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DH - The usual Suspect

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Hello everyone :)

I've been reading this invaluable forum for a while now, but this is my first time posting.


I'm 35, and my first breakout happened on the 4th of July of last year. I thought it was allergy from being in the woods or some type of contact dermatitis. I had extreme burning on the back of my knees and elbows. They got very hot and eventually blistered. They completely healed the next day with no scarring.


Since then, I've been having on and off episodes of flaring on another spot; the left side where my thigh meet my buttocks. It gets raised, red, very hot, and the most distinctive symptom is a burning sting. Although it's sometimes itchy, however, it doesn't drive me crazy as everyone describes DH, it just burns, and it's always that same spot. It's a perfect oval shape now, and although it heals wI think a day or two, it's always dark. My spot flares when I eat gluten mostly, but I haven't established a consistent causality, sometimes it does while sometimes it doesn't.


My doctors suspected herpes at first, and those came back negative. Then I did the gluten blood test which was normal. Another doctor decided it was a fixed drug eruption, and gave me a steroid which has been helping a lot. However, I'm still getting the flare ups evens after I've cut all of my medicine, and again the flare ups come usually after eating gluten. He did a biobsy from the lesion site, and it didn't show anything except some type of contact dermatitis. Of course I read here that the biobsy should've  been taken from the surrounding area. Now they ordered a blood test for celiac that's only done in another state, and will take 2 weeks to get here.


I've had pizza yesterday, and withing 2 hours my spot was on fire, very lumpy and hot. The steroid immediately helped bring it down, and I've been fine since.


Does this sound consistent with DH? Any other suspects or suggestions?


Thanks a lot!

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

Hi Danzig,

I am not sure if that fits DH or not.  I believe DH can start small and spread over time though.

Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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Have you been for the most part gluten free? if so your blood test may show a false negative. Be sure to let the doctors know if you haven't been eating gluten. If that is the case you will need to do a gluten challenge for testing. Steroids will also impact the blood testing. I don't know how long they would need to be stopped before testing. Perhaps someone else will advise on that.

Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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