Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten free stool related


Guelphgluten91

Recommended Posts

Guelphgluten91 Newbie

Hi there, I've been on a gluten free diet for about 6 weeks now, as my doctor thinks I might be celiac (runs wild in my family, won't know until the biopsy though) anyway for the last few weeks I've noticed seed like spots in my stools. Sometimes only a couple, but more recently quite a bit throughout. I have taken a stool test and an currently waiting on the results, but I'm wondering if anyone else experienced this when they went gluten free? I eat relatively healthy, am not a big drinker, no smoking or drugs. I have been constipated too, but I feel that's from the lack of fiber (which I'm working on) anyway the seed like spots are the main concern. Thanks! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

Not sure about the stools, but....why are you gluten free before your endoscopy? You need to be eating gluten for , I think, twelve weeks beforehand. You don't want to miss out on your diagnosis because of that. From what people say, the longer off gluten, the more difficult it is to go back on gluten as the body reacts more extremely, at least for some. 

Guelphgluten91 Newbie

I went gluten-free because I'm tired of feeling like carp/having to run to the bathroom, but know that I'll have to eat gluten for an accurate biopsy test. 

Victoria1234 Experienced
20 minutes ago, Guelphgluten91 said:

I went gluten-free because I'm tired of feeling like carp/having to run to the bathroom, but know that I'll have to eat gluten for an accurate biopsy test. 

Whew, glad you knew that already. When is your endoscopy? And glad you are feeling better!

Guelphgluten91 Newbie

That's the question! I heard an 8 month wait, but I need it bumped up due to travel plans. Its been a struggle.but this whole stool thing is freaking me out a bit

Ennis-TX Grand Master

Define spots? Like Bloody spots, just darker patches, or perhaps undigested foods? If undigested food I would suggest digestive enzymes, if blood it would depend on if dried dark tar blood or bright red as this would determine how far up it is and from there probably a colonoscopy to to find out where and what. What is your current diet?

BTW it is very easy to have a high fiber diet on a gluten-free meal plan I get 50-70g of fiber a day on average myself. I eat mostly seeds, and nuts though with a little bit of greens every meal. Along with a ton of protein powder and egg whites.

Jmg Mentor

If you're waiting on a stool test I guess you've spoken to the doctor already?

Parasites would be one possibility to check for

Open Original Shared Link

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,665
    • Most Online (within 30 mins)
      7,748

    Christa Cook
    Newest Member
    Christa Cook
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.