that might help with the tracking of food and symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SLLRunner Enthusiast

It's a good idea to keep a food diary and track how you feel after eating certain foods. I use the Sparkpeople tacking app, and used to use My Fitness Pal, but neither have an option to include notes with the foods you eat to track symptoms. 

However, your doctor not believing you means that he's already closed his mind to looking into why you feel badly. I suggest looking for another doctor, specifically one who has some knowledge in GI issues and food sensitivity.

Here's a free one I just downloaded to track my food and correlating symptoms.

Open Original Shared LinkOpen Original Shared Link

 

 

Blueyedblond88 Newbie

Thanks  I have tried to  talk to my doctor about the potential gluten sensitivities or intolerance but he just disregards  me and pass it off as lbs  because ibs can treated "masked" with meds. i My doctor is a pill pusher though and  I mostly have go in tell him what is wrong and he confirms it or not and I get given meds. He will not recognize that I might even potentially have gluten sensitivities or intolerance because he can't fix it with meds. my situation is a bit more complicated then just getting my doctor to believe me. I know my doctor will believe things if the "care home" I live in gets involved. I can't doing an elimination diet. Do the fact that I live in a " care home" that claims it is "resident derected care" when in fact the resident derected part is very minimal to nothing. the care home used to be a good fit for me. Before things changed for the worse. The care home provids basic food and will not let me or anyone do a different diet without a doctor saying it medically necessary. The care home will not even help me approach my doctor about the issue without me doing a food and symptom diary first so that there is   "proof" that my symptoms are  real and to see if the care home management desides there is a potential issues with my body and gluten. Even though by the care home management own admission they know nothing about gluten sensitivities. But that I have to follow protocol and have written record of my food consumption and symptoms before they will consider helping me at all. Even though I have symptoms 24/7 and have had For years. Even if I am diagnosed with gluten sensitivities I would most likely have to use what is left of my 315.00 dollars a month disability living benefit. After my cellphone, bus pass and personal care products are paid for to buy gluten free foods. If I was under the community living service delivery(clsd) mandate(laws and regulations regarding the treatment of people whose iq is 70 or less based on a standardized government issued test) that the government of Saskatchewan has and regulates this would get dealt with right a way with out me having to jump through hoops to get help.

SLLRunner Enthusiast

Do you have a advocate from the group home staff, or a family member or friend who can help advocate for you? 

I would start keeping your food diary for sure, if that is what it takes to get further medical consultation.

Blueyedblond88 Newbie

Sadly no support at this point in time.being very independent means that i got to jump through the hoops first.seeing as the care home  management and the doctor  are buddy buddy and the doctor basically doses what the care home management wants it could be awhile. ButI am working towards getting the blood test  it could take awhile though. I am also working on learning to live independently with minimal supports so that hopefully in about a year from now I can move out of the care home

kareng Grand Master

You live in a group home because of some health issue?  Maybe the health issue is tied to gluten?  I think there is a lot more to this basic question than it first appears.

Blueyedblond88 Newbie

No I live in a group home because when I moved in 7 years ago it was and still is at this point in time a the only place I could go that is a safer and better place. then the toxic environment that is living with my mother. I only get minimum care other then what I am not permitted to do by the group home policies and provincial laws.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,088
    • Most Online (within 30 mins)
      7,748

    Clare Durham
    Newest Member
    Clare Durham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.