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M-SMOOTH Explorer

Recently diagnosed last week does the pain ever get better??


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cyclinglady Grand Master

Oh, yes!  It just takes time.  I know, hard to hear, but it took a lot of time for your symptoms to develop.  Most members feel noticeably better in a few weeks.  Just rest as much as possible.  Spend time learning the Gluten free diet.  There is a steep learning curve to the diet.  Want to shorten it?  Eat as much Whole Foods as possible.  Think stews and soups.  Things that are easy to digest. Eliminate dairy until you start to feel better and then re-introduce it.  Many celiacs become lactose intolerant because the enzymes that help digest lactose are released from villi tips.  Not villi, no enzymes (or at least a reduction based on patchy damage).  Do not eat out for a while!  

Hang in there!  

Fbmb Rising Star

You'll get better, but be patient with yourself. I was diagnosed in November and was lucky to not have very many symptoms yet, as I caught it early. But, that said, it still took about 6 months to feel like my gluten free diet was even doing any good. I'm still tired a lot, but I have two kids and run a non-profit. I have bad anxiety and hoped that would decrease after my diagnosis but it's gotten worse - which tells me that gluten wasn't the culprit. 

Don't eat out. At all. Try to eat as healthy as you can. Eggs, unprocessed meats, nuts, fruits and veggies are your friends for now. I agree with cyclinglady about dairy. I still go easy on that. I can do yogurt and cheese, but I'm still taking it easy on milk. Lean on the people on here for support because they're pros. There's a huge learning curve with the diet, but you'll get the hang of it. Do lots of research and be patient. It just takes time.

Ennis-TX Grand Master

Above is some great suggestions, read the 101 if you have not already and toss all your gluten items, clean out everything and make a safe living environment. I would as mentioned start off on a whole foods only diet, fresh vegetables, and meats cooked in water into stews in a crock pot are really easy to digest and can mixed up in various ways. Using crockpot liners will makes this easy clean up as well. I suggest new utensils, get rid of any scratched glass, teflon, or metal wares you have that could harbor gluten. Most plastic plates, bowls, etc will have to go. I suggest freezer paper for prep surfaces for clean work surface and easy clean up. Clean out your drawers, cubbards, fridge freezer, making sure to clean handles also. I might suggest drawer organizers to keep any think new you get from getting old crumbs, residue from the drawer on them. Go through your spices, and sauces toss anything not gluten-free. Your condiments in jars need to go, crumbs/residue from forks, knifes, spoons put them has contaminated them.

Also remove dairy as mentioned it causes alot of issues for us and go easy on spices for a while just salt and pepper for a bit. There are many other things we can help with around here if you need brand to trust etc. Feel free to ask about anything your having issues with.

M-SMOOTH Explorer

Thanks that's good to hear it gets better getting myself familiar with the diet as well ??

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      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
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