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tummietroubles

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tummietroubles Newbie

I was diganosed with Celiac Disease about a year and a half ago. I have learned over the last year to be extremely careful with any and all foods. But recently my daughter bought me a gift set from Bath & Body Works "Cucumber & Melon" lotions ect. Beautiful and smelled even better. To make a long story short I began getting headaches that were getting worse each day. Then nausea, vomiting and severe head pain this went on all of October and through most of November. I had cat scan, MRI and xrays. I do have white matter on my brain which I believe is from the disease. I was so very careful and never even thought about the lotion I was using until one moring I noticed it says right on the label contains "wheat germ oil" I couldn't believe it. My headaches are gone. So please be aware. I could have saved myself so much pain and sickness. There are just soooo many things out there that we all need to be aware of.


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chaddwell Apprentice

I am new to this and didn't think much about other stuff besides the food aspect so thank you for this information. I found it helpful and I'm sure others will too!

darlindeb25 Collaborator

Not all Bath & Body Works products contain wheat germ oil. I use their White Tea and Ginger, it has avacado oil and almond oil--it doesnt bother me at all. I also use their Sweet Pea. I had severe reactions to their Moonlight Path. Never use a product without reading the ingredients. Deb

Rachel--24 Collaborator

I had a similar experience with Aubrey Organics lotion. It had wheat germ oil and I gradually got sicker and sicker over the 2 weeks I used it. It was miserable and I lost lots of weight. :(

  • 1 month later...
Silver-naki Rookie

Thanks for the "tips" on these Products here folks! I had wondered often about some of these things myself, so this was quite insightful! Thanks much!!! :)

teebs in WV Apprentice

I have found that most of the lotions from Bath & Body Works contain oats, so I avoid them all. I do use their handsoap, body spray, and some body washes (gels only - every cream body wash that I have checked out has oats).

Ursa Major Collaborator

I found out that when I weeded out all products with wheat germ oil my scalp stopped itching (the shampoo had it), and my eyes wouldn't burn any more (my hand soap had it, and I'd touch my eyes).

I am part of a German Celiac forum (I rarely go there now), and they drive me nuts. Somebody was saying they're so careful with their food, and is not getting better. When I suggested getting rid of skin and hair products with wheat germ oil, I just about got tarred and feathered! They seriously claim that there is NO gluten in wheat germ oil or wheat starch. And anybody who doesn't get better by following their codex alimentarius (20ppm gluten allowed in food, and they're very proud of that, since Finland allows 200ppm) must have something else, they aren't celiacs. It makes me so mad, that I just can't post there any more!

They were also complaining that the self-test for gluten intolerance costs 12 Euro (less than $20.00 US), and thought that people wanted to rip them off because the government health insurance wouldn't cover it! I checked, and that same test costs $99.00 in the US (more in Canada).

And so they complain about things we would consider a blessing, and lead people astray by claiming that the 20ppm is very reasonable, since it isn't possible to be 100% gluten free, anyway, and that wheat germ and wheat starch are fine, because they don't contain gluten.

So, to not start fights, and to not be treated like crap when I don't agree with them, I am staying away now for the most part.


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      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
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