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4 Days gluten-free--why Do Testing?


CMCM

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CMCM Rising Star

Well, I've plunged into a diet that is gluten free. This is the 5th day and I already feel hugely different...for the better! Bloating/gas gone, D gone. I woke up with a mild headache the last couple of days, though, and this morning my head was itching like crazy, plus I had some other itching here and there. Strange. Is this some strange kind of withdrawal?

Anyhow, reading a recent post by someone who tested negative despite having symptoms, I'm really double thinking the idea of having the usual blood tests done. They just don't seem entirely conclusive, and I hate to waste my money on them. The finger prick test for $99 is interestng....but does it reveal as much (potentially) as the blood panel everyone gets? And there's also the Enterolab test panel for $350.

I'll continue with the gluten-free diet and see if my various other symptoms improve (i.e. chronic cough, the occasional asthma-type symptoms, the highish bp, and maybe my cholesterol levels will come down. For the time being, it's just nice to be rid of the strong digestive symptoms.


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ianm Apprentice

I have never been tested and so have many others here. I did not know about the tests until after I went gluten-free. There was such a dramatic turn around in my health that I just couldn't see the point in getting tested. The only thing you can do about it anyway is the gluten-free diet. I just did not want to eat gluten anymore so I never got tested. Some people feel the need to get tested and for others just feeling healthier is all they need to know.

RiceGuy Collaborator
I have never been tested and so have many others here. I did not know about the tests until after I went gluten-free. There was such a dramatic turn around in my health that I just couldn't see the point in getting tested. The only thing you can do about it anyway is the gluten-free diet. I just did not want to eat gluten anymore so I never got tested. Some people feel the need to get tested and for others just feeling healthier is all they need to know.

I agree 100%. All my life I suffered at the hands of idiot doctors who know nothing but drugs. I stumbled into this whole gluten-free thing and celiac and all that, and I can truly say it's the best thing I ever did for my health. Too bad I didn't know a long time ago, because I could have avoided all the damage to the gut.

Anyway, as mentioned, the gluten-free diet is what I'd do no matter what any docs say, so I don't care about an "official" diagnostic. They'd likely be wrong anyway from what I've been reading. It seems you have to be glutenizing yourself pretty badly for the tests to really show it. That's with the exception of a genetic test, which apparently does exist if I read correctly.

KaitiUSA Enthusiast

The diet is really the ultimate test. Listen to your body...if you feel better off of gluten then stay off of gluten. If you can stay 100% gluten free without a diagnosis then I would go with that. Your body can tell you more than any test or doctor could.

Good luck :)

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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
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