Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Packaged mixes: What can be done to improve them??


Larry Gessner

Recommended Posts

Larry Gessner Newbie

I have been looking at posts in a lot of categories and it seems that mixes like cookies and brownies are not tasting good or are making people feel bad after eating the cookies or brownies. What do you think the some of the problems are? I realize that cross contamination can happen from using mixing bowls or utensils that may be shared with gluten products, so I am trying to determine where can improvements be made in the mixes?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I think this is hard to answer.  Many of us have intolerances as a result of Celiac Disease.  Some are temporary and others seem to be permanent.   Mixes use a blend of flours or just one flour (e.g. rice which makes for a grainy texture).  They also incorporate gums to replace gluten for binding that many can not digest well.   There is always the possibility (though slim) of cross contamination of the grains used, but I think that is rare.  Some folks can not tolerate oats that are certified gluten free.  Why?  No one knows for sure, but estimates indicate that 10% of celiacs have issue with them.   Finally, things added like milk, corn products, etc. can contribute to the problem.  

I think it's an individual issue.  There is no gluten free cake or cookie mix that is going to work for everyone.  To be honest, we have a popular gluten-free bakery nearby.  I never buy their products because they cater to gluten-free, allergy free, etc.  It's like eating sawdust.  So, I bake my own from scratch.  

 

amywads Newbie

hello,

 

i have struggled with this as well  i find that a homemade gum and filler free blend of sorghum flour and bob red mill gluten-free oat flour and psyllium husk as the binder as well as a little baking powder to make it rise and be a great all natural healthy flour mix that remains white.   but i have found a GREAT mix that is sold by a local gluten-free catering company available online. ive used to pancakes, muffins, cakes brownies etc  it is amazing and healthy  

once i found this mix. it honestly made me feel normal again as the baked goods taste like the "real stufff" its really worth giving it a tryits heirloomkitchencatering.com

 

i have also used plain chestnut flour with baking powder to make pancakes and chocolate based treats like brownies...

deb-rn Contributor

I bake almost everything myself as well.  I've gone through a lot of not-so-good recipes too.  Trial and error is what it takes.  There is almost nothing I can't make as good as before going gluten-free now.  I make my own "mixes" for many things like biscuits, all purpose flour, cookies, muffins... Each takes a little different mixture of flours.  My bread is VERY good and no one even suspects it's gluten-free.  You just can't give up!  I've always cooked from scratch and it wasn't a hard transition to go gluten-free for me.  I buy a lot of the individual flours online for the best prices and variety, since I live in a small town.  It does get easier with time,  but cooking from scratch really gives you the most variety and best flavor.

Debbie

Larry Gessner Newbie
 

I think this is hard to answer.  Many of us have intolerances as a result of Celiac Disease.  Some are temporary and others seem to be permanent.   Mixes use a blend of flours or just one flour (e.g. rice which makes for a grainy texture).  They also incorporate gums to replace gluten for binding that many can not digest well.   There is always the possibility (though slim) of cross contamination of the grains used, but I think that is rare.  Some folks can not tolerate oats that are certified gluten free.  Why?  No one knows for sure, but estimates indicate that 10% of celiacs have issue with them.   Finally, things added like milk, corn products, etc. can contribute to the problem.  

I think it's an individual issue.  There is no gluten free cake or cookie mix that is going to work for everyone.  To be honest, we have a popular gluten-free bakery nearby.  I never buy their products because they cater to gluten-free, allergy free, etc.  It's like eating sawdust.  So, I bake my own from scratch.  

 

Than you for sharing that. It helps me understand even more.

Complete Disarray Newbie
 

.. My bread is VERY good and no one even suspects it's gluten-free. ...

Debbie

 Recipe please?   I've had a hard time making good tasting bread, and keeping it from falling after baking.

 Also... be careful with Bob's Red Mill oat flour... they use multiple sources and some are not certified and use optical/mechanical sorting... so your gluten levels can vary wildly from batch to batch.  (If you sensitive to levels under 20ppm)

Gemini Experienced
 

 Recipe please?   I've had a hard time making good tasting bread, and keeping it from falling after baking.

 Also... be careful with Bob's Red Mill oat flour... they use multiple sources and some are not certified and use optical/mechanical sorting... so your gluten levels can vary wildly from batch to batch.  (If you sensitive to levels under 20ppm)

I am a very sensitive Celiac also and would like to know if you can reference where you heard your information on Bob's Red Mill oat flour?  If you do your homework, then you would know that they use certified gluten-free oats and are a dedicated gluten-free facility.  They also batch test to ensure compliance and quality.  If you have had problems with this, then maybe oats are not agreeing with you, for non-gluten reasons.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Complete Disarray Newbie
 

I am a very sensitive Celiac also and would like to know if you can reference where you heard your information on Bob's Red Mill oat flour?  If you do your homework, then you would know that they use certified gluten-free oats and are a dedicated gluten-free facility.  They also batch test to ensure compliance and quality.  If you have had problems with this, then maybe oats are not agreeing with you, for non-gluten reasons.

Open Original Shared Link

 

"Open Original Shared Link Open Original Shared Link

On November 12, 2015, Bob’s Red Mill wrote the following to me in an email (bottom line–BRM is using both purity protocol oats and sorted oats in their gluten-free oat products):
Dear Ms. Thompson,
Thank you for your inquiry regarding Bob’s Red Mill Gluten Free Oats. For over 30 years, Bob’s Red Mill has been committed to providing the very best in gluten free flours, cereals, baking mixes and grains for our friends on gluten free diets. For all of our gluten free products, we thoroughly batch test every product in our quality control laboratory upon delivery, during production and after packaging. We adhere to a standard of no more than 19 parts per million of gluten. Should a test show that a product exceeds that limit, it would be simply rejected and made unavailable for distribution to anyone. Every step in the production of our gluten free products is done in a separate gluten free packaging division complete with specialized machinery to make sure that our products maintain their purity. By going to these lengths, we’re able to ensure that people with wheat allergies, celiac disease and gluten intolerance can trust that our products are safe to consume.
Oats require special care to ensure that they are safely free from gluten. Bob’s Red Mill only sources from oat suppliers who are committed to practices for eliminating the presence of gluten. Our suppliers are innovative in controlling the presence of gluten by either avoiding crop rotation with gluten containing grains or using optical sorting technology to remove grain containing gluten"

 

P.S.  Note the fact they throw away batches that come in over 19ppm....

squirmingitch Veteran

And I got this email on Jan. 15, 2016 from BRM when I inquired of them. Emphasis mine.

Thank you for contacting Bob's Red Mill.

 

I’d be happy to give you more information about our products.

 

Thank you for your inquiry regarding Bob's Red Mill Gluten Free Oats. For over 30 years, Bob’s Red Mill has been committed to providing the very best in Gluten Free flours, cereals, baking mixes and grains for our friends on gluten free diets. For all of our gluten free products, we thoroughly batch test every product in our quality control laboratory upon delivery, during production and after packaging. We adhere to a standard of no more than 19 parts per million of gluten.  Should a test show that a product exceeds that limit, it would be simply rejected and made unavailable for distribution to anyone. Every step in the production of our gluten free products is done in a separate gluten free packaging division complete with specialized machinery to make sure that our products maintain their purity. By going to these lengths, we’re able to ensure that people with wheat allergies, celiac disease and gluten intolerance can trust that our products are safe to consume.

 

Oats require special care to ensure that they are safely free from gluten. Bob's Red Mill only sources from oat suppliers who are committed to practices for eliminating the presence of gluten. Our suppliers are innovative in controlling the presence of gluten by either avoiding crop rotation with gluten containing grains or using optical sorting technology to remove grain containing gluten.  Regardless of our suppliers' chosen methods for meeting our gluten free specification, we require that each lot is tested and confirmed gluten free before authorization for shipment to Bob's Red Mill. To ensure that they stay just as gluten free as the day their seedlings sprouted from the earth, we test each batch in our quality control laboratory when they arrive from the farm, during production and once again after they are packaged in our dedicated gluten free facility.

 

Additionally, we do have rigorous cleaning methods in place for our products. We clean our machinery thoroughly with high-pressure air between each production run, as well as discard or donate the first 15-20 pounds of product per lot before we begin the packaging process. We also have an air filtration system that runs continuously for employee safety reasons.

 

 

I hope this helps! Feel free to contact us again through our Customer Service Department at 1-800-349-2173 if you have additional questions or concerns.

 

 

Have a great day,

 

Julia Spock

Customer Service

Bob's Red Mill Natural Foods

13521 SE Pheasant Ct.

Milwaukie, OR 97222

Open Original Shared Link

 

squirmingitch Veteran

I might add that a short time prior to emailing BRM which resulted in my receipt of the above posted reply, I had phoned BRM asking if they used purity protocol oats & was told by the woman I spoke to, Janelle, that ALL their oats were grown under a purity protocol. I directly asked her if they used any oats that were optically or mechanically sorted to remove gluten grains.

So my new motto is

Get it in writing!

Gemini Experienced

"Also... be careful with Bob's Red Mill oat flour... they use multiple sources and some are not certified and use optical/mechanical sorting... so your gluten levels can vary wildly from batch to batch.  (If you sensitive to levels under 20ppm)"

"Regardless of our suppliers' chosen methods for meeting our gluten free specification, we require that each lot is tested and confirmed gluten free before authorization for shipment to Bob's Red Mill. To ensure that they stay just as gluten free as the day their seedlings sprouted from the earth, we test each batch in our quality control laboratory when they arrive from the farm, during production and once again after they are packaged in our dedicated gluten free facility."

It seems that whether you consider Bob's Red Mill to be gluten-free or not depends on how you read the statement and what people consider gluten free actually means. I should add that I do not eat Bob's oatmeal because I like a finer milled oatmeal. I have not used their gluten-free oat flour either. I tolerate gluten-free oats very well but am a very sensitive Celiac. However, reading this statement from them, I most likely would eat their oatmeal if they offered it in a finer cut.

I think from reading how they process their oatmeal, they actually test the hell out of it all along the production process. You are aware that gluten free is defined as less than 20ppm's?  And that it doesn't automatically mean there is that amount in their finished product?  So......anything above that gets tossed and not sold to anyone. When you look at all their protocol followed, it's pretty damn good. So, they test all along the process and their finished product tests correctly to be labeled gluten-free.  The vast majority of Celiac's will be able to tolerate this amount, if they can tolerate oats in general.  I know sensitive Celiac's that have eaten Bob's on occasion and they have had good results. They do not test the same way that Cheerio's got bagged for doing. Cheerio's has been flagged by complaints to the FDA and I have not heard any of the same regarding Bob's products. What Cheerio's did was a joke and cannot be compared to Bob's.  I am not writing this because I think they are the best oatmeal product out there, I don't.  But Bob's is a reputable brand which many Celiac's tolerate quite well...even some sensitive ones I know so if their product were that untrustworthy, we would be hearing about all over the place because people would be getting sick. Hard to tell if those who have gotten sick were from oat intolerance or actual gluten contamination, unless you run it off to a lab.  I know too many people who follow a strict gluten-free diet and use Bob's without issue to automatically assume their product is not really safe.

 

 

 

  • 3 weeks later...
Complete Disarray Newbie

That's why I just said be careful.  Like you said, most celiacs, but not all.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,872
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.