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Musiclvr

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Musiclvr Newbie
Musiclvr
Posted

I was just diagnosed with Celiacs a little over a week ago. I'm headed for a ct scan on Monday to see how much damage is done. My problem is I just don't have any support. I'm not close to my family , their relationship with me was toxic. I have a few friends but this has really been a lot to deal with. Any suggestions or kind words would be appreciated. I did join a local Celiacs support group but it wasn't what I was looking for. I feel like I could use some emotional support !! 

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SLLRunner Enthusiast
SLLRunner
Posted
1 hour ago, Musiclvr said:

I was just diagnosed with Celiacs a little over a week ago. I'm headed for a ct scan on Monday to see how much damage is done. My problem is I just don't have any support. I'm not close to my family , their relationship with me was toxic. I have a few friends but this has really been a lot to deal with. Any suggestions or kind words would be appreciated. I did join a local Celiacs support group but it wasn't what I was looking for. I feel like I could use some emotional support !! 

Welcome, @Musiclvr

If you come here you will get plenty of support! It's tough when family and friends are not supportive. 

You said they are going to take a CT scan. Have they done an endoscope yet?

kareng Grand Master
kareng
Posted

What are they doing a CT for?  celiac intestinal damage won't show on a CT so I am gueessing they suspect some other problem?

Musiclvr Newbie
Musiclvr
Posted
  • Author

Yes I got and colonskpy and endoscopy back in Oct. They said these tests were negative. However I recently found out at my new DR that notes on my tests(colonskpy ) said cronic inflammation of my intestines. I had also been eating mostly gluten free at least six months before the test. I have the gene for it and a huge amount of  symtoms so the g I dr said she could go ahead and dianose me with Celiacs or I could eat gluten for two weeks and get the colonskpy and endoscopy done again. I chose the first one and I have been feeling better since going competly gluten free. The ct scan is for them to check for cancerous tumors and possibility of Crohns just in my small intestines. She did say that I might have more than one thing going on. I didn't realize that you can't see Celiacs on a cat scan. I know that the tumors can happen with long term undiagnosed Celiacs and I'm not sure if Crohns is related as well. 

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