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Really Quick Question!

danikali

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danikali Enthusiast
danikali
Posted

Would a GI doctor perform a biopsy even if the blood results came back negative? I mean, is it common. See, I'm trying to ease my mind in some way because my blood results are in but MY DOCTOR ISN'T GETTING BACK TO ME ON THEM! And when I first saw her, she didn't seem like she believe I had celiac disease, but yesterday I had a colonoscopy and EBR and she added (without my knowledge until AFTER I was awake) the biopsies!

So I'm just wondering if from your experiences, a doctor would perform a biopsy even if the blood tests came back negative.

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Rachel--24 Collaborator
Rachel--24
Posted

Did you have an endoscopy with the colonoscopy? How did she do the biopsy? Also why didnt she give you your bloodtest results? Have you asked for them?

danikali Enthusiast
danikali
Posted
  • Author
Did you have an endoscopy with the colonoscopy? How did she do the biopsy? Also why didnt she give you your bloodtest results? Have you asked for them?

I don't know how she did them. But I know that I was going in for a colonoscopy and for the upper GI (where they go down your throat) and then when I woke up at the end, she told me she added biopsies to BOTH tests, so upper and lower. But I don't know why she isn't giving me my results on the blood. She seems a little spacey. I asked her yesterday (when I was half awake) and she said that she couldn't recall them at the moment (meaning, she has them, but she forgot about them or something) and to call her in a week or two. Then after I woke up after taking a nap at home, I was like, wait, Quest diagnostics told me they would be in her office in 3 days! She has them and I'm not waiting 2 weeks again! It's already been about two weeks! So I called her yesterday AND this morning and left a message and she hasn't gotten back to me!! I'm so mad! :angry: How hard is it for her to call me back and go over them with me for 15 minutes? And the receptionist told me she can't send them to me unless the doctor has given them to me first, BUT SHE IS IGNORING ME! I am so anxious because I know she has them but she won't give them to me because she just clearly doesn't care enough.

Anyway................I also have a question about gastritis. She told me that my stomach lining was inflamed and red, and that I have gastritis. The doctors seem to ALWAYS be telling me that I have this: could this be a HUGE sign of Celiac Disease????

I'm so depressed right now about all of this. And I still feel like crap from drinking that laxitive on Sunday.........my muscle and joint pains are back and an all over "weird" feeling...............HELP ME! PLEASE?

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      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
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