Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone's Child Have Sandy Or Grainy Stools?


e&j0304

Recommended Posts

e&j0304 Enthusiast

I am just wondering if any one else has experienced this. We had this come up with Ella before she went gluten-free and now it's happening with my son. We are going to have him tested soon and decided to keep him on gluten for now. He has suffered from reflux as well as diarrhea in the past as well as refusal to eat. However, as soon as I stopped nursing him he has started to eat huge portions and seems to not feel full, similar to what Ella did before going gluten-free. He also now has sandy stools.

In addition to all of that, since we started him on whole milk, he has had terrible diaper rash and even a welt on his little bottom. We took him off of the whole milk and he's drinking soy without a problem. Could that be a milk allergy even though his face didn't break out?

Thanks for any imput. I'm just wondering if this particular thing (sandy stool) is even gluten related or if it's just my wierd kids! :D

Thanks,

Shannon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Slamey24 Newbie
I am just wondering if any one else has experienced this. We had this come up with Ella before she went gluten-free and now it's happening with my son. We are going to have him tested soon and decided to keep him on gluten for now. He has suffered from reflux as well as diarrhea in the past as well as refusal to eat. However, as soon as I stopped nursing him he has started to eat huge portions and seems to not feel full, similar to what Ella did before going gluten-free. He also now has sandy stools.

In addition to all of that, since we started him on whole milk, he has had terrible diaper rash and even a welt on his little bottom. We took him off of the whole milk and he's drinking soy without a problem. Could that be a milk allergy even though his face didn't break out?

Thanks for any imput. I'm just wondering if this particular thing (sandy stool) is even gluten related or if it's just my wierd kids! :D

Thanks,

Shannon

Hi, my little boy has never had the "sandy" stools but he goes from being totally constipated for a few days to explosive diarrhea the next. With him, you never really know what you're going to get. The only thing that's really consistent is that they smell horrible. :blink: He's only been gluten free for about a week and a half but we're already noticing a change in frequency. So far so good. Good luck with the soy milk, Dylan didn't care for it much. I know nothing about allergies to it. Sorry! You're lucky that you have so much experience with having your daughter go through this. We're the newest of newbies and I feel a little bit overwhelmed sometimes.

Good luck,

Amy

Braunson's-mom Rookie

Hi my son has been gluten-free since Feb 05 and he is 2 now. My son had severe diahrea with the sandy grainy looking stools. My son also could not tollerate whole milk. After going gluten-free my son stools stopped looking like that and after about 6 mo he could start drinking whole milk. My son could always drink 2% milk with limited amouts not 10 glasses a day. He could have may be 2 glasses at first and then slowly I increased it to more and now he has no restrains on milk consumptions. He had the big blisters on him bottom. The only time his stools go grain is if he gets a hold of glutten. I would say go glutten free clear up his bottom and diahrea and then may be try 2% milk and then latter try the whole milk. Good luck as you know from you daughter, life gets better.

cherie012 Apprentice

I am still learning about this gluten stuff, but I can speak from experience with dairy and soy....

Mason is allergic to both. According to my ped GI, there is a 25-30% of children who are dairy protien sensitive that WILL cross react to soy. With mason, his reaction to the soy milk is worse than with milk ( or so it seems, since he doesn't get dairy at all any more, and has only had small quantities when someone else didn't follow the rules ). His reactions focus mostly on GI stuff, putrid watery, explosive stools. So, it could be from soy milk, too, if he is sensitive to dairy....

We use rice milk, and Mason loves it. it is thinner in texture than soy milk, but is really good, IME.. maybe try that too....

taweavmo3 Enthusiast

That's exactly what whole milk does to Ben....his bottom gets blistery red and painful. I went ahead and had him tested for celiac about three weeks ago, since my parents had been feeding him gluten anyway (so much for my gluten free plan eh?). I haven't heard back yet, I'm assuming they were negative, but I'll check soon.

Anyway, he was drinking soy milk like it was going out of style. Soy didn't make him have blisters on his bottom anymore, but his stools were still not normal. Not diarrhea, but bulky, and yep...grainy like you described, always with bits of food too. I swear, where else can I go into details about my child's poo like I can on here, huh??? Lol. Lately he's been on an orange juice kick (calcium fortified, so what the heck right?) and hasn't wanted his soy milk anymore. Well, guess what he had today??? A normal BM!!!!!!! I know you can understand my excitement over this....I have been trying to clear up his poor little beat red bottom forever. So, I guess like the other poster said....soy must have been a problem too. Now if only I could be so sure about gluten being a problem or not, I'd feel even better! If it were just milk and soy, that would be much easier. But, now I'm wondering if his dairy intolerance is b/c of celiac, or is it just an allergy? If I make him gluten free, would he tolerate milk again? Ugh, so many questions! I drive myself batty wondering what to do.

Hope you find more answers for your little boy, sorry to hijack your post with my own ramblings!

e&j0304 Enthusiast

thank you all so much for your help! I really don't know what's going on with little Jack! He is doing much better with the soy as far as the diaper rash goes, but he still has really grainy stools. I guess that could be from the soy too. It's such a guessing game, isn't it?

It is nice to know that we're not alone and others have experienced this also. Tamara, you are right...no one but people on here will understand how you can get so excited about a normal BM!!!

At least someone understands! <_<

Thanks again,

Shannon

Nantzie Collaborator

My daughter has grainy stools sometimes too, but not all the time. I haven't had her tested for anything yet, but I'm pretty sure it's gluten or food intolerance related. Sometimes there are little tiny bits of undigested food on her bottom and it takes forever to get all the little pieces off because they don't want to stick to the wipe.

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



katerinvon Rookie
I am just wondering if any one else has experienced this. We had this come up with Ella before she went gluten-free and now it's happening with my son. We are going to have him tested soon and decided to keep him on gluten for now. He has suffered from reflux as well as diarrhea in the past as well as refusal to eat. However, as soon as I stopped nursing him he has started to eat huge portions and seems to not feel full, similar to what Ella did before going gluten-free. He also now has sandy stools.

In addition to all of that, since we started him on whole milk, he has had terrible diaper rash and even a welt on his little bottom. We took him off of the whole milk and he's drinking soy without a problem. Could that be a milk allergy even though his face didn't break out?

Thanks for any imput. I'm just wondering if this particular thing (sandy stool) is even gluten related or if it's just my wierd kids! :D

Thanks,

Shannon

Brigid has had the grainy stools in combination with the open bleeding rash. I really don't know for sure if it's connected with the gluten or not. She has never seemed to have a milk problem, but we primarily drink fresh goat's milk. (from our own goats) She also had the same reaction with amaranth, except wityhout the open sores. Cross contamination, perhaps? Or maybe a seperate sensitivity issue? Also, it seems that this rash takes longer to heal than a regular diaper rash. I feel like I should take out stock in the Desatin company! But as long as we stick to the diet, she is rash and sore free, and she has normal BM's.

Karen

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.