Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Terrible pains in my stomach


Moff

Recommended Posts

Moff Newbie

I have been on a gluten free diet for over 3 months but I still have terrible pains in my stomach every night my doctor has given me so many different pills to help. he has taken blood from me to see if I am allergic to any thing else. I am waiting to see a dietician. I was wondering if anybody else with coeliac has had these pains it affects my sleeping  so much as I am up 3 or 4 times a night I would appreciate any suggestions just to help me have a good nights sleep.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

I used to get stomach pain when I wore pants with an elastic waist.  

cristiana Veteran

Hi Moff and welcome to the forum.

I wonder if you are eating oats?

In the UK it is often recommended that newly diagnosed coeliacs keep off all oatmeal for about six months to give a badly damaged gut time to heal.   Then oats can be gradually reintroduced, but remember, only gluten free ones known as pure oats (oats are naturally gluten free but get exposed to gluten in the manufacturing process).    That said, some coeliacs will never be able to eat even pure oats because they react to the avenine which is the naturally occuring protein in oats. Unfortunately I appear to be one of those coeliacs!  If I eat any oats I get very bad stomach pain and bloating.

When I was first healing I also found lentils and peas gave me gut pain.  And soya based products.  Now I can eat all these, but you might want to think about whether these might be being affecting you.

Milk might also be causing you some pain.

Open Original Shared Link

Bloating can cause terrific pain - don't underestimate how much.  I have had terrific pain in my lower left quadrant for many months and it has taken me a long time to realise that I still can't drink too much milk as it causes bloating and pain there.  

 

 

 

 

 

Moff Newbie

Hi Cristina thank you very much for all that information I will take it all on board I have an appointment with my GP as he has taken blood samples from me 2 weeks ago to find if I am allergic to anything else, I will definitely take on board what you said about the oats once again thank you

cristiana Veteran

A pleasure, Moff.  It sounds like you are in good hands - it took several weeks for my pain to settle but while you are waiting for your other results if you try avoiding oats and milk that should help initially.      By the way you are spelling coeliac (i.e. with an 'o') I am thinking you may be in the UK. If so I would think of joining Coeliac UK if you haven't already - they will send you a Food Directory or if you prefer you can get a special app that will help you identify 'safe' foods to buy in the supermarket.  They also produce informative magazines, I think quarterly.   

Do come back to us if you need any more help.

flowerqueen Community Regular
On 20 April 2016 at 9:58 PM, Moff said:

I have been on a gluten free diet for over 3 months but I still have terrible pains in my stomach every night my doctor has given me so many different pills to help. he has taken blood from me to see if I am allergic to any thing else. I am waiting to see a dietician. I was wondering if anybody else with coeliac has had these pains it affects my sleeping  so much as I am up 3 or 4 times a night I would appreciate any suggestions just to help me have a good nights sleep.

Hi Moff, 

'Three months in, is still early days, your body may just be withdrawing from gluten (which can cause symptoms) or you may be intolerant to something else.

I have been having stomach cramps, not just at night though, and an urgency to rush to the bathroom after eating. I have been gluten free for about 4 years now, and I have started to react badly to other foods. My latest have been soya and xanthan gum, I'm still playing detective to see if there are other food intolerances.  Hope you get somewhere with your dietitian, let us know what they say.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    2. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    3. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    4. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

    5. - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,185
    • Most Online (within 30 mins)
      7,748

    JudahS
    Newest Member
    JudahS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.