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Missing too much work

Nicoleilene

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Nicoleilene Newbie
Nicoleilene
Posted

I found out I had celiac disease in February. I was having problems and took 4 months off work on fmla. So December til March. I'm back to work as a cna on light duty and part time. I've been gluten free since January and I'm still having problems with feeling shaky and light headed. There's times I can't even drive because I feel too out of it. I've had to call in a lot already because I either can't drive or I'm afraid to pass out at work. I'm so afraid of getting fired and I need money to pay my bills. Does anybody else have this problem? I've been to 3 different doctors about this and all they tell me is to sit down if I feel light headed. 

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ironictruth Proficient
ironictruth
Posted

EAT PROTEIN!  My globulin dipped a bit and my protein was at the lowest end of normal during my gluten challenge. Nothing shocking lab wise, but boy did I feel it. I literally had times when I felt I would pass out and ended up in the ER. I was also afraid to drive with my son. I also realized this was connected to hunger even though I felt I should not be hungry. I swear, three weeks ago I almost had a metabolic crisis for lunch and dinner when I spent the day with my boyfriend. He was literally racing to find a place to eat when we were out.

I started just loading salads up with chicken breast, salami, eggs, ham, for 3 weeks straight.  Eating protein bars, (my personal favs are bounce energy balls and "the gluten free bar" and eat often (warning, high protein can constipate you a bit so keep fiber in your diet). Take a b multi-vitamin but do not go overboard on it.

My protein is now mid range and the globulin is back to normal. My alkaline phosphate is a bit low. I no longer feel like I am going to pass out though and was able to tone down my diet.

Has all of your blood work been checked?

Nicoleilene Newbie
Nicoleilene
Posted
  • Author

Yeah the only thing low was vitamin d. So I take multi vitamins. Maybe that is it. Work switched me to second shift so all I eat before work is bananas because I'm paranoid about getting a stomach ache if I eat anything else.

ironictruth Proficient
ironictruth
Posted

Plain chicken breast with that banana. Try it for a week. 

flutegal64 Newbie
flutegal64
Posted

It sounds like something else could be going on.  I would have hoped the doctor would run a blood test for other vitamin deficiencies?  A lot of people with Celiac are deficient in other vitamins. A lot of regular food is fortified with vitamins and most gluten free foods are not fortified with vitamins.  Also, your intestines are still healing probably so they may not be absorbing what they need to quite yet.

It could be other things besides Celiac.  Dizziness could be anything from throid, blood pressure, anemia, diabetes, etc... I'm not a doctor but it could be a lot of things. Go to another doctor until someone listens.  A lot of doctors figure if they wait long enough another symptom will appear to help them diagnose or they figure it will go away.  Medicine isn't clear cut a lot of the time.  If symptoms are vague it's tough for doctors to figure out.

I always keep a granola bar or a piece of fruit with me at all times... you can't always find gluten free food in a hurry.  And I know unexpected things happen so it's always good to have food on hand.  Protein is a good idea like someone said above.  Also sugar is a good thing for many people.  Charting how many calories you consume might be helpful too- with a change in diet you may not be getting the calories you used to.  But, really without medical advice it's tough to pinpoint what is making you dizzy.

SLLRunner Enthusiast
SLLRunner
Posted
2 hours ago, flutegal64 said:

It sounds like something else could be going on.  I would have hoped the doctor would run a blood test for other vitamin deficiencies?  A lot of people with Celiac are deficient in other vitamins. A lot of regular food is fortified with vitamins and most gluten free foods are not fortified with vitamins.  Also, your intestines are still healing probably so they may not be absorbing what they need to quite yet.

It could be other things besides Celiac.  Dizziness could be anything from throid, blood pressure, anemia, diabetes, etc... I'm not a doctor but it could be a lot of things. Go to another doctor until someone listens.  A lot of doctors figure if they wait long enough another symptom will appear to help them diagnose or they figure it will go away.  Medicine isn't clear cut a lot of the time.  If symptoms are vague it's tough for doctors to figure out.

I always keep a granola bar or a piece of fruit with me at all times... you can't always find gluten free food in a hurry.  And I know unexpected things happen so it's always good to have food on hand.  Protein is a good idea like someone said above.  Also sugar is a good thing for many people.  Charting how many calories you consume might be helpful too- with a change in diet you may not be getting the calories you used to.  But, really without medical advice it's tough to pinpoint what is making you dizzy.

So well said. :)

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    • AlwaysLearning
      Gluten related ??

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      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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