Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Terrible pains in my stomach


Moff

Recommended Posts

Moff Newbie

I have been on a gluten free diet for over 3 months but I still have terrible pains in my stomach every night my doctor has given me so many different pills to help. he has taken blood from me to see if I am allergic to any thing else. I am waiting to see a dietician. I was wondering if anybody else with coeliac has had these pains it affects my sleeping  so much as I am up 3 or 4 times a night I would appreciate any suggestions just to help me have a good nights sleep.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

I used to get stomach pain when I wore pants with an elastic waist.  

cristiana Veteran

Hi Moff and welcome to the forum.

I wonder if you are eating oats?

In the UK it is often recommended that newly diagnosed coeliacs keep off all oatmeal for about six months to give a badly damaged gut time to heal.   Then oats can be gradually reintroduced, but remember, only gluten free ones known as pure oats (oats are naturally gluten free but get exposed to gluten in the manufacturing process).    That said, some coeliacs will never be able to eat even pure oats because they react to the avenine which is the naturally occuring protein in oats. Unfortunately I appear to be one of those coeliacs!  If I eat any oats I get very bad stomach pain and bloating.

When I was first healing I also found lentils and peas gave me gut pain.  And soya based products.  Now I can eat all these, but you might want to think about whether these might be being affecting you.

Milk might also be causing you some pain.

Open Original Shared Link

Bloating can cause terrific pain - don't underestimate how much.  I have had terrific pain in my lower left quadrant for many months and it has taken me a long time to realise that I still can't drink too much milk as it causes bloating and pain there.  

 

 

 

 

 

Moff Newbie

Hi Cristina thank you very much for all that information I will take it all on board I have an appointment with my GP as he has taken blood samples from me 2 weeks ago to find if I am allergic to anything else, I will definitely take on board what you said about the oats once again thank you

cristiana Veteran

A pleasure, Moff.  It sounds like you are in good hands - it took several weeks for my pain to settle but while you are waiting for your other results if you try avoiding oats and milk that should help initially.      By the way you are spelling coeliac (i.e. with an 'o') I am thinking you may be in the UK. If so I would think of joining Coeliac UK if you haven't already - they will send you a Food Directory or if you prefer you can get a special app that will help you identify 'safe' foods to buy in the supermarket.  They also produce informative magazines, I think quarterly.   

Do come back to us if you need any more help.

flowerqueen Community Regular
On 20 April 2016 at 9:58 PM, Moff said:

I have been on a gluten free diet for over 3 months but I still have terrible pains in my stomach every night my doctor has given me so many different pills to help. he has taken blood from me to see if I am allergic to any thing else. I am waiting to see a dietician. I was wondering if anybody else with coeliac has had these pains it affects my sleeping  so much as I am up 3 or 4 times a night I would appreciate any suggestions just to help me have a good nights sleep.

Hi Moff, 

'Three months in, is still early days, your body may just be withdrawing from gluten (which can cause symptoms) or you may be intolerant to something else.

I have been having stomach cramps, not just at night though, and an urgency to rush to the bathroom after eating. I have been gluten free for about 4 years now, and I have started to react badly to other foods. My latest have been soya and xanthan gum, I'm still playing detective to see if there are other food intolerances.  Hope you get somewhere with your dietitian, let us know what they say.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,520
    • Most Online (within 30 mins)
      7,748

    Tara M.
    Newest Member
    Tara M.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.