Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone's Child Have Sandy Or Grainy Stools?


e&j0304

Recommended Posts

e&j0304 Enthusiast

I am just wondering if any one else has experienced this. We had this come up with Ella before she went gluten-free and now it's happening with my son. We are going to have him tested soon and decided to keep him on gluten for now. He has suffered from reflux as well as diarrhea in the past as well as refusal to eat. However, as soon as I stopped nursing him he has started to eat huge portions and seems to not feel full, similar to what Ella did before going gluten-free. He also now has sandy stools.

In addition to all of that, since we started him on whole milk, he has had terrible diaper rash and even a welt on his little bottom. We took him off of the whole milk and he's drinking soy without a problem. Could that be a milk allergy even though his face didn't break out?

Thanks for any imput. I'm just wondering if this particular thing (sandy stool) is even gluten related or if it's just my wierd kids! :D

Thanks,

Shannon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Slamey24 Newbie
I am just wondering if any one else has experienced this. We had this come up with Ella before she went gluten-free and now it's happening with my son. We are going to have him tested soon and decided to keep him on gluten for now. He has suffered from reflux as well as diarrhea in the past as well as refusal to eat. However, as soon as I stopped nursing him he has started to eat huge portions and seems to not feel full, similar to what Ella did before going gluten-free. He also now has sandy stools.

In addition to all of that, since we started him on whole milk, he has had terrible diaper rash and even a welt on his little bottom. We took him off of the whole milk and he's drinking soy without a problem. Could that be a milk allergy even though his face didn't break out?

Thanks for any imput. I'm just wondering if this particular thing (sandy stool) is even gluten related or if it's just my wierd kids! :D

Thanks,

Shannon

Hi, my little boy has never had the "sandy" stools but he goes from being totally constipated for a few days to explosive diarrhea the next. With him, you never really know what you're going to get. The only thing that's really consistent is that they smell horrible. :blink: He's only been gluten free for about a week and a half but we're already noticing a change in frequency. So far so good. Good luck with the soy milk, Dylan didn't care for it much. I know nothing about allergies to it. Sorry! You're lucky that you have so much experience with having your daughter go through this. We're the newest of newbies and I feel a little bit overwhelmed sometimes.

Good luck,

Amy

Braunson's-mom Rookie

Hi my son has been gluten-free since Feb 05 and he is 2 now. My son had severe diahrea with the sandy grainy looking stools. My son also could not tollerate whole milk. After going gluten-free my son stools stopped looking like that and after about 6 mo he could start drinking whole milk. My son could always drink 2% milk with limited amouts not 10 glasses a day. He could have may be 2 glasses at first and then slowly I increased it to more and now he has no restrains on milk consumptions. He had the big blisters on him bottom. The only time his stools go grain is if he gets a hold of glutten. I would say go glutten free clear up his bottom and diahrea and then may be try 2% milk and then latter try the whole milk. Good luck as you know from you daughter, life gets better.

cherie012 Apprentice

I am still learning about this gluten stuff, but I can speak from experience with dairy and soy....

Mason is allergic to both. According to my ped GI, there is a 25-30% of children who are dairy protien sensitive that WILL cross react to soy. With mason, his reaction to the soy milk is worse than with milk ( or so it seems, since he doesn't get dairy at all any more, and has only had small quantities when someone else didn't follow the rules ). His reactions focus mostly on GI stuff, putrid watery, explosive stools. So, it could be from soy milk, too, if he is sensitive to dairy....

We use rice milk, and Mason loves it. it is thinner in texture than soy milk, but is really good, IME.. maybe try that too....

taweavmo3 Enthusiast

That's exactly what whole milk does to Ben....his bottom gets blistery red and painful. I went ahead and had him tested for celiac about three weeks ago, since my parents had been feeding him gluten anyway (so much for my gluten free plan eh?). I haven't heard back yet, I'm assuming they were negative, but I'll check soon.

Anyway, he was drinking soy milk like it was going out of style. Soy didn't make him have blisters on his bottom anymore, but his stools were still not normal. Not diarrhea, but bulky, and yep...grainy like you described, always with bits of food too. I swear, where else can I go into details about my child's poo like I can on here, huh??? Lol. Lately he's been on an orange juice kick (calcium fortified, so what the heck right?) and hasn't wanted his soy milk anymore. Well, guess what he had today??? A normal BM!!!!!!! I know you can understand my excitement over this....I have been trying to clear up his poor little beat red bottom forever. So, I guess like the other poster said....soy must have been a problem too. Now if only I could be so sure about gluten being a problem or not, I'd feel even better! If it were just milk and soy, that would be much easier. But, now I'm wondering if his dairy intolerance is b/c of celiac, or is it just an allergy? If I make him gluten free, would he tolerate milk again? Ugh, so many questions! I drive myself batty wondering what to do.

Hope you find more answers for your little boy, sorry to hijack your post with my own ramblings!

e&j0304 Enthusiast

thank you all so much for your help! I really don't know what's going on with little Jack! He is doing much better with the soy as far as the diaper rash goes, but he still has really grainy stools. I guess that could be from the soy too. It's such a guessing game, isn't it?

It is nice to know that we're not alone and others have experienced this also. Tamara, you are right...no one but people on here will understand how you can get so excited about a normal BM!!!

At least someone understands! <_<

Thanks again,

Shannon

Nantzie Collaborator

My daughter has grainy stools sometimes too, but not all the time. I haven't had her tested for anything yet, but I'm pretty sure it's gluten or food intolerance related. Sometimes there are little tiny bits of undigested food on her bottom and it takes forever to get all the little pieces off because they don't want to stick to the wipe.

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



katerinvon Rookie
I am just wondering if any one else has experienced this. We had this come up with Ella before she went gluten-free and now it's happening with my son. We are going to have him tested soon and decided to keep him on gluten for now. He has suffered from reflux as well as diarrhea in the past as well as refusal to eat. However, as soon as I stopped nursing him he has started to eat huge portions and seems to not feel full, similar to what Ella did before going gluten-free. He also now has sandy stools.

In addition to all of that, since we started him on whole milk, he has had terrible diaper rash and even a welt on his little bottom. We took him off of the whole milk and he's drinking soy without a problem. Could that be a milk allergy even though his face didn't break out?

Thanks for any imput. I'm just wondering if this particular thing (sandy stool) is even gluten related or if it's just my wierd kids! :D

Thanks,

Shannon

Brigid has had the grainy stools in combination with the open bleeding rash. I really don't know for sure if it's connected with the gluten or not. She has never seemed to have a milk problem, but we primarily drink fresh goat's milk. (from our own goats) She also had the same reaction with amaranth, except wityhout the open sores. Cross contamination, perhaps? Or maybe a seperate sensitivity issue? Also, it seems that this rash takes longer to heal than a regular diaper rash. I feel like I should take out stock in the Desatin company! But as long as we stick to the diet, she is rash and sore free, and she has normal BM's.

Karen

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.