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- joleenrae replied to joleenrae's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7+ bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??
We had the follow up endoscopy 1 year out from the first one. We left that day and they said visually it looked good so he thought she'd be negative again. Results came back this week as celiac sprue present and level Marsh 3A. So she doesn't have much damage but she is now positive for celiacs... Just thought I'd post in case in takes anyone else a year... -
- Scott Adams replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease12TTG IgA and IGA elevated mildy
@thejayland10, did you read this article? -
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- shirlane posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Is AG1 safe for Celiacs??
I need to supplement my vitamin intake and was told AG1 was a good product. I checked their website and they claim to be gluten-free, but I see that barley is one of the ingredients. If the product is gluten-free how can it safely contain barley? -
- trents replied to MagsM's topic in Related Issues & Disorders24Inflammation and Menier’s disease link?
@nataliallano, whatever else can be said, you need to get serious about eating gluten free. Lots of people with celiac disease are like you. We call them "silent celiacs". They have few or no GI symptoms and falsely assume no damage is being done to their body by continuing to consume gluten. Neurological damage is one of them.- 1
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We had the follow up endoscopy 1 year out from the first one. We left that day and they said visually it looked good so he thought she'd be negative again. Results came back this week as celiac sprue present and level Marsh 3A. So she doesn't have much damage but she is now positive for celiacs... Just thought I'd post in case in takes anyone else a year to get a diagnosis.
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I need to supplement my vitamin intake and was told AG1 was a good product. I checked their website and they claim to be gluten-free, but I see that barley is one of the ingredients. If the product is gluten-free how can it safely contain barley?
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@nataliallano, whatever else can be said, you need to get serious about eating gluten free. Lots of people with celiac disease are like you. We call them "silent celiacs". They have few or no GI symptoms and falsely assume no damage is being done to their body by continuing to consume gluten. Neurological damage is one of them.
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Good day, From browsing this forum, I've come to find out that even on a gluten-free diet, many people seem to take years for their antibodies to go down to normal levels, and also that hidden gluten could keep the levels from going down to normal indefinitely. Shouldn't that mean that a celiac person would have a high possibility of testing positive given that they had gone gluten free for less than 2 years or so, and especially if they had not been careful about cross-contamination or had cheat days? The criteria for the gluten challenge makes it seems like the possibility of false negative is high in general.
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