Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have Celiac ? And Gluten Intolerance


Crunches

Recommended Posts

Crunches Newbie

I'm so frustrated. Three months ago, I had an allergy test via blood and was told I'm allergic to almost everything: ie- beef, pork, shell fish, salmon, chicken, eggs, wheat, corn, banana, potatoes, yucca, beets, maple tree, hazel, peanuts, mold, dairy, soy, grass (types I can't remember) mixed feathers, ( I figured, b'cuz I can't breath around down products), dog, cat, melons, tomatoes - and the list goes on. I always complained since I was young about my body (painful, stomach pains), feels like I'm doing extreme exercise or have been beaten; and some times have seizures, just awful. I tried staying away from everything for two weeks, my blood pressure when normal and I lost 20 pounds. But I can't keep up with the meals because my family don't believe this is actually a problem, and how have I been living for the past 50+ years with such a problem. So I still have to shop for the household. But I have been struggling with the pain for years. I need help, because I cannot live without bread!!!! I keep falling off by eating bread (even gluten free - I have pain and rash). At least, bread is filling.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Darren Apprentice

The only way to truly know if you are celiac is to ask your doctor for a blood panel and if it's positive then a biopsy. I suggest you ask for the blood panel to help you determine celiac or not.  

ravenwoodglass Mentor

Welcome to the board. I agree you should be tested for celiac. Make sure you don't stop eating gluten until all celiac related testing is finished. I also seemed to be allergic to everything before I was diagnosed. I had skin prick testing for 99 substances and the only thing I didn't react to was beech trees!  My very savvy allergist said after I was diagnosed that was a big indication to him that I was likely celiac. He then referred me back to my GI doctor who confirmed his suspicions.

Family can be a bit hesitant to believe our diagnosis. I know my family was sceptical but as I recovered they became more suportive and even ended up getting the advised testing for first degree relatives.

I hope you can get some clear answers soon and can begin recovering.

One last thought you mentioned a rash. Celiac can produce a rash called dermatitis herpeformis (DH). A diagnosis of DH is a diagnosis of celiac. You may want to see a celiac savvy dermatologist. Do check out the DH section of the board for more info on that condition.

Ennis-TX Grand Master

You have to keep eating gluten to be tested, but only a half a slice of bread or a cracker a day. I do suggest going to you doctor and requesting a FULL celiac panel and getting the blood test done. They will follow up with a endoscope and biopsy.

On a side note Celiac is a autoimmune disease, it can lead to other issues with your body, including other immune diseases, thyroid issues, food intolerance. Now due to the damaged intestines most of us with it are prone to random food allergies and intolerance that can go away with time as we heal. We normally have to stay on a strict gluten-free diet once diagnosed and each of use being different have to find a diet that works for us. in my case it is Allergies:Corn, Olives ,Sesame, Peanuts, Whey Sensitivities/Intolerances: Dairy, Soy, Yeast ,Enzyme issues with digesting Meats, and Egg Yolks, Low Tolerance for sugars and carbs (Bloating issues) So I built a diet around nuts, seeds, veggies, small amounts of meats and egg whites, along with vegan protein powders.   I did have a few other issues that have one away over the years, like my allergy to beets and in the fact I can eat salmon, crab, swai, and lean meats cooked til they fall apart in small amounts.   

I suggest talking to a dietician about you diet and setting something up once you get your testing done. I do regardless suggest dropping all processed, foods, condiments, etc. and going to a WHOLE foods only diet of fresh veggies, meats, fruit, sweet potatoes and perhaps rice to go easy on your system for a bit. You might find your reacting something odd in your diet you did not know about that is in processed foods. Try a simple thick and hearty stews of just fresh meats and veggies for a awhile and see how you feel. A elimination diet t for a few weeks might help narrow down your issues also.

cyclinglady Grand Master

Learn more about celiac disease testing:

Open Original Shared Link

 

emma6 Enthusiast

wow thats a lot of allergies!  do you actually have an allergic reaction to all those things?

was it an IgE allergy test? i believe the blood test more commonly has false positives than the skin scratch test. did your allergist offer you any kind of allergen immunotherapy .

if you had the IgA/IgG food intolerance testing, its not scientifically accurate, the positive results just indicate food you have been exposed too which are wrongly interpreted as meaning allergies. so i wouldn't make any significant diet chances based those results.

Crunches Newbie

I'll like to thank everyone for each advise. At first, I felt like I probably had something else going on. Because I thought that you can't have celiac if you're allergic to food other than gluten. I do have an appointment with my doctor next week and we'll go from there with other test.  And Emma6, unfortunately, yes. And I didn't mention everything. I guess that's why my family is in awe. It seem unreal.Thank you for making me feel real!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,872
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.