Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Celiac Mom


Marcindy3

Recommended Posts

Marcindy3 Newbie

My ten yr old daughter was dx approx 2 weeks ago w/ Celiac via blood test & biopsy. She wouldn't stop vomiting. She was in two different hospitals & it was a pretty trying time. Once we came home, we decided we'd all go gluten free. She did great for one week & then the vomiting began again. Back to the dr & they said no dairy but lactose free would be ok. Well apparently lactose free isn't ok because the vomiting has continued. This morning she vomited up even Popsicles. She's kept dry toast down for 2 hours now. Every minute I'm holding my breath praying she's not running to vomit. She can't keep any anti-nausea meds down. Any suggestions? I'm feeling very overwhelmed. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cjmm2002 Newbie

I have no answers, but I wanted to let you know that I am thinking about your daughter and you.

 

Centime Newbie

Did you replace your open jars of peanut butter? jelly?  Anything that might have residual crumbs?  Are you using the same old toaster? Did you buy a new colander for pasta? All things you don't always think about, but she might have been accidentally eating gluten.  I'm sorry for the diagnosis, my daughter was diagnosed at 10 as well, so I know how hard it is.

MissyBB Explorer

I'm sorry you are going through this. It must be so hard. Is it possible she is getting cross contaminated at home? if you are using old bowls, plastic bowls, cups, anything that was used when you all consume gluten it sometimes sticks in the small scratches etc of cookware or mixing bowls. Also, wooden spoons, the cutting board, toaster etc.

Could you hit the dollar store and purchase a few basic supplies to ONLY use for the family for gluten-free prep and see if her symptoms disappear? If it works you will know she is getting cross-contaminated. Also, is she sharing anything at school?

Marcindy3 Newbie

Thank you all so much. She ended up being admitted to the hospital again d/t celiac & gastroparesis plus she was dehydrated. She still vomits daily but it's less frequent. We're just praying for the day when she doesn't at all. The whole house has went gluten free & we've gotten rid of everything. The Dr said she will continue to vomit for awhile. Did not seem concerned about this. We're just praying it will end soon. 

frieze Community Regular

is she on a PPI?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,215
    • Most Online (within 30 mins)
      7,748

    Demery
    Newest Member
    Demery
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.