Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red face (again)


tammi22

Recommended Posts

tammi22 Rookie

I posted something previous to do with this, but I always get anaphylactic symptoms whenever i consume gluten (i am returning to the doctors on monday). 

However i seem to be getting it after every time i eat now. I have only been eating 1 meal a day because i'm worried about getting it during the day and being so affected in my lectures at university, however the 1 meal contains no gluten/wheat/oats, ANYTHING - no dairy either. I'm so worried about it like i've got it right now. My face went extremely blotchy last night and then cleared up when i was going to sleep - however i have felt redness and warmth on my face today. 

I also get a headache and good old (not really) Brain Fog along with this. And my eyes feel ... droopy? And a racing Heart always happens [though the extent varies, not too bad yet].

I'm getting really scared to eat at the moment. I'm wondering if it's the sugars? I've had cereal (everything free milk of course) and i dunno if that could have triggered it? I mean they're not exactly extremely high in sugar so I can't really seem to link it? This stuff is really difficult now and I'm scared the doctor won't be able to do anything- and in the meantime before finding anything about it, I'm really gonna struggle :( 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced
58 minutes ago, tammi22 said:

I posted something previous to do with this, but I always get anaphylactic symptoms whenever i consume gluten (i am returning to the doctors on monday). 

However i seem to be getting it after every time i eat now. I have only been eating 1 meal a day because i'm worried about getting it during the day and being so affected in my lectures at university, however the 1 meal contains no gluten/wheat/oats, ANYTHING - no dairy either. I'm so worried about it like i've got it right now. My face went extremely blotchy last night and then cleared up when i was going to sleep - however i have felt redness and warmth on my face today. 

I also get a headache and good old (not really) Brain Fog along with this. And my eyes feel ... droopy? And a racing Heart always happens [though the extent varies, not too bad yet].

I'm getting really scared to eat at the moment. I'm wondering if it's the sugars? I've had cereal (everything free milk of course) and i dunno if that could have triggered it? I mean they're not exactly extremely high in sugar so I can't really seem to link it? This stuff is really difficult now and I'm scared the doctor won't be able to do anything- and in the meantime before finding anything about it, I'm really gonna struggle :( 

It sounds like classic Histamine Intolerance.  You may want to take a look at this article, written by a doctor who has Celiac and was a contributor to this forum for a bit.

Open Original Shared Link

I am sorry you are suffering with this.  I have severe allergies, along with Celiac, and my little trick is hives.  I feel your pain!

tammi22 Rookie
1 hour ago, Gemini said:

It sounds like classic Histamine Intolerance.  You may want to take a look at this article, written by a doctor who has Celiac and was a contributor to this forum for a bit.

Open Original Shared Link

I am sorry you are suffering with this.  I have severe allergies, along with Celiac, and my little trick is hives.  I feel your pain!

omg just reading this list makes everything seem so clear. thank you so much i am going to discuss it with my doctor on monday :)

GFinDC Veteran

Here's a  list of 14 food allergens that might be helpful.  Eisonophilic esophagitis is another issue that might fit.  It cause reactions in the throat to many foods.

Gemini Experienced
21 hours ago, tammi22 said:

omg just reading this list makes everything seem so clear. thank you so much i am going to discuss it with my doctor on monday :)

Good luck!  Please let us know how it goes.

Posterboy Mentor

tammi22,

I agree with Gemini. The link she provided is the best information I have read on the subject.

You also might look up the Niacin protocol.

It involves taking Niacin 100mg titrating it up on 100mg steps till you get up to 500mg and depleting your histamine reserves by way of the Niacin flushing that people  get  in taking Niacin in higher dosages.

If taken (niacin) with food the flushing you get is usually mitigated in 100mg amounts but will over 3 or 4 days usually deplete your histamine reserves so that the hives you are experiencing usually settles down when the histamine is flushed out with high dose niacin.

I had a friend who had a histamine allergy who when taking Niacinamide 500mg (the non flushing form of Niacin) to treat her histamine allergy got better in 3 or 4 months.

It will take 3 or 4 months of taking it (Niacinamide) 3/day to get over a B-Vitamin deficiency.  You will notice you begin burping after each meal when the Niacinamide or Niacin (once the flushing/hives are gone) when you begin burping and your stool sinks to the bottom of the bowl.

A burp that comes in the first twenty minutes will be what you notice when it (burping) begins again if you don't now burp but when you are over you deficiency you will be burping (without carbonated drinks) 2 hours after a meal and even water will cause you to burp after taking Niacinamide for 6 months 3/day.

I think you will notice by then your histamine allergy is much better.  Or at least my friends was.

Niacin regulates how histamines functions in the body.

Here is a good link that explains what modern day doctor's have forgotten about Niacin.

Open Original Shared Link

It natures natural antihistamine because it helps regulate adrenalin in the body.

I think of it as being able to reset your stress clock.  When we have anaphylactic reaction our "stress clock" (my words) goes haywire and we can't shut it off.

Niacin let's us diffuse that ticking time bomb by depleting our histamine reserves.

******This is not medical advice and should not be considered such but taking Niacin should flush your histamine  reserves in 3 or 4 days helping the anaphylactic reaction if it indeed a histamine reaction you are having.

Here is another link that explains how to take Niacin to deplete your histamine reserves.

Open Original Shared Link

I hope this is helpful.

posterboy,

 

 

emma6 Enthusiast
11 hours ago, Posterboy said:

tammi22,

I agree with Gemini. The link she provided is the best information I have read on the subject.

You also might look up the Niacin protocol.

It involves taking Niacin 100mg titrating it up on 100mg steps till you get up to 500mg and depleting your histamine reserves by way of the Niacin flushing that people  get  in taking Niacin in higher dosages.

If taken (niacin) with food the flushing you get is usually mitigated in 100mg amounts but will over 3 or 4 days usually deplete your histamine reserves so that the hives you are experiencing usually settles down when the histamine is flushed out with high dose niacin.

I had a friend who had a histamine allergy who when taking Niacinamide 500mg (the non flushing form of Niacin) to treat her histamine allergy got better in 3 or 4 months.

It will take 3 or 4 months of taking it (Niacinamide) 3/day to get over a B-Vitamin deficiency.  You will notice you begin burping after each meal when the Niacinamide or Niacin (once the flushing/hives are gone) when you begin burping and your stool sinks to the bottom of the bowl.

A burp that comes in the first twenty minutes will be what you notice when it (burping) begins again if you don't now burp but when you are over you deficiency you will be burping (without carbonated drinks) 2 hours after a meal and even water will cause you to burp after taking Niacinamide for 6 months 3/day.

I think you will notice by then your histamine allergy is much better.  Or at least my friends was.

Niacin regulates how histamines functions in the body.

Here is a good link that explains what modern day doctor's have forgotten about Niacin.

Open Original Shared Link

It natures natural antihistamine because it helps regulate adrenalin in the body.

I think of it as being able to reset your stress clock.  When we have anaphylactic reaction our "stress clock" (my words) goes haywire and we can't shut it off.

Niacin let's us diffuse that ticking time bomb by depleting our histamine reserves.

******This is not medical advice and should not be considered such but taking Niacin should flush your histamine  reserves in 3 or 4 days helping the anaphylactic reaction if it indeed a histamine reaction you are having.

Here is another link that explains how to take Niacin to deplete your histamine reserves.

Open Original Shared Link

I hope this is helpful.

posterboy,

 

 

if anyone actually suspects they are deficient in vitamin b3 please get tested by a doctor before taking high doses of vitamins that can cause side effects


posterboy,
i don't know how you find all these suspicious "doctor" websites, i guess anyone can create a website, call themselves a doctor and give unreliable medical advice. it might be helpful for you to research pseudoscience in medicine so you can tell which website are making up miracle cures and scamming people.


Doctor Andrew Saul from that doctoryourself.com website has a phD human Ethology that hardly qualifies him to be giving medical or nutritional advice.

Dr. Reuben T. DeHaan is a naturopath not a medical doctor. just skimming through Open Original Shared Link not only is it full of crazy claims like "every illness is curable" some of the advice sounds dangerous.  he's against vaccinations, belives in inducing fevers, fasting while sick, coffee enemas, advising against mammograms. he promotes allergy testing by checking your pulse, ph testing, thinks milk is toxic, microwaves dangers. clearly every word of his blog is false

i doubt theres any real connection between Niacin and histamines functions if these are the kinds of doctors making those claims

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

The 14 food allergens poster pdf link finally!

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

    2. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    5. - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,287
    • Most Online (within 30 mins)
      7,748

    Desert Ratt
    Newest Member
    Desert Ratt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.