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Do I have Celiac or DH??

sck

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sck Newbie
sck
Posted

5 months ago I started getting these red bumps on face that didn't pop like pimples. Recently, they've turned into more blister type things. They're red and only have clear fluid in them, I've squeezed them and it seems like the liquid forms a bubble that can be wiped away. I'm tired all the time, I have bad depression ans I feel like I'm going crazy. The blisters form under my eyes on the side of my nose and some on my forehead, and my chin. Help! I don't know what this may mean. 

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PinkyGurl Explorer
PinkyGurl
Posted

DH is the skin form of celiac.  Only way to know  if you have celiac is to get tested.  Start with your primary and request the celiac blood panel.  The also request to see dermatologist if you skin thing is still there.

  • 1 month later...
Mary Anne Simpson Rookie
Mary Anne Simpson
Posted

I have had an itchy rash for almost a year. It started on my legs. Then as time went on it went to my knees and forearms and to the backs of my hands. Dermatologist put me on steroids and now that I'm off it's coming back. Also on lower flanks and fell itching in thighs. If I have a celiac test, will it show if I only have the skin reaction to gluten, or do I need specific biopsy? When I mentioned DH to dermatologist, he said it didn't show celiac. However when I read about biopsy for DH, all things say you need to biopsy adjacent to rash, not the rash itself. I'm thinking of finding a different doctor. But where do I start. I would eat gluten free, but how long would it take for rash to subside?

 

  • 7 months later...
GFinDC Veteran
GFinDC
Posted

Hi Mary Anne,

They take the skin biopsy from adjacent to a "lesion".  There are many possible symptoms of celiac disease.  DH is the skin rash symptom of celiac disease.

It can take a year for itching to go away from what I've read.  Reducing iodine intake during symptoms may help reduce their duration.  You have to be gluten-free for symptoms to subside as DH is an immune reaction caused by celiac disease.

A good place top start looking for knowledgable doctors is in a local support group.

 

 

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    • StuartJ
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      By StuartJ · Posted

      Well, three months later and a startling revelation!  After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right?  Big flare up withing hours and I was really wiped out with it.  She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again!  So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today!  Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
    • trents
      Could this be a new intolerance

      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

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      By trents · Posted

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      Could this be a new intolerance

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