Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Loved ones with Celiac in nursing home


HeatherRJSoleil

Recommended Posts

HeatherRJSoleil Rookie

Hi everyone, 

I put this on the "coping with" forum but wanted to share here too for those that may not see the other post:

I'm writing an article for Gluten-Free Living about the quality of nutritional care that nursing homes are providing (or not!) Celiac residents. I was so moved by Curtiss Ann Matlock's story a few months ago, I thought I'd do a little digging and pitch the topic to a broader audience. That's what I do!

Does anyone out there have a parent or loved one with Celiac Disease that is currently living in a nursing home (or assisted living facility)? If so, would you be willing to talk about whether or not your loved one is receiving gluten-free meals, the challenges in finding a facility that could accommodate a gluten-free diet, etc.?

If you fit this description, send me a note at heatherrjohnson@sbcglobal.net. 

Note that I'm not talking about short hospital stays or short-term rehab facilities. Need to limit this to nursing homes and assisted living.

Thank you so much,

Best,

Heather J

heatherraejohnson.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Lakefront Brewery



Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.


Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    Holidaily Brewing Co.
    Authentic Foods




    Celiac.com Sponsors (A17-M):

    GliadinX



  • Recent Activity

    1. - lmemsm posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      bread

    2. - Scott Adams replied to MMeade's topic in Coping with Celiac Disease
      6

      Gluten Allergy

    3. - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern

    4. - FayeBr posted a topic in Coping with Celiac Disease
      0

      Major Glutening

    5. - knitty kitty replied to MMeade's topic in Coping with Celiac Disease
      6

      Gluten Allergy


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      131,424
    • Most Online (within 30 mins)
      7,748

    DesireeDawn
    Newest Member
    DesireeDawn
    Joined

  • Celiac.com Sponsor (A20):
    Tierra Farm


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Daura Damm



  • Upcoming Events

  • Posts

    • lmemsm
      Wanted to tell someone, I finally made an edible gluten free bread.  It took me several hours to make and it didn't taste like what I was trying to make, but it did taste like a bread.  Was looking all over for bread machine recipes and I ran across this one on the Internet:  https://www.snapcalorie.com/recipes/gluten_free_oat_challah_bread_machine.html  Used it as a starting point, but I swapped out the tapioca with arrowroot and the xanthan gum with guar gum and glucomannan.  I also made it using the gluten-free pizza mode on my Panasonic bread machine and then took the batter out and put it in...
    • Scott Adams
      The concept of "over-methylation" as a common clinical condition is not supported by mainstream medicine. While methylation is a crucial biochemical process, the idea that people frequently become "over-methylated" and that this is linked to B6 deficiency is a speculative theory, not an established fact. 
    • Rejoicephd
      Oh cool! We have similar stories! I’m a microbiologist with an interest in metabolism. Been getting more and more fascinated by nutrition in recent years.    I will check out your blog . Thanks !
    • FayeBr
      Hi to all I am 4 years Celiac now. I have Ataxia too from gluten and it’s been a major learning curve and adjustment. But my query is about a recent set back. I was Glutened and started an OTC medicine to cope with a symptom. It stated it was free from gluten specifically. But in the following weeks I was getting more ill and couldn’t fathom what was wrong. I had gastritis which is awful and lots of other neuro and body symptoms that I get when Glutened. I always find it difficult to think straight too because of the brain fog and fatigue so this wasn’t helping me think logically. And then the lightbulb moment of the medication. I emailed the company in my gluten haze (by this time...
    • knitty kitty
      @MMeade, People who get over-methylated are frequently low in Pyridoxine Vitamin B6.  Pyridoxine helps regulate the methylation process so it doesn't run amok.  P-5-P is the active form. All eight essential B vitamins work in concert together.  Just taking one or two can throw the rest out of balance.  If you have malabsorption as occurs in Celiac, then all the B vitamins will be poorly absorbed.  Taking a B Complex in addition to extra thiamine (Benfotiamine) is safe.  The B vitamins and Vitamin C are water soluble.  Any excess is urinated out.  I took a B 50 Complex twice a day to increase absorption.   Try taking Magnesium Threonate (Neuro-Mag by Life Extension).  Magnesium Threonate...
×
×
  • Create New...