Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating, gas in the evening?


elevenluke

Recommended Posts

elevenluke Newbie

Hello all, my name is Luke! I've lurked this forum for answers quite often and finally decided to make an account of my own to interact (not sure why I didn't sooner). I am an RN and was diagnosed with Celiac Disease about a year and 5 months ago when I was 22.

I have been experiencing severe gas and bloating in the evenings (always after I have had both breakfast and lunch, never do I wake up feeling this way). Around 4-5pm I start feeling very bloated, and notice abdominal distension and a sense of fullness, accompanied by an insane amount of gas I pass for hours and hours (lovely, I know... not.). It is terribly uncomfortable and quite annoying, and I often end up using the restroom to have numerous bowel movements. Has anyone else experienced this, and if so what did you find out if anything related to this?

I am NOT being glutened. I am a gluten nazi, seriously. I just had another endoscopy done to test for H. Pylori and check the condition of my small bowel again, which fortunately is in immaculate condition, with no visible villous atrophy. My antibody levels are within normal range, and I ended up not having H. Pylori either. I am just not sure what could be causing these very annoying symptoms, and it is happening every single day! I have done a course of Xifaxin for suspected SIBO, which after finishing the course I *seemed* to be slightly better for a very short period of time--no more than 2 weeks tops, but I feel just the same again now. I know SIBO can grow back, but I never felt conclusively better to even know whether or not it was that in the first place (something I plan to pursue with GI doc at next visit). I guess I just feel at a loss for what could be causing my symptoms, and I don't know what else to try. I have a great diet that is quite bland and(gluten free of course, with almost no processed food... but this "reaction" of gas and abdominal dissension I seem to be getting daily happens regardless of what I eat it seems. I have recently added in digestive enzymes with each meal to see if that would help, but it has not whatsoever. I have an appointment with the GI doctor again, and am seeing a dietician just because, but have no conclusive answers so far, and am trying my luck here with my celiac brothers and sisters :)

Sorry for the long winded description, I tried to keep only the most relevant information, and keep it the least "graphic" I could (sorry, I talk about poop and nasty bodily functions daily being in nursing so I lose track of what the line is when speaking normally!) Thanks for reading, and having me as a part of the community.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Used to get this when I ate anything with carbs/sugars, but this I later learned was from UC and it causing flare ups. I also get this as a after effect from dairy, peanuts, soy, and a few other intolerance of mine but I first normally get really bad stomach issues.

Try a elimination diet and see what it might be, would be my main suggestion. You probably developed a new intolerance or just having a bad reaction to something.

GFinDC Veteran

An elimination diet would be a good idea.  And start with oats as you might be one of the celiacs who react to them.  Any carbs, sugar and processed foods are a possible source of bloating too.   Probiotics might help.  Antibiotics can really mess up the gut flora so it needs to be re-established with good stuff.

Ennis is right, additional food intolerances can develop.  Dairy, soy, corn, eggs, nightshades, oats, are common food intolerances.  But any food can cause a reaction if you become intolerant to it.  We may be more likely to become intolerant to foods we eat a lot of while our guts are irritated.  That's one reason people do rotation diets.  It's almost always something we are eating or drinking or ingesting in some way that causes symptoms.

elevenluke Newbie

I will definitely try the elimination diet. I have been planning to do so for a while, but haven't actually tried it as I have been busy and hadn't brung myself to learn what all I can eat, and ensure it is enough. It is so odd that your body can develop random new intolerances to foods you have eaten your entire life, once you have/are diagnosed with celiac disease. I haven ever had a lower sugar/carb diet as healthy as what I eat now, but surely something is slipping through the cracks causing symptoms.

A question I have for you guys is, have you been tested for food intolerances? I hear mixed things from colleagues about the trustworthiness of the test itself and how indicative it is of actually food sensitivities, and was curious if you all have had the tests and could speak on their reliability in your personal experiences? I plan to do the elimination diet regardless, but I figure it would be helpful to have some level of guidance when replacing possibly offending food groups back into my diet, if I have some kind of potential insight as to what is most likely not great for me. Thanks!

  • 1 year later...
Mr. Legend Newbie
On 5/8/2017 at 10:48 PM, elevenluke said:

I will definitely try the elimination diet. I have been planning to do so for a while, but haven't actually tried it as I have been busy and hadn't brung myself to learn what all I can eat, and ensure it is enough. It is so odd that your body can develop random new intolerances to foods you have eaten your entire life, once you have/are diagnosed with celiac disease. I haven ever had a lower sugar/carb diet as healthy as what I eat now, but surely something is slipping through the cracks causing symptoms.

A question I have for you guys is, have you been tested for food intolerances? I hear mixed things from colleagues about the trustworthiness of the test itself and how indicative it is of actually food sensitivities, and was curious if you all have had the tests and could speak on their reliability in your personal experiences? I plan to do the elimination diet regardless, but I figure it would be helpful to have some level of guidance when replacing possibly offending food groups back into my diet, if I have some kind of potential insight as to what is most likely not great for me. Thanks!

You may have ibs (irritable bowel syndrome) .i am having the same symptoms and taking medication for ibs. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

    2. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.