Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bright side of Peripheral Neurpathy?


Ennis-TX

Recommended Posts

Ennis-TX Grand Master

There is a bit of a bright side to everything, the lack of feeling in my hands and feet to surface temperatures and pain means I can burn, cut, or bruise myself and as long as it is not deep tissue I can go about my normal business and rationally deal with it. Cut my hand, just superglue the cut closed glove up and go about my day. Burn myself, most of the times I do not even notice, "Oh I forgot the oven mitt" til the smell or the the deep burn gets to me, I just rationally stick it in cold water and ice and deal with the peeling later. Today I did something to my foot, ball of my foot is all purple...no clue but I walked 12miles on it, SO THIS one might need a doctor -_- but going been icing it, feeling around seems like it originated under a callouses on the ball and spread along the side.....well I walk 10 miles average a day so this is going to be a odd one.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

This is not a bright side. Just ask any Diabetic who has had an amputation. You need to be very careful until this resolves.  Carefully check your feet at least a couple times a day. Make sure you don't have any blisters or cuts and if you do clean and cover them and if any signs of infection show get to your doctor promptly.

If you have cuts serious enough to need to use superglue on you need to have them evaluated by your doctor. Let the doctor decide whether you need stiches, glue or just a butterfly bandage. You do not want to glue in any bacteria and if the wound needs to drain the glue will prevent that. Some injuries you want to have air exposure to heal quicker. Talk to your doctor about what you need to do with cuts and scrapes.

Your doctor may also want to do an electromylogram to check your nerve conduction and if you have no feeling in your feet he/she may want you to be evaluated by a PT because numbness can effect your gait making you more prone to falls.

I hope this issue resolves soon for you and for heaven's sake use potholders or another tool whenever cooking or baking.

Ennis-TX Grand Master

I normally do use a pot holder or oven mitt but sometimes I get in a rush hear the timer and just reach in, I have gotten good at stopping myself after initially grabbing it. As for the super glue, I only use it on palm,hand injuries while cooking (these normally involve a knife and do not close or stop bleeding quickly otherwise) , This way I can seal it up quick put on gloves and get back to cooking. As I said the bright side is I can deal with it rationally as there is no pain/panic.

As for the foot, this one scared me as I realize how bad it could be say if I stepped on something or cut my foot. I felt a sharp pain like glass on bone deep in my foot first thing in the morning. I looked at it, gave myself a foot rub seeing if I could figure it out, then socked up and went about my day. End of the day I took off my socks and saw it was blackish.purple running from the callus on the ball where I felt the pain, running in a 1inch wide bruise around the side of the ball to the top big toe knuckle. I had walked a almost a full 12.5 miles that day on it and felt nothing wrong. This morning it seems to have receded to just to the outside of the top big toe knuckle but still blackish from the side of the ball to that callous, no pain still this morning. Might try using a bike today and putting my weight on the heel to avoid aggravating it.

GFinDC Veteran

Hi Ennis,

If it's healing that's good.  It is definitely important to be extra cautious now.  You should probably check your shoes or boots for forgein objects.  It could be the boots/shoes are defective.  For diabetics they make special shoes that have smooth linings without big stitches inside.  My brother has Type-2 diabetes and he likes the pull on style boots.  I think they call them muck boots?  He has trouble with small things so it is easier to pull on boots than tie laces.

Recently he got a drywall screw in the bottom of his shoe and walked around on it all day thinking it was a rock stuck in the shoe tread.  That was a bad idea.  So now he has weeks of healing and care to do for that foot.

Boots are generally safer than shoes for anyone.  I wear boots with a pull up zipper on the side so I don't have to re-tie them to put on or take off.  Makes it fast and easy.  They are made by Dan Post.  They are similar to these linked boots but I only paid about $60 or so bucks at a discount shoe place.

  Open Original Shared Link

I've had nails in my foot before so anytime I am working anywhere around construction I always wear boots.  It's much nicer to pull nails out of your boot sole than out of your foot! :)

The problem with numbness is you can't feel a bad fit well, or a small imperfection in the inside of shoe/boot.  Fit has to be right size (should be measured by sales person) and the inner lining should be smooth with no big seam lines.  Boots do adjust their shape to your foot after a few days of being worn.  But proud seams don't go away.  Thick socks might help too.

Is that you in your profile pic?  I see you are wearing gloves.  That isn't such a bad idea either.

Ennis-TX Grand Master
12 minutes ago, GFinDC said:

Hi Ennis,Open Original Shared Link

If it's healing that's good.  It is definitely important to be extra cautious now.  You should probably check your shoes or boots for forgein objects.  It could be the boots/shoes are defective.  For diabetics they make special shoes that have smooth linings without big stitches inside.  My brother has Type-2 diabetes and he likes the pull on style boots.  I think they call them muck boots?  He has trouble with small things so it is easier to pull on boots than tie laces.

Recently he got a drywall screw in the bottom of his shoe and walked around on it all day thinking it was a rock stuck in the shoe tread.  That was a bad idea.  So now he has weeks of healing and care to do for that foot.

Boots are generally safer than shoes for anyone.  I wear boots with a pull up zipper on the side so I don't have to re-tie them to put on or take off.  Makes it fast and easy.  They are made by Dan Post.  They are similar to these linked boots but I only paid about $60 or so bucks at a discount shoe place.

  Open Original Shared Link

I've had nails in my foot before so anytime I am working anywhere around construction I always wear boots.  It's much nicer to pull nails out of your boot sole than out of your foot! :)

The problem with numbness is you can't feel a bad fit well, or a small imperfection in the inside of shoe/boot.  Fit has to be right size (should be measured by sales person) and the inner lining should be smooth with no big seam lines.  Boots do adjust their shape to your foot after a few days of being worn.  But proud seams don't go away.  Thick socks might help too.

Is that you in your profile pic?  I see you are wearing gloves.  That isn't such a bad idea either.

Yep Dickies makes extra thick socks for steel toe boots that I love, really helps keep your feet from getting blisters etc. I tend to wear steel toe boots a lot and change out the insole once every 8-12 months. I also wear running shoes and change them out every year. As to the gloves, yep with allergies and celiac, I like wearing gloves when out and about (My hands look terrible from various damage). Keeps stuff from getting on my skin and under my nails, I like to wear nitrile ones a lot but it looks better to have cotton ones for going out, it fits well with dressing up.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.