Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food and Supplement Sensitivities


cashs mom

Recommended Posts

cashs mom Rookie

I'm certain that I have a gluten sensitivity.  I've been gluten free since May 2015.  For a  few months I was doing really well.  My sleep was great and all was good.  I had gone to a nutritionist for a number of years.  At first he really helped me but then something went off the rails and he was having me take a ton of supplements and I started having reactions to them and couldn't sleep at all.  I should have stopped going to him earlier but he had helped me so much for 7 or 8 years that I trusted him.  I'm at the point now that I can't take and OTC sleep stuff.  I can't take melatonin and am pretty much afraid to try too much stuff now.  I needed to do my yearly checkup and went to an internist who was recommended to me but I'm not sure he's really going to help me.  He seemed rather focussed on my hot flashes which I consider the least of my problems and the drug he gave me for them made me sleep even worse. 

I'm still gluten free and doing well with that, but I'm still having tons of sensitivities to food and supplements.  I'm just wondering if anyone else has experienced this and how they coped. 

 

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Cash's Mom,

It's possible the supplements he recommended are not gluten-free.  You may be able to find out by checking the maker's website, or emailing them.  The supplement industry in the USA is not well regulated, so it's a bit tricky to find good, safe products.  You could try searching the forum for brands people have found safe in the past.  But always check for yourself also.  Products can change ingredients sometimes.

cashs mom Rookie

Some of the ones he had me taking were not gluten free and I discontinued those last May.  I have been checking everything since then to make sure it is gluten free but still have sensitivities.   I had bloodwork done at my yearly exam, but it was basic and didn't show anything.  My chiropractor has been very good about working with me and helping me out.  I'm going to talk to him next week about doing more thyroid tests and cortisol tests.  I strongly suspect that cortisol is at the root of my sleep problems and may be causing other problems.

cyclinglady Grand Master

I am not a doctor, but I have had sleep issues and hot flashes (still do) which can be related to perimenopause and menopause (post) symptoms.  HRT was helpful for me.   The benefits outweighed any risks.   I also manage my Hashimoto's thyroiditis as well with hormone replacement.  Those hormone levels can be checked by your medical doctor.

It's been almost a year that you have been gluten free.  In theory you should be able to get the nutrients you need from a well-balanced diet.  I take no supplements now.  Tests showed no deficiencies after my first year of being gluten free.  

I would recommend only certified gluten free supplements if you and your medical doctor think that you have deficiencies (based on lab tests).    I think chiropractors should stick to what they were trained for.  My own medical doctor goes to one, so I am not against them, but he does not take medical advice when he goes in for an adjustment!  I would never go to one.  I have osteoporosis.  I shudder to think of getting a bone broken (as mine have crumbled from doing nothing in the past!)   That's just my opinion.     

cashs mom Rookie

I take only certified gluten free supplements.  And at 63, no doctor is going to prescribe HRT nor am I going to take it.  Hot flashes, to me, are a secondary problem and not worth the cancer risks that are present with HRT's.   

I have gone to a chiropractor for almost 20 years now.  He's also a certified nutritionist as are many chiropractors.   He has kept my back in line and helped me a lot.   I have never found a doctor that was much good at helping with nutrition.  They seem to mostly do tests and prescribe drugs and blurp platitudes like "eat well".

 

cyclinglady Grand Master

I am sorry that I was not able to help you.  I am definitely not a doctor.  I am 54 and was on and off HRT for over a decade, but autoimmune issues run in my family -- not cancer (though you never know).  

  I agree that medical doctors do not get much training when it comes to nutrition (though I think they are improving).    I laugh each time I see a poster with a huge helping of brown rice on the place in my GP's office.    I'm a diabetic and that rice (white or brown) would spike my blood sugar for sure!  

You went to your MD for an annual check-up.  Did he check your thyroid?  

I wish you well!  

 

GFinDC Veteran

Hi Cash's Mom,

It could be you are reacting to some4thing besides gluten.  The old standby treatment is an elimination diet.  They generally always work if it is a diet related issue.  Sometimes our bodies develop reactions to other foods.  Possibly related to the irritation of the gut lining over a long period of time.   Any of the top 8 food allergens are suspect, plus numerous others foods.  Most times a food intolerance can't be tested by doctors, and has to be identified by the elimination diet process.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.