Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Missing too much work


Nicoleilene

Recommended Posts

Nicoleilene Newbie

I found out I had celiac disease in February. I was having problems and took 4 months off work on fmla. So December til March. I'm back to work as a cna on light duty and part time. I've been gluten free since January and I'm still having problems with feeling shaky and light headed. There's times I can't even drive because I feel too out of it. I've had to call in a lot already because I either can't drive or I'm afraid to pass out at work. I'm so afraid of getting fired and I need money to pay my bills. Does anybody else have this problem? I've been to 3 different doctors about this and all they tell me is to sit down if I feel light headed. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ironictruth Proficient

EAT PROTEIN!  My globulin dipped a bit and my protein was at the lowest end of normal during my gluten challenge. Nothing shocking lab wise, but boy did I feel it. I literally had times when I felt I would pass out and ended up in the ER. I was also afraid to drive with my son. I also realized this was connected to hunger even though I felt I should not be hungry. I swear, three weeks ago I almost had a metabolic crisis for lunch and dinner when I spent the day with my boyfriend. He was literally racing to find a place to eat when we were out.

I started just loading salads up with chicken breast, salami, eggs, ham, for 3 weeks straight.  Eating protein bars, (my personal favs are bounce energy balls and "the gluten free bar" and eat often (warning, high protein can constipate you a bit so keep fiber in your diet). Take a b multi-vitamin but do not go overboard on it.

My protein is now mid range and the globulin is back to normal. My alkaline phosphate is a bit low. I no longer feel like I am going to pass out though and was able to tone down my diet.

Has all of your blood work been checked?

Nicoleilene Newbie

Yeah the only thing low was vitamin d. So I take multi vitamins. Maybe that is it. Work switched me to second shift so all I eat before work is bananas because I'm paranoid about getting a stomach ache if I eat anything else.

ironictruth Proficient

Plain chicken breast with that banana. Try it for a week. 

flutegal64 Newbie

It sounds like something else could be going on.  I would have hoped the doctor would run a blood test for other vitamin deficiencies?  A lot of people with Celiac are deficient in other vitamins. A lot of regular food is fortified with vitamins and most gluten free foods are not fortified with vitamins.  Also, your intestines are still healing probably so they may not be absorbing what they need to quite yet.

It could be other things besides Celiac.  Dizziness could be anything from throid, blood pressure, anemia, diabetes, etc... I'm not a doctor but it could be a lot of things. Go to another doctor until someone listens.  A lot of doctors figure if they wait long enough another symptom will appear to help them diagnose or they figure it will go away.  Medicine isn't clear cut a lot of the time.  If symptoms are vague it's tough for doctors to figure out.

I always keep a granola bar or a piece of fruit with me at all times... you can't always find gluten free food in a hurry.  And I know unexpected things happen so it's always good to have food on hand.  Protein is a good idea like someone said above.  Also sugar is a good thing for many people.  Charting how many calories you consume might be helpful too- with a change in diet you may not be getting the calories you used to.  But, really without medical advice it's tough to pinpoint what is making you dizzy.

SLLRunner Enthusiast
2 hours ago, flutegal64 said:

It sounds like something else could be going on.  I would have hoped the doctor would run a blood test for other vitamin deficiencies?  A lot of people with Celiac are deficient in other vitamins. A lot of regular food is fortified with vitamins and most gluten free foods are not fortified with vitamins.  Also, your intestines are still healing probably so they may not be absorbing what they need to quite yet.

It could be other things besides Celiac.  Dizziness could be anything from throid, blood pressure, anemia, diabetes, etc... I'm not a doctor but it could be a lot of things. Go to another doctor until someone listens.  A lot of doctors figure if they wait long enough another symptom will appear to help them diagnose or they figure it will go away.  Medicine isn't clear cut a lot of the time.  If symptoms are vague it's tough for doctors to figure out.

I always keep a granola bar or a piece of fruit with me at all times... you can't always find gluten free food in a hurry.  And I know unexpected things happen so it's always good to have food on hand.  Protein is a good idea like someone said above.  Also sugar is a good thing for many people.  Charting how many calories you consume might be helpful too- with a change in diet you may not be getting the calories you used to.  But, really without medical advice it's tough to pinpoint what is making you dizzy.

So well said. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrish42 replied to chrish42's topic in Doctors
      2

      Doctors and Celiac.com

    2. - Scott Adams replied to shirlane's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Is AG1 safe for Celiacs??

    3. - Scott Adams replied to chrish42's topic in Doctors
      2

      Doctors and Celiac.com

    4. - nataliallano replied to MagsM's topic in Related Issues & Disorders
      28

      Inflammation and Menier’s disease link?

    5. - Wheatwacked replied to Betsy Crum's topic in Related Issues & Disorders
      5

      Chest pain from celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,265
    • Most Online (within 30 mins)
      7,748

    dancerlv2
    Newest Member
    dancerlv2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • chrish42
      All I can say is this site is great!
    • Scott Adams
      From their website I see "organic barley leaf powder" as an ingredient. Keep in mind that the gluten is in the kernel, and not in the leaves. https://drinkag1.com/about-ag1/ingredients/ctr
    • Scott Adams
      Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before. 
    • nataliallano
      Thanks Scott I will definitely check my vitamins and minerals to see what I am missing so then I can supplement. I was very concern about my Meniers syntoms and i tryed to find some alive. Now im just realizing that my celiac is provably the root cause of my Meniers none of the 12 doctors I saw told me anything about this.  This web site is so helpful, thanks to people like you we can get answers. 
    • Wheatwacked
      Vitamin D deficiency can contribute to rib pain. Chest pain stemming from the ribs ccould be costochondritis, which involves inflammation of the cartilage connecting the ribs to the breastbone. This pain can range from mild to severe, potentially mimicking heart attack symptoms, and is often worsened by breathing or movement. Other potential causes include muscle strain, rib fractures, or even referred pain from other conditions.  It will also help to chose vegetables low in omega 6.
×
×
  • Create New...