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Not Sure If Celiac Or Not, Going To Dr. Next Week


Bea

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Bea Newbie

Hello, I'm new here and want all the information I can gather before seeing my doctor next week. I was told by a friend that I need to ask my doctor about celiac. Is it diagnosed by EGD or by blood tests. I have had off and on nausea for the last 3-4 years. Also some pain around my ribs on both sides but occasionally sensation of a ball behind right ribs. Two years ago, gallbladder studies were normal. EGD showed mild inflammation. For the last 6 months, I've also had several bouts of diarrhea but no cramps, just urgency to move bowel, not constantly though. Just three weeks ago, I had another EGD which again showed mild inflammation and colonoscopy was normal. I also do get a small rash on my right palm, not sure if it is that skin rash related to celiac. It starts out as what seems to be a few pimples, then they dry up, turn red, and go away for a few weeks. It's always the same spot on my palm. Does drinking milk cause symptoms of celiac? I drink maybe 3-4 glasses a week and really don't notice any problems. Any other info you have for me is really appreciated. Thanks.


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RiceGuy Collaborator

The range of symptoms is quite large, though there are many problems common to most sufferers. The pimples and such you describe sounds like something my mother had on her wrists, which turned out to be a yeast infection. She is also sensitive to wheat, dairy, and a host of other things, not the least of which are nightshade foods like tomatoes. Those in particular give her rashes as well.

I know you will learn a lot even with just the recent discussions on this board from the past week or so. Scan through them, even ones that don't seem interesting or applicable to you. The wealth of information is serving me well. I'm sure it will for you too. You'll also be reminded of various things which you can use as search terms to locate threads on the board, so don't forget the search :)

Does drinking milk cause symptoms of celiac?

Dairy products are commonly found to be a problem for the gluten intolerant individual. From what I've read, one of the first problems from the damage to the small intestine is lactose intolerance. That may subside over time as the gut repaires itself. It depends on the person.

traveljunkie Rookie

Hi Bea,

I would like to welcome you as many have welcomed me..I'm new here as well. Celiac has many symptoms..some of which you mention but you could also be gluten intolerant. Do you notice when the diarrhea and itchy palm occur.? Did you eat pasta, bread or anything with gluten in it? My son and I are gluten intolerant after a round of strong antibiotics. Our bodies react to gluten like its a foreign invader now! lol It sucks but its our reality and have adjusted quite well. We tested negative in blood tests but we were gluten free at the time for 5 months. I would ask for a blood test but just moniter your diet and keep a food diary. Its amazing how much we forget what we ate and when and don't even realize what the offending food may have been. Good luck and keep us posted!

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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