Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie With Questions


ebrbetty

Recommended Posts

ebrbetty Rising Star

hello, I just joined the board and am hoping to find some answers..I've had terrible stomach pain,bloating,gas,heartburn [no ulcer] for close to a year. my stomach hurts 24/7...somedays worse than others,My Gastro has given me every test he can think of,keeps telling me I have a very bad case of IBS...I don't agree,the pain is awful.

I came across this site looking for help...could someone please tell me the symptoms and If there is anywhere I can get a list of food I can eat and not eat..from what I'm reading here on the board it looks like most foods are a no-no :angry: I had a english muffin with a egg and cheese this morning and now I'm dying with stomach pain and can't stop burping

HELP PLEASE!!

thank you very much

Betty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Welcome to this forum. I'm sorry you are having such difficulties. You are not alone though, and we are always here to help. I hope you find the answers you need.

From your description, it does sound like it could be gluten giving you those problems. This site has tons of info which can more than answer the questions you have, and the members of the forum are also a wealth of information.

Here's a link for safe/forbidden foods:

https://www.celiac.com/st_main.html?p_catid...-02105529657.e2

Here's a link to some FAQ's about Celiac:

https://www.celiac.com/st_main.html?p_catid...-18105508857.9d

The best test for being gluten intolerant is the change of diet. If it works, that's really the best indicator, as many here have found. It may appear like most foods are a no-no, but it's really because the typical American diet is centered around wheat. Take a look at your current diet, and you will likely see meal after meal of wheat based foods. That's not unusual, but don't be discouraged. Once you discover all the foods you have been missing out on all your life, you will not miss the wheat so much if at all. Especially when you find out how much better your health can be.

My personal view is not to wait for a doctor to recommend the gluten-free diet. Try it right away, and if it works, you'll be that much better off for it. Many do decide to get an official diagnosis, though I haven't and don't plan to.

Many will tell you how the recovery time can vary widely from person to person. Some see an almost immediate response, while for others it takes months. For me it was about 6 months before I started seeing any improvement. It depends on many factors, not the least of which is the extent of the damage to your insides.

ebrbetty Rising Star

Thank you very much for your help. I feel overwelmed at this point...I just looked through my cabinets,not much I can eat :angry: I will try a plain chicken breast with potato tonight..my dr. has given up on helping me....we've tried all the tests and meds he can think of, no help...keeps telling me to eat light and stay away from butter and high fat

any help is very much appreciated..ready to give up before I start!

Betty

StrongerToday Enthusiast

Hello and Welcome! I'm pretty new here myself, but have learned *tons* from this website - read everything you can get your hands on!! Has your dr. run any Celiac tests? If not, and you want to be tested (both blood and stool) then you need to be consuming gluten - at least for the blood tests. OTOH, my blood panel came back perfectly "normal", as lots of other people's have. I don't need the paper to tell me I'm having wheat and/or gluten sensitivities. Truly the best test is to cut out all gluten and see how you feel. I've been blessed to have a good doctor, a friend who's a nutritionist who has helped me a lot, and access to the internet so I can check this website daily!! Good luck and don't be afraid to ask questions.

Hope you're feeling better soon...

ebrbetty Rising Star

thank you for the encouragement...there is just so much info,my head is spinning :blink: still trying to find a good list of foods I can eat and not eat.

If gluten is the problem,then wouldn't my pain be severe everyday? I have been eating it everyday but somedays my pain,bloating hearburn is not as bad as other days

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,012
    • Most Online (within 30 mins)
      7,748

    Anna Costa
    Newest Member
    Anna Costa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
    • Scott Adams
      It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.