Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help, got glutened last night and brain fog already. What can I do?

Kitty123

Recommended Posts

Kitty123 Newbie
Kitty123
Posted

How do I dampen the immune response my body has launched against my brain from the gluten? High dose DHA & omega3? Turmeric? Too late?

I have nonclassical celiac and am extremely sensistive to gluten. I recovered from dementia after removing all grains but it took years to recover (Im 44 yrs old).  I've been so careful and my friend swore she would be careful with ingredients, but sure enough, wheat and soy and dairy made it into dinner. 

Would this topic be better on another forum/board?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Estes Contributor
Estes
Posted

I know this is not recommended by anyone with a background in healthcare but I am 41 and have brain fog as my main symptom.  My coping strategy is 2 cans of diet Mountain Dew.

I am gluten free but still eat rice, popcorn, and gluten-free multigrain chips.  What made you decide to cut all grains?  I have contemplated it but am not sure if the benefits outweigh the hassle.  I would love to hear from someone who has done it.

cstark Enthusiast
cstark
Posted

When brain fog rolls in for me, I do Frankincense Essential Oil right at the bottom of the skull at the top of the spine.  There's a little notch where the two meet.  I put barely a drop of the oil there, and it works within minutes of the attack.  Brain still is a bit fuzzy, but at least I would be concentrate and not feel like a Mack truck ran over my head. :) 

cstark Enthusiast
cstark
Posted
19 minutes ago, Estes said:

I know this is not recommended by anyone with a background in healthcare but I am 41 and have brain fog as my main symptom.  My coping strategy is 2 cans of diet Mountain Dew.

I am gluten free but still eat rice, popcorn, and gluten-free multigrain chips.  What made you decide to cut all grains?  I have contemplated it but am not sure if the benefits outweigh the hassle.  I would love to hear from someone who has done it.

With me, sometimes too much grain makes my digestive slow way down.  It makes me feel like I have a lead ball in my stomach.  It takes some digestive enzymes to get my system running again.  Annoying, I know.  I have not cut out all grains, but for the majority of the time I do without.  Estes, if you are considering taking out grains, try substituting spaghetti squash for the majority of your grains.  It's a healthy way of cutting out the grains, and it cuts down on the carbs you consume as well.  It's a two-feR!

Estes Contributor
Estes
Posted
2 minutes ago, cstark said:

With me, sometimes too much grain makes my digestive slow way down.  It makes me feel like I have a lead ball in my stomach.  It takes some digestive enzymes to get my system running again.  Annoying, I know.  I have not cut out all grains, but for the majority of the time I do without.  Estes, if you are considering taking out grains, try substituting spaghetti squash for the majority of your grains.  It's a healthy way of cutting out the grains, and it cuts down on the carbs you consume as well.  It's a two-feR!

If you cut out carbs do you get crabby and stop sleeping?

cstark Enthusiast
cstark
Posted
16 minutes ago, Estes said:

If you cut out carbs do you get crabby and stop sleeping?

Actually I have found I have more energy during the day, and sleep very well at night.  When I have more grains or processed foods, I find I don't sleep as well because my digestive system is still hard at work and not getting the rest it needs.  My systems actually work better when I cut back on the amount of grains.  A lot of the time these days, the grains we consume are processed by varying degrees.  I have found the least processed I go, the better it is for my entire body as a whole.  

I find that some of the fruits and veggies we eat have the same amount of carbs that is in grains.  When God created us, He meant for us to have a fruit and veggie with some meat tossed in.  I am not saying to do away with grains altogether, but moderation is the key.

Sorry, I tend to be a little long winded at times. :) To put all this into a nutshell, I do tend to sleep better and not be as moody/crabby when I go for more of the fruits/veggies instead of more grain.  Be careful though that you don't JUST eat fruits.  We need the veggies for the fiber in our digestive system.  I learned that the hard way.  Hope this helps, and good luck!

Estes Contributor
Estes
Posted

This is all great info!  Sorry to hog the brain fog glutening question but I am loving this info!  Do you eat potatoes or drink wine?  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cstark Enthusiast
cstark
Posted
2 minutes ago, Estes said:

This is all great info!  Sorry to hog the brain fog glutening question but I am loving this info!  Do you eat potatoes or drink wine?  

No I don't drink alcohol at all and I substitute sweet potatoes for the white potatoes partly because of carb aspect.  White potatoes are digested easily and turn quickly into sugar because they are what experts call simple carbs. Sweet potatoes however are complex carb and allow them to broken down and be used body a lot better.

Something I wanted to add to the last question you had, Estes.  The amount of grains someone consumes depends on what their body needs to function properly.  Try going without grains for one-two weeks and then gently introduce grains into your system to see how your digestive system reacts to it.  You will be able to see not only how your body tolerates grains, but also how much your body requires the grains.  After that, you will be able to adjust your diet accordingly.

When I first showed symptoms of gluten intolerance, I went cold turkey from grains, processed foods, and gluten to get my body healing again.  I then started adding the grains back into my diet and have found that happy medium for grains in my diet.  It's all about actively listening to your body.

Gemini Experienced
Gemini
Posted
On 7/18/2016 at 2:56 PM, Estes said:

This is all great info!  Sorry to hog the brain fog glutening question but I am loving this info!  Do you eat potatoes or drink wine?  

I drink wine and eat potatoes!   Both agree with me well so thank God for small miracles......:lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.