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M-SMOOTH

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M-SMOOTH Explorer

Recently diagnosed last week does the pain ever get better??


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cyclinglady Grand Master

Oh, yes!  It just takes time.  I know, hard to hear, but it took a lot of time for your symptoms to develop.  Most members feel noticeably better in a few weeks.  Just rest as much as possible.  Spend time learning the Gluten free diet.  There is a steep learning curve to the diet.  Want to shorten it?  Eat as much Whole Foods as possible.  Think stews and soups.  Things that are easy to digest. Eliminate dairy until you start to feel better and then re-introduce it.  Many celiacs become lactose intolerant because the enzymes that help digest lactose are released from villi tips.  Not villi, no enzymes (or at least a reduction based on patchy damage).  Do not eat out for a while!  

Hang in there!  

Fbmb Rising Star

You'll get better, but be patient with yourself. I was diagnosed in November and was lucky to not have very many symptoms yet, as I caught it early. But, that said, it still took about 6 months to feel like my gluten free diet was even doing any good. I'm still tired a lot, but I have two kids and run a non-profit. I have bad anxiety and hoped that would decrease after my diagnosis but it's gotten worse - which tells me that gluten wasn't the culprit. 

Don't eat out. At all. Try to eat as healthy as you can. Eggs, unprocessed meats, nuts, fruits and veggies are your friends for now. I agree with cyclinglady about dairy. I still go easy on that. I can do yogurt and cheese, but I'm still taking it easy on milk. Lean on the people on here for support because they're pros. There's a huge learning curve with the diet, but you'll get the hang of it. Do lots of research and be patient. It just takes time.

Ennis-TX Grand Master

Above is some great suggestions, read the 101 if you have not already and toss all your gluten items, clean out everything and make a safe living environment. I would as mentioned start off on a whole foods only diet, fresh vegetables, and meats cooked in water into stews in a crock pot are really easy to digest and can mixed up in various ways. Using crockpot liners will makes this easy clean up as well. I suggest new utensils, get rid of any scratched glass, teflon, or metal wares you have that could harbor gluten. Most plastic plates, bowls, etc will have to go. I suggest freezer paper for prep surfaces for clean work surface and easy clean up. Clean out your drawers, cubbards, fridge freezer, making sure to clean handles also. I might suggest drawer organizers to keep any think new you get from getting old crumbs, residue from the drawer on them. Go through your spices, and sauces toss anything not gluten-free. Your condiments in jars need to go, crumbs/residue from forks, knifes, spoons put them has contaminated them.

Also remove dairy as mentioned it causes alot of issues for us and go easy on spices for a while just salt and pepper for a bit. There are many other things we can help with around here if you need brand to trust etc. Feel free to ask about anything your having issues with.

M-SMOOTH Explorer

Thanks that's good to hear it gets better getting myself familiar with the diet as well ??

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      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
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      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
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    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
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