Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Orange county ca referral


Jules22

Recommended Posts

Jules22 Apprentice

Looking to see if anyone on here is from Orange county ca and could give us a referral.  I posted a couple of days ago about my type 1 daughter testing positive for the ttg iga antibodies (greater than 100)  her IgA immunoglobulin was 78--just slightly lower than range and I'm looking to get her seen by a gastro as soon as possible since she is only home from college until August.  She is still seeing a pediatric endocrinologist and was referred to a pediatric gastro but they are unable to even see her for an appointment until the end of July--then we would still need to schedule a biopsy!

 

Not only do I want to get this sorted out as soon as possible due to her going back to school--she is also experiencing lots of symptoms and is feeling unwell most of the time.  Stomach issues-pain in her legs-she seems very pale--I think anemic?

 

Since she is aging out of pediatrics---I would be open to either a pediatric or an adult gastro who specializes in celiac.  Anybody have any referrals?

 

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

A great celiac research group is located at UC San Diego.  Worth a drive.  

Open Original Shared Link

Consider calling the Ped GI daily to see if there are any cancellations.  

Or check this directory from the Celiac Foundation:

Open Original Shared Link

Jules22 Apprentice
29 minutes ago, cyclinglady said:

A great celiac research group is located at UC San Diego.  Worth a drive.  

Open Original Shared Link

Consider calling the Ped GI daily to see if there are any cancellations.  

Or check this directory from the Celiac Foundation:

Open Original Shared Link

Thank you!  I'll check it out.

TexasJen Collaborator

There is also a celiac center at UCLA - Dr Weiss

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,164
    • Most Online (within 30 mins)
      7,748

    VGL
    Newest Member
    VGL
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...