Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Results From My Endo. And Colonos.

pixiegirl

Recommended Posts

pixiegirl Enthusiast
pixiegirl
Posted

A week ago I had both an endoscopy and colonoscopy. Immediately after the procedure I was told I had 6 small ulcers in my stomach and diverticulosis. I was told to take zantac (in the past zantac has given me more relief then prolosic or other belly drugs) and was given an Rx that is refillable many times.

Last night at 10 pm (I was sleeping on the couch) my doctor called me with results from the biopsies. I'm going to recall their office this morning to be sure I have all the info correct but I have the gist of it and I'm looking for comments, advice, etc.

She said I have gastroenteritis, which I guess means my insides are inflamed. I do not have h. plyori so that didn't cause the ulcers. She said the lining of my stomach and intestine is filled with cells associated with allergies (not sure what those are... would that be like Ige antibodies?) and this in itself is unusual. She said that also the fact that Zantac seems to work better for me instead of prilosic which is considered the stronger medicine is interesting because Zantac is slightly different then the other drugs in that it blocks histamine which of course is associated with allergy.

So... first we are going to run some basic blood work, yet again, cbc, blah blah. Then I guess some tests for parasites, etc. Then she is talking about having food allergy tests done.

I don't know much about food allergies, my daughter is severely allergic to peanuts/nuts. But I know there are different sort of tests... skin prick, rast, which is best? Has anyone paid for the York allergy tests you can order on your own? How reliable are they?

Anyhow that's the scoop so far... I know a lot of you all deal with multiple food allergies but for me this is a first and I'm a bit depressed by the thought that I will have more stuff I can't eat....

Susan

PS - she also said my biopsy for celiac was perfect, no damage so at least I'm doing pretty well with gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to MagsM's topic in Related Issues & Disorders
      26

      Inflammation and Menier’s disease link?

      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time.
    2. nataliallano
      - nataliallano replied to MagsM's topic in Related Issues & Disorders
      26

      Inflammation and Menier’s disease link?

      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.
    3. Zuma888
      - Zuma888 replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Hypothetical question about antibodies

      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    4. Scott Adams
      - Scott Adams replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Hypothetical question about antibodies

      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-...
    5. Betsy Crum
      - Betsy Crum replied to Betsy Crum's topic in Related Issues & Disorders
      4

      Chest pain from celiac

      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,235
    • Most Online (within 30 mins)
      7,748
    judycs
    Newest Member
    judycs
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Inflammation and Menier’s disease link?

      By trents · Posted

      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Inflammation and Menier’s disease link?

      By nataliallano · Posted

      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Betsy Crum
      Chest pain from celiac

      By Betsy Crum · Posted

      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
×
×
  • Create New...