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M-SMOOTH

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M-SMOOTH Explorer

Recently diagnosed last week does the pain ever get better??


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cyclinglady Grand Master

Oh, yes!  It just takes time.  I know, hard to hear, but it took a lot of time for your symptoms to develop.  Most members feel noticeably better in a few weeks.  Just rest as much as possible.  Spend time learning the Gluten free diet.  There is a steep learning curve to the diet.  Want to shorten it?  Eat as much Whole Foods as possible.  Think stews and soups.  Things that are easy to digest. Eliminate dairy until you start to feel better and then re-introduce it.  Many celiacs become lactose intolerant because the enzymes that help digest lactose are released from villi tips.  Not villi, no enzymes (or at least a reduction based on patchy damage).  Do not eat out for a while!  

Hang in there!  

Fbmb Rising Star

You'll get better, but be patient with yourself. I was diagnosed in November and was lucky to not have very many symptoms yet, as I caught it early. But, that said, it still took about 6 months to feel like my gluten free diet was even doing any good. I'm still tired a lot, but I have two kids and run a non-profit. I have bad anxiety and hoped that would decrease after my diagnosis but it's gotten worse - which tells me that gluten wasn't the culprit. 

Don't eat out. At all. Try to eat as healthy as you can. Eggs, unprocessed meats, nuts, fruits and veggies are your friends for now. I agree with cyclinglady about dairy. I still go easy on that. I can do yogurt and cheese, but I'm still taking it easy on milk. Lean on the people on here for support because they're pros. There's a huge learning curve with the diet, but you'll get the hang of it. Do lots of research and be patient. It just takes time.

Ennis-TX Grand Master

Above is some great suggestions, read the 101 if you have not already and toss all your gluten items, clean out everything and make a safe living environment. I would as mentioned start off on a whole foods only diet, fresh vegetables, and meats cooked in water into stews in a crock pot are really easy to digest and can mixed up in various ways. Using crockpot liners will makes this easy clean up as well. I suggest new utensils, get rid of any scratched glass, teflon, or metal wares you have that could harbor gluten. Most plastic plates, bowls, etc will have to go. I suggest freezer paper for prep surfaces for clean work surface and easy clean up. Clean out your drawers, cubbards, fridge freezer, making sure to clean handles also. I might suggest drawer organizers to keep any think new you get from getting old crumbs, residue from the drawer on them. Go through your spices, and sauces toss anything not gluten-free. Your condiments in jars need to go, crumbs/residue from forks, knifes, spoons put them has contaminated them.

Also remove dairy as mentioned it causes alot of issues for us and go easy on spices for a while just salt and pepper for a bit. There are many other things we can help with around here if you need brand to trust etc. Feel free to ask about anything your having issues with.

M-SMOOTH Explorer

Thanks that's good to hear it gets better getting myself familiar with the diet as well ??

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    • daniellelawson2011
      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was wondering. Im almost positive I have MS and I've read results are higher like that with early onset. Or it could be IBS. Hopefully the visit with the neurologist will give me even more answers and point to a final diagnosis. I really appreciate you taking the time to reply and for helping. Thank you so much!
    • trents
      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check for iga deficiency. If you are iga deficient, then the ttg-iga and other iga tests that are specific for celiac disease will be abnormally low and this would potentially produce false negatives. You are not iga deficient but, rather, your total iga is abnormally high. This can suggest underlying health conditions, some of them can be serious in nature.  https://labs.selfdecode.com/blog/high-iga/ "High IgA usually points to chronic infections or inflammation, though many disorders can raise its levels. High IgA does not cause symptoms. People show symptoms from their underlying health problem." One thing I might add and that is you must have been eating normal amounts of gluten for weeks/months prior to the blood draw for antibody testing. Testing while on a gluten free or gluten reduced diet will not yield valid results. Also, here is a primer outlining the various antibody tests that can be ordered to check for celiac disease:  
    • daniellelawson2011
      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through the process of diagnosis to maybe give me some insight on what this means and where to go from here. Also of note, i had a brain mri which showed white lesions which arent typical at 44 years old. I have many MS symptoms. I go to the neurologist on Tuesday, but just curious if anyone knows if there is a correlation between iga and MS. I appreciate any help! Thanks!
    • Joe R
      Thank you for your advice. I appreciate the help. 
    • nanny marley
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