Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac diagnosis with numeric data and timeline for 28 year old male


l394l

Recommended Posts

l394l Newbie

2001 (12 years old) – First prescribed Omperezole for acid reflux.  Would go to nurses office during school because of nerves/ nausea

10/2012- Upper endoscopy- All looks good

05/2013- Experience severe lower left quadrant pain, constipation for first time.  Happened during boot camp—extreme stress, chronic dehydration, physical exertion.

10/2013- Colonoscopy, no biopsies taken, diverticula seen, otherwise all looks good.  Diagnosed with IBS

**Deal with intermittent constipation, diarrhea, abdominal pain for years**

01/2016- Go to Primary Dr. because I feel waves of fatigue/ sleepiness/ facial flushing/ foggy head/ memory issues at work. Still same old same old abdominal issues

            -Testosterone Free plus total blood test 248.2 (Ref range 249-836)

            -25 OH Vitamin D 19.3 ng/ml (Ref range 32-100)

06/11/16- Hospitalized for migraine—numbness in jaw, left arm, loss of vision, confusion, vomiting.

11/22/16- Go to new Gastro Doctor

            -Damidated Gliadin Abs, IgA 53H (Ref range 0-19)

            -Saccharomyces cerevisiae, IgA 42.5H (Ref range 0-24.9)

            -Saccharomyces cerevisiae, IgG 43.1H (Ref range 0-24.9)

            -Deamidated Gliadin Abs, IgG 3 (Ref range 0-19)

            -Immunoglobin A, Qn, Serum 278 (Ref range 90-386)

            -t-Tranglutaminase (tTg) IgA <2 (Ref range 0-3)

            -t-Transglutaminase (tTG) IgG <2 (Ref range 0-5)

01/26/17- Upper and lower scope/ further bloodwork

            -Gastritis, duodenitis, small internal hemorrhoids

            -Deodenal Biopsy- mildly increased intraepithelial lymphocytes

            -DQ2- Positive

            -DQ8-Negative

03/01/17 GLUTEN FREE DIET

Current symptoms: General feeling of unwellness, anxiety, nausea, diarrhea, weight loss, irritability, lack of motivation, loss of interest in pretty much everything.

My gut has always been tied to my nerves (i.e. adrenaline dump makes me vomit, job interview means diarrhea before, cheating girlfriend makes me physically sick and vomit).  I really think the current gastro symptoms persisting despite being gluten free are due to an undiagnosed anxiety issue.  I have a really stressful job and I believe the celiac diagnosis and new stressors associated with it have put my anxiety in overdrive.  Having to carefully plan meals or explain to others my new choice of diet has put me over the edge.  I am a pretty private person…and now having to speak openly with servers at restaurants about my disease or explaining to coworkers when asked about my new diet.  These new stressors have brought an underlying anxiety issue to the surface.  It has gotten bad to the point where I have to leave work because my upper stomach cramping is so bad…I can’t eat in the morning because I am so nauseous.  I wake up in the middle of the night to do diarrhea. 

I know i haven't really presented any questions that need answering...at this point, I'm just hoping to connect with someone with similar issues.  I also hoped it would be helpful to provide some numeric data of my own...many of the postings list extensive subjective symptoms without the actual test results...So I hope thats helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Yeah its like a fight or flight thing with stress, if I get stressed with a full stomach I vomit. I can tell when this is the trigger cause I just nerves get real antsy, I start pacing, then just start burping stuff up no pain, no extreme urge, just blurp and there it goes a few mouth fulls normally then done.   

PS do not eat out, eat at home and take your own meal prep boxes to work, and when invited out to eat. Play it safe, and just tell them "I have some major food allergies, just playing it safe".

Been dealing with constipation since I was a kid, they had no idea what was causing til my stuff go so bad and so many other systematic issues I thought I was dieing and running a bucket list.

Thoughts on dealing with stress, look up Liquid Health Stress & Energy and Liquid Health Neurological Support. Take 1 tbsp each 2-3 times a day before meals....works wonders as part of this disease and having damaged insides is you do not absorb the right vitamins like your b vitamins and this leads to stress, anxiety, and depression issues.   Also look at magnesium, if your dealing with constipation Natural Vitality Calm is great start off with a small dose of 1/2 tsp 1-3 times a day. Over a few weeks you can slowly step it up til you find your sweet spot where you feel great and have easy bowl movements. IF you have extremely bad reactions to the magnesium citrate in the Calm try Doctors best which is a glycinate and easier on the stomach.    You can find all of these on Luckyvitamin.com or amazon. price check and order how it works best for you.

Few helpful links

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

https://www.celiac.com/forums/topic/116482-supplement-and-foods-you-take/

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...